Concerned about my daughter's CBC

[llnichols1]

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My 2yr daughter runs fever every two weeks for months now she is also fatigued. If her fever is .103+ she vomits. Her
blood work showed a WBC of 25 with high sed rate,crp,and platelets. I don't
remember the exact numbers because I was stunned by her WBC. What could be wrong with her? All bacterial cultures were negative. She has swollen nodes on neck
along with swollen tonsils. Neg strep and throat culture. I do not think this is viral related. We will be see a infectious disease doctor soon but the wait is awful.

[llnichols1]

She is home now. It is most likely an infection but its the 100000th infection she has had in a few months  & she is not in day care so they are now raising their eyebrows & watching her & her blood work carefully. She cant seem to get back to herself 100% before getting sick again. They are looking into autoimmune because it runs in the family. I will update when we see the ID doctor. Thanks ladies!

[margypops]

The high white blood count does sounds like an infection also the high  inflammation..is she home now or still in the hospital ?    

[specialmom]

Are they looking into autoimmune issues as well??  Wow, a lot to deal with.  I hope that you get some answers.  Keep going and making lots of noise  so that the doctors continue to work on finding out exactly what is going on.  Keep us updated!

[llnichols1]

Back to the dr today! Blood work still weird. Her wbc is 18.5(normal is 4-11) and her ESR was 46(normal is 0-20) which shows inflammation. Platelets and crp also went up. Back on breathing treatments but now its asthma & not related to her blood work. We are being referred to an infectious disease doctor. Thanks for replying!

[margypops]

Hope there are signs of the fever going down have they any diagnosis yet, dear child so hard for you to see her like this , keep us updated .

[llnichols1]

As of now she is not much better. Sleeping alot & when she awake she is grouchy. She sweats so bad when she sleeps. Which is new. She had a 101 temp again this morning. Breathing is good though. Her poor body:(

As far as pain she is 2 and it is hard to tell. She had leg pain all night the night we went into the hospital. I assumed this was cramps since she was dehydrated.

[llnichols1]

Thanks!

As of now she is not much better. Sleeping alot & when she awake she is grouchy. She sweats so bad when she sleeps. Which is new. She had a 101 temp again this morning. Breathing is good though. Her poor body:(

As far as pain she is 2 and it is hard to tell. She had leg pain all night the night we went into the hospital. I assumed this was cramps since she was dehydrated.

[margypops]

Sorry to hear the news,you will hopefully now get some answers to her condition,l post how she is doing ..good luck my thoughts are with you .  

[specialmom]

Oh my goodness, how awful.  I so hope she is alright.  She's in good hands and they will find what is going on.  Keep us updated and I'll be thinking of you.  Hope she is better soon.

[llnichols1]

We were rehospialized! They never told us what was going on the first time. While being there caught rsv and since her immune system is already in overload rsv became the croup. She went into respiratory arrest,bp & o2 dropped. Scariest nights of my life. For now we have to keep her isolated until they know why her immune system is compromised.

[specialmom]

Oh, I forgot to mention that with the fever syndrome, sore throats are part of it.  It is one of the symptons.  good luck and hope this helps you

[margypops]

As you say in your post she has swollen nodes and tonsils it may be good to ask about them , her symptoms point to it. good luck let us know how she is doing .

[specialmom]

It seems the fever syndrome can affect anyone and you don't need an environment to create it like day care.  Check out the Cleveland Clinic article on it.  I hope that this clears up quickly for her!!  good luck

[llnichols1]

Thank you for replying. They ruled out tonsils:/
Someone else mentioned the fever syndrome too so i will look into that. She isnt in daycare or anything so i just dont see how she could be sick so much & no one else gets sick

[specialmom]

Hi, it sounds like "periodic fever syndrome".  Almost to a tee.  The Cleveland Clinic has researched this and has an article out about it.  
Here is the link:

http://my.clevelandclinic.org/disorders/periodic_fever_syndrome/rheumatology_overview.aspx

Basically, it is an issue in young children but resolves after the age of 10 by iteself.  

Sick kids are really  hard.  I feel for you dear.  good luck.  

[margypops]

It could be tonsillitis it does recur  the WBC probably  means she has an infection ,unless the doctor looked at her tonsils and ruled it out. We have noticed that many children have been sick with similar recurring infections , so possible a virus is running rampant ..hope you get your appt soon, good luck