Hello, my son is 15 & is in the same boat as your son. He really doesn't have the blood sugar problem as yours though, he has headaches everyday & dizziness. I can start by saying that regular doctors DO NOT KNOW SQUAT about pituitary adenomas. We have been to 3 pediatric neurosurgeons (1 in state & 2 outside our state) & we got 2 different answers.
You need to find a neurosurgeon that specializes in pituitary issues. We found ours through the Pituitary Network Association http://www.pituitary.org/. You'll find all kinds of good information here. We seen Dr. Krisht at UAMC & he advised us to wait until our son finished growing to do any operations because it could mess up the pituitary gland.
My heart is with you cause I know how hard it is to finally find a doctor that knows what their talking about & it's scary because there really isn't any information about kids having this. Good luck & let me know how it turns out!
We got the report back from the MRI we just had done. It says my son has a pars intermedius cyst. It then says "potentially a pituitary microadenoma could appear similarly". I've gotten no help from our regular doctors office in interpreting what this really means. The office has told me I should make an appointment with a ped endo. I'm just trying to figure out if this is what is actually causing his problems. He eats a lot, pees a lot and drinks a lot but not consistently. His blood sugar will go up and down a lot also. I can't find a pattern for any of it. Help?