Our daughter is 2.5, and seems to have issues with her circulation. While we've been told it's rare, it certainly looks like she has Raynaud's Syndrome, as her hands and feet frequently are purple (they can get very dark), and she reacts instantly to cold. However, she also mottles frequently (daily basis, sometimes it lasts for a couple hours). The other day she was in fleece pants, fleece shirt, socks, the house was probably 65-70F, and her entire body (even her face a bit) was mottled. I checked her cap refill and it was 9 seconds on her feet, and 5-6 seconds on her sternum. Her body (trunk) was warm, but her hands and feet were cold, arms and legs cool. She's been having issues with circulation for 2 years now. She saw the ped about it almost a year ago and he didn't seem to really give it much though, just said: "Oh she has Raynaud's, and "Primary Vascular Phenomenon", she'll grow out of it." That was it. No testing, nothing.
Her history is VSD and ASD, both of which are now closed. Is this something that we should have looked into further, or is it really just something that's not a big deal and she'll grow out of it.