I'm really sorry for the babies I know how you all feel... I have about the same thing except I'm not a baby... They told me I have a Hypoplastic Cisternal Segment on the right side of my head what ever that means.. All I know that my face keeps twitching and it goes numb and I get real tired afterwards. and also my head hurts like I have been out on a all night drunk... I will keep your babies in our prayers and hope they find something for them...They haven't even lived there lives yet
I wish I could help
Onica
hello,
i realy feel sorry for your daughter .even we have a similar story to tell - ,i have 6 month old son having very frequent seizers since 15 days i and my wife both are doctors .we have shown to neurologist, his on treatment but, we are not satisfactied. He continues to have similar problem.about 100s and above seizers in a day his MRI shown?CORTICAL DYSPLASIA , ?GLIOSOS(a small focal lesion in parietal area) even his EEG was abnormal . we want show him to a good pediatric neurologist. pls help us .we too stay in india, karnataka,we will be Eagarly waiting for your suggestions.