I want to welcome you to the Pain Management Forum and let you know that we are glad that you have joined the Forum. Please understand that there are NO Doctors on this Forum, only CP (Chronic Pain) Patients that help each other by sharing their own experiences and expertise on their different conditions and procedures.
I'm sorry for what you have been going thru with your pain in your legs. I , too, take 2000IU of Vitamin D each day. I was wondering if you have ever considered that their might be either some arthritis involved or possibly a herniated disc in your lower back?
I had the pain in my left leg to start with and that turned out to be Osteoarthritis in my left hip and I've had a hip implant back in 1981 at the age of 35 years of age. Then I suffered pain again in BOTH of my legs and that turned out to be DDD ( Degenerative Disc Disease) in my back. I've since had an RFA (Radio Frequency Ablation) where they "Kill" off the nerve endings and that last anywhere from 3mo to 18mo or SOMETIMES 24 months. Mine is still working great.
You need to go back to your Dr. and let him know that you need answers to your problems and possibly ask for a referral to a Rheumatologist. He can tell you if either one of these conditions exist for you.
I hope that you are able to get some answers and some relief to you pain. I KNOW how agonizing that pain can be!!!
Please keep us posted as to how you are getting long.....Sherry
Hello Droopy22, (Cute screen name)
Welcome to MedHelp's Pain Mangement Forum. I am so glad that you found us and took the time to share your symptoms with us. However I am sincerely sorry to hear that you have Fibro and are dealing with increased painful issues. We all know how difficult the journey is through chronic pain and how disruptive it is to our daily lives. My heart goes out to you.
I do not personally have Fibro. One of our members may have more first hand information for you that actually deal with this disease process. However like our members I too suffer with chronic pain and can empathize with you. To some degree chronic pain is chroinc pain, it's just a matter of where your pain is located that seems to differ us from one another. You're among friends.
When I have horrible leg pains and severe charlie horses like cramping like I had never experienced in my life my PCP ordered lab work to check my various vit. electrolyte and mineral levels. I know take Vit D, 50,000 U one time per week, a Calcium supplement, Vit B12 IM injections monthly and two Vitamin w/mineral supplements per day. My muscle cramping has disappeared as has the leg pain. Granted I have sciatica that nothing touches but the leg pain I was experiencing was not associated with my chronic pain.
So if you have not had a battery of lab tests to check the levels I mentioned I would encourage you to request them. Your pain may be related to the Fibro progression but in my opinion it wouldn't hurt to cover all your bases.
I assume with your diagnosis you are being monitored and treated by a rheumatologist. However if you are not than I agree with Sherry that you should request a referral to one. I good clinical evaluation with a rheumatologist may provide you with some solutions. There are other treatment options that may be available to you that he/she can discuss with you.
Please keep us posted and let us know how you are doing. I will look forward to your updates with interest. I also encourage you to become an active participate in our community. You are welcome to respond to posts and of course ask any additional questions that you my have. If you simply want to vent we are also good listeners. :)
Best of luck to you and please take care,