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Avatar universal

My child is always troubled walking the doctors have no clue what it is, HELP!!!

if your baby is having muscle issues or there foot turns in while walking, its a huge chance they have a really rare Disability called: Dystonia. It is a movement disorder and needs to be treated RIGHT AWAY!! i know this b/c i had it and it took years for the doctors to figure out what i had and it was too late i had it spread every part of my body and i started feeling paralyized and i still do everyday of my life i am fighting to find a cure and fighting to keep walking, Gof has kept me walking for all these years and i am 14yrs old and iwant to help those mothers who have this problem talk to your doctor right away for this condition i hope this helps you. take this test and find out about your situation. Its really hard on me i take meds every 4 hours and sometimes it does not help and they put me on more and more and more medicine but, i pray that Well find a cure and it will all be over. Thankyou:)
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973741 tn?1342342773
Hm, well.  I'm not sure what his is asking.  Dystonia is rare and that means odds are, it is not he culprit for most kids with these symptoms.  Motor planning can create a situation where a child has trouble walking (as well as other motor movements).  That is much more common.

I'm sorry that you've had this experience with dystonia.  Sounds like it is impacting your life greatly.  As a parent, rare things are . . .  well, rare.  And thinking the worse often doesn't come to fruition.  I wish you the best and hope you find relief.  
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Avatar universal
This is all true so you should be safe and see a foot doctor at Cardinal Glennon i suggest to you they are very good.
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