Aa
Aa
A
A
A
Close
Avatar universal

please help us on more info about this condition hlhs

MY HUSBAND AND I JUST FOUND OUT YESTERDAY THAT OUR UNBORN SON WAS DIAGNOSED WITH HLHS ( HYPO PLASTIC  LEFT HEART SYNDROME) HOWEVER OUR DOCTORS CONFIDENCE AND KNOWLEDGE OF IT SEEMED VERY LITTLE. HE GAVE US TWO PAPERS ABOUT THE CONDITION AND SAID ILL HAVE SOMEONE IN TOUCH WITH YOU  TO SEE IF YOU WANT TO KEEP THE BABY THIS WAS DEVASTATING TO US AND SHOCKING AT THE SAME TIME. i UNDERSTAND THE DOCTOR HAS TO DELIVER THE NEWS BUT I WOULD LIKE A SECOND OPINION IS THERE A SUGGESTED PLACE IN DENVER OTHER THEN DENVER CHILDREN'S HOSPITAL ? MY HUSBAND AND I ARE THINKING ABOUT GOING TO UCLA THEY HAVE A 90% SURVIVAL RATE ON THE SURGERIES RATHER THEN THE 60% THAT DENVER CHILDREN HOSPITAL HAD.
2 Responses
Sort by: Helpful Oldest Newest
535822 tn?1443976780
It sounds as if Boston children's hospital specialise in HLHS ....I have copied something may be of interest If a prenatal ultrasound has revealed that your baby will be born with hypoplastic left heart syndrome (HLHS)—or if your infant has been diagnosed with HLHS—an understanding of the condition will help you plan for, and cope with, this rare and complex congenital (present at birth) heart defect.

While this condition is very serious, children with HLHS can undergo therapy at Children’s Hospital Boston—shortly after birth or in some select situations, while your baby is in utero.
Helpful - 0
535822 tn?1443976780
I am very sorry I know how  concerned you are, I suggest that you get some more information and do not rely on this doctor alone .The info above does quote Boston it may be a good idea to get in touch with them ..we also have a pediatric Cardiology forum on Med Help put this question there for some further help...good Luck
Helpful - 0
Have an Answer?

You are reading content posted in the Pediatrics Community

Top Children's Health Answerers
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Fearing autism, many parents aren't vaccinating their kids. Can doctors reverse this dangerous trend?
Is a gluten-free diet right for you?
We answer your top questions about the flu vaccine.
Learn which over-the-counter medicines are safe for you and your baby
Yummy eats that will keep your child healthy and happy
Healing home remedies for common ailments