Got a couple of feeds for you Val, will send them to you in a private message.
:)
Sher
I am continually amazed that the urogyns in UK do not address rectocele, I know other women in UK who had this exact dynamic, a gastro is called in to address back compartment. In other countries urogyn addresses all 5 types. Best scenario I guess will be to find a urogyn/gasto combo as you've mentioned is done in teaching hospitals. Big concern however is WHO is doing the procedure. Please clarify prior to any surgical procedures that the gastro teacher will be doing procedure, not the student. This is an extremely intricate area, it truly takes an expert to get it right. Student drs need to learn somehow but I feel if we are going to be worked on by students, we at least have the right to meet them, ask them questions, and find out how qualified they are. Again speaking to a PT may give you a direction, I'm so hopeful my contact will come up with a name to share with you. I'll let you know as soon as she does Val.
Sher
Ok Sherrie
Am thinking London or Oxford right now.
I haven't found any urogyn's who also deal with bowel but some do work with bowel consultant teams especially in the teaching hospitals.
Some of the urogyn's in the teaching hospitals do not state that they do pelvic prolapse operations though ( they say a lot about urinary and gynae but nothing about prolapse ) but I have found one that states they do pelvic reconstruction. It is over an hours drive from me or the same by train for the other ones but I feel I need to find the right consultant.
It is a bit worrying your friend isnt finding anyone but if they find any information I would be grateful.
Thank you
Val
Hi Val,
I'm sorry I can't get any definitive info for you, seems pelvic floor health practitioners in that area are scarce. Contact your local hospital and ask for the women's health clinic, once you get them on the hook see if they have any recommendations for a women's PT or a urogyn. I'm hopeful they'll have a recommendation for you. My friend is still looking but so far dead ends.
Sher
I am seeing my GP today Sher with my consultants letter.
Please let me know when you hear.
Many thanks
Val
I'll give a shout as soon as I hear from my connection!
Hang in there Val.
Sher
It seems the urogynea I saw doesnt know about the bowel side though.
When I told him about the pains in my back, lower abdomen, pressure on bladder as well as the lump into my virgina from my bladder side, cystitis feelings and bloating etc he said that I needed to see a bowel Dr and that the bowel wasnt his area. Pains in back etc etc get bad when standing or walking round.
Sorry if I am repeating myself. It is going round and round in my head.
It would wonderful if you could find me a recommended Urogynea that does all for me to see. I live in hope. I could go as far as London but as I am on my own the nearer the better to where I live. I am prepared to do what I have to to find the right Dr Sherrie.
Thank you again for helping me.
Val
Hi Val,
So infuriating that a dr would laugh at questions about prolapse-you truly need to find a different GP for general needs beyond POP. It is a urogyn you should see; this is the specialist for all pelvic floor disorders. Down siede is there aren't many of them in the UK. I have my source (who lives in Belgium but is from the UK) digging for recommendations for you. May take a few days. We talked about her finding a good physiotherapist if she can't locate a reputable urogyn in your area; often the PTs know who the good drs are in their area.
Hang in there a bit longer.
Sher
Thank you Sherrie
The consultant I say was a urogyn but as you say he doesnt feel like he knows enough. I would very much like to know the right consultant to see on all 5 prolapse fronts and thank you very much for your reply.
I am due to go back to my GP tomorrow and am very worried as to how to approach this as I cannot even give a name of a Dr I would like to see and my GP just laughed when I spoke about Small bowel prolapse etc
I look forward to your answer and still feel very scared.
Val
You absolutely need to find a different urogyn, I've heard too many disturbing stories regarding women treated by bowel drs in UK. That your GP has never heard of an enterocele is a flag; that your urogyn wants to refer you to a bowel dr is a flag as well. In general POP should not be addressed by a PCP or gyn, should be a urogyn and a good urogyn can address all 5 types of POP. Difficulty urinating indicates a more advanced POP scenario.
Please optimize thyroid levels, low thyroid by itself can cause constipation which will not help the POP related constipation if you have a rectocele.
I'm going to shoot an email to a connect of mine who is from the UK to see if she can recommend a urogyn in your area. Hang in there a bit, I'll get back to you as soon as I hear. Also I'm going to have this post transferred to the Pelvic Organ Prolapse Forum.
Sher