anyone have fibromyalgia or lupus?????

[dallas123]

just trying to "self diagnose"..........have ALL the symptoms of Both??  thx~dallas

[Kateannie]

I was diagnosed with fibro a few years ago. I had no idea why I wasn't sleeping at night and it came to the point that I couldn't put one foot in front of another at work.  The pain, loss of energy, total exhaustion and neck, back and arm pain finally got to the point that I had to quit my job.  I was lucky!  I found a PAC that was very well versed in fibro and after a few blood tests to rule out lupus or lyme disease she diagnosed it as fibro.  I have been on Tramadol since then, but it has gotten to a point that it is no longer doing it's job.  Unfortunately, my PAC moved to another town and I had to find another doctor.  She just isn't as up on treating fibro and I am seriously thinking of going back to my original doc.  Maybe she just has more sympathy, but even that helps.  The new dr put me on Cymbalta and reduced the amount of Tramadol.  I am just starting this so don't know for sure if it will work.  I have been on Tamazepam for sleep and that works most of the time.  I do have an ocassional burst of energy, which I really make the most of, then suffer for it for the next two days. Guess I will never learn.  I do know for sure that a low pressure system coming through the area makes a really big difference, leaving me feeling very exhausted and in a lot of pain.  I look so forward to a warm dry summer when I am at my best.

[sandee1818]

I was diagnosed with fybro years ago and was not even aware it existed until then. I have alot of symptoms that were due to back and neck pain but they were also from the fybro. Fortunately I have a great doc and he handles my pain very well. You should find a good dr to help you.

[shirl1969]

I myself have had the blood test done and came back positive for lupus but now the waiting game to see a specialist.Im in alot of pain and nothing seems to be working for me.Now off work because im getting sick all the time what do i do????

[dottypotty]

i thought that GABIPENTON AND PREGABALIN ANOTHER NAME IS LYRICA SO THE FIRST ONE IS 600MGS THREE TIMES ADAY THE SECOND ONE IS STRONGER IS MAX 600MGS ADAY Dorothy

[dottypotty]

Could not beleive today. went to see rumotolist excuse spelling What did he do say i cant do any more for y will have to sent to a pain clinic. and walked off. from dorothy

[Ghilly]

While people have correctly diagnosed themselves with whatever it is they have, so many autoimmune diseases have the same symptoms that it's really best to go to a doctor who can run tests and then know for sure what it is.  It could be one thing, it could be another, it could be both or it could be neither.  Only a doctor can tell for sure.

Ghilly

[katherinecollect]

I was originally diagnosed with Fibro, Hypothyroidism and Lupus due to having positive ANA (SPeckled ) and a positive RNP which is required to be diagnosed with LUpus.  Every so often I am retested and sometimes my tests come up negative, however, symptoms remain.  Really is hard trying to build a life around that!  How can my tests change back and  forth??  Anxiety and Depression are issues which have now become synonymous with all the rest of my symptoms.

[andi04]

have you seen a rheumatologist they specialize in lupus and rheumatic disease such as fibromyalgia it has come a long way.  I have possible lupus I have all the symptoms but the blood work isn't showing anything so therefore I can't be treated for the disease just the pain.

your better off going to a doctor to ask these kinds of questions.  Lupus is tricky to find it could take one blood draw or ten years worth of blood draws to get it to show up if you have it.

good luck and let us know what happens.


I've also been told that self diagnosing is bad, because you tend to freak out especially when we don't know exactly what we are looking for I'm the queen of trying to self diagnose, and get my self all worked up over nothing, but I do have fibro and possible lupus...hope that answers your questions, everyones symptoms are different.

[idesofmarch]

I diagnoised myself from the medweb sites too.  6 Months later I found a doctor that verified it.  I have Fibromyalgia and Hypothyroid amongst other things. Yes it is hard to know for sure since many illness have the same symptoms. Lupus disease can be detected by a blood test and a medical history that includes rashes and swollen joints etc.  Fibro by the tender spots and a medical history of  widespread pain, joint pain and stiffness but no swelling or reddness. Write down all your symptoms whether they match anything or not.  Get a good Rhematolist doctor (RA-for arthritis)  Bring in as much written info that you can including Fivro symptom list and Lupus list and mark the symptom that you have had recently on & off and chronicly. Knowlegde is your best friend (besides Jesus) Be prepared for a long wait to see a good doctor, and write down what you have done for your pain and symptoms, how long and the results. Good Luck getting your diagnosis and I pray that it turns out to be nothing.