Our daughter had her echo repeat this past Friday (12 weeks old) and they advised that her ASD has gotten smaller, but that her VSD is still approx. 6 mm. He said it has a very strong shunt of 67mmHg, which he seemed to feel meant that the hole might be getting smaller? Is it possible the strong pressure means it's getting smaller? He did say he felt that it was next to impossible that it would ever close on it's own, as it is oval shaped and starts immediately JUST below the aortic valve (thankfully no signs of valve-involvement or problems), loops up and around and ends just above (or below?) the tricuspid valve. He was a little vague on details. Is this a serious location for a VSD, where it's so close to the valves? They are recomending OHS to repair within the next 6-8 weeks.
She is currently on Lasix, Spironolactone, Digoxin for her heart. Right now her symptoms as far as breathing, sweating etc.. are very well controlled by medications, though she's still struggling to gain weight. She had an NG feeding tube inserted due to failure to thrive, and even with the tube & 27-cal formula she only gained 20 grams in the last week. I'm wondering if we are wise to wait that long? I think they're hoping she'll hit 10 lbs first (she's still only 9 lbs).
Also, they mentioned that she's not growing well in length either, has only gained 1.25" in 12 weeks. The cardiologist thought there might be something else wrong, but for several weeks she was only eating 12-14 oz per day, so would that lack of calories not cause growth problems?