I'm so sorry you're feeling so badly. I can relate. I will keep this short since I'm on my PDA but will be back in a little when I can get to a computer. I've found through the years that
when you're depressed it aggravates your physical conditions. My first recommendation would be to find a psychiatrist. There seems to be some stigma about seeing one but it's never personally bothered me. I'd rather be well in my thinking and make rational decisions than consider the thought of "making it all go away." and when you're there make sure you ask for something to help you sleep. It's amazing what a little sleep can do to our outlook! I had to try several myself before settling on restoril. I gave to be at work really early and lucenta and ambien never made me feel "right" in the morning. Antidepressants are also trial and error some may work and some may not work for you. Just make sure you give it a little time. The one that works best for me is celexa. I would recommend reading up on some different ones and have one in mind before you go to your appointments. Sometimes if you think something is going to work it's more likely to just like if you think it won't off the bat it probably won't. Just a thought.
I'll check back in with you in a few. Hang in there!
Welcome to MedHelp's Pain Mangement Forum. I am sorry you have so much pain and that it is not being managed well.
I don't know if your country has Pain Mangement Physicians or Clinics. If they do I encourage you to find a good one. The joint hypermobility syndrome is a condition that features joints that easily move beyond the normal range expected for a particular joint. The joint hypermobility syndrome is considered a benign condition. There is a far amount of information on your condition on the internet. If you goggle it you should be find it and be better informed.
According to what I have read about this condition you are more prone to sprains, dislocations, strains and fractures. Often as you mature this syndrome improves, sometimes dramatically. Apparently that is not true in your case.
There are other conditions that can be assocaited with joint hypermobility syndrome. It is thought to be a condition that runs in families. Some research is pointed towards an inherited gene that may predispose one to the development of this condition. I encourage you to consult a ortho if you have not seen one recently. Hypermobility has been associated with chronic fatigue syndrome and fibromyalgia.
I too have difficultly with many drugs, including opiates. I take just hydrocodone and therefore have had to learn to deal with pain because of my intolerance to opiates. Some days I am not very successful with it and I can understand your frustration. I have developed a routine that seems to work for me. I use a heating pad, my massage chair, and jacuzzi. I do some body positioning that seems to help sometimes. I also take a muscle relaxant to my pain medication when needed. Trial and error over a few years helped me develop these routines and unfortunately I imagine that you will have to so the same.
Please let us know how you are doing. I will look forward to hearing from you again. I wish you the best.
I HAVE BJHMS AND WITH AGE MINE HAS ONLY WORSENED! WHILE IT IS A CONSTANT STRUGGLE I DONT LET IT GET THE BEST OF ME! FOR ME IT ALSO WORSENED WITH THE BIRTH OF MY DAUGHTER! AGAIN SHE IS SOMETHING THAT MAKES MY DAYS BRIGHTER DESPITE THE CONSTANT PAIN! KEEP YOUR HEAD UP AND REMEMBER THAT THERE IS ALWAYS SUNSHINE AFTER THE STORM!!!