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Is it possible to have PCOS and Endometriosis?

So I already know that I have PCOS, but my mom and grandma both had severe endo! I have researched both conditions, but PCOS never talks about chronic pain before,during and after menstruating, and pain during and after intercourse. My bowels are very messed up and I get really bad pain in my rectum. That is where my mom had a lot of it. I have no idea. None of my docs will do laparascopy. I have only had one U/S and a very long sharp vaginal probe, I forget what that is called. My blood clots are gigantic and never ending. I need some input from you intelligent ladies!!! I have been on the pill for 8 days now and can feel my cysts filling and popping! So much relief afterwards though.

Bethany
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Avatar universal
Sorry if this sent twice. I was just wondering how old you were when you started gaining weight due to PCOS, and if it happened suddenly. I have always had symptoms assumed to be endo. I am slim and have never had a problem with excessive hair or weight gain. I am 31. I am just wondering if it is possible that I am developing PCOS. I haven't had a period in 54 days and my longest cycle in the past was 44.
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Avatar universal
How old were you when this happened? Were you normal weight beforehand? Did the weight gain happen suddenly?
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Avatar universal
I have always suffered from bad periods, abdominal pain, constipation, diarrhea since I was a teenager. I didn't lose my virginity til 20 but every time I had intercourse was always uncomfortable but it got worse over the years. I was on birth control since 20 but always got regular periods. I am now 25. It wasn't until 7 months ago when I stopped getting my period that I realized something was wrong since I wasn't pregnant and couldn't get pregnant. I was just diagnosed with both PCOS and endometriosis this past month and I will have surgery in two weeks. If you have problems with your bladder aka frequent urination or lots of UTI you can also have Interciatial Cystitis. I have a combination of all three. So yes, it is very possible and probable that you have both conditions. Demand a laparoscopy from your doctor! Thank god I have one of the best gynourologist in the country. Only took her two visits.
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Avatar universal
I was diagnosed with both in the summer of 2011 when I was about to be a junior in high school. I had surgery in December of that year and have been on Depo Provera ever since.
I recently found out that while my PCOS and endo are hereditary, PCOS are caused by Insulin Resistance!
This means that I don't synthesize glucose properly and then the pancrase has to produce more insulin to keep the glucose levels down in the blood. This can cause Type 2 diabetes, heart attacks, strokes, and is responsible for 80% of PCOS in women who have the been diagnosed with it. It can also cause Uterine cancer.
Women who have and treat Insulin resistance nearly double their chances of pregnancy and reduces infertility and miscarriages by half. So find out what causes your PCOS and treat that.
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Avatar universal
I have both. Ultrasound/MRI diagnosed with PCOS. Three years later, robotic laporoscopy diagnosed endo. Pain in the rear, trying to balance the hormones. I have been on 6 different birth controls in the last year.
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Avatar universal
My PCP believed I had PCOS and then I went to an OBGYN that he recommended for further test and for a large cyst I had for 7 months. She just removed my cyst, and after trying to do so laparoscopic she ended up doing a laparotomy and found one of the worst cases of endometriosis she ever saw. So on top of pcos and endo, my husband has a blockage so we need to try IVF rather soon if we want to have a baby before she removes everything. It will be high risk, my left ovary is completely covered, my right is being pulled down, my uterus is fused to my colon. So I'm afraid I will be having a few more extensive surgeries in the near future.
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Avatar universal
I was diagnosed with pcos years ago and during a laparoscopy two days ago was told there was endemitriosis which they treated. So you can have both. When I looked at symptoms on endemitriosis I can now relate that to when I was 10 and my periods started, they were extremely  heavy and painful with clotting and came close to blood transfusion. However since I was put in the contraceptive pill I would not say I have had any of these symptoms so would not have known since that endometriosis could be an issue.
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Avatar universal
Yes, I had the same symptom early in my teens of very heavy periods painful period, pain so bad that I could not stand going over bumps while seated in a car.  Still have those awful symptoms when I go off of the hormone Agystin (norethindrone)  Its a progestin and without that I can't go to work or get out of bed for that fact.  I was diagnosed with PCOS at 19 and endometriosis around 25.  I think I had it at 19 but the doctors told me all I needed to do was to be on birth control pills.  Birth control pills never worked for me they just made my migraines worsts.  I am going to be 40 in  about 3 months and I am still fighting with back pain and pelvic pain regardless of the fact that I on chemical menopause.  It is a tough road I can't lie. I feel cursed. I take a lot of medication just to function: agystin to stop the menstrual cycle, Inderal and Pamelor to keep migraines away and Imitrex if I do have a migraine, percocet, neurontin and a fentanyl patch for pain because I was taking pain medication around the clock. the pelvic and back pain now are the worst because some thing is inflaming my sciatic nerve.  I write all of this so that anyone who is also suffering at this level knows they are not alone it is possible to have that many problems. I hate it everyday that I never had the opportunity to have children.  This problem or these problem have ruin my life.  I wish I could be pain free for just 1 year so I can learn what it is like not to wake up in pain or discomfort every morning.  
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Avatar universal
I am 25 years old and was diagnosed with endo at 17. I had 2 laps in 8 months. Only recently the pain is slowly making it's way back into my life.the laps caused a hormone change because I was so young. now I am growing hair, thick black hair, everywhere! A little research led me to pcos. I don't have insurance, but I strongly believe that when I can see a Dr I will be diagnosed with pcos. I to have unbelievable periods mixed with months of no periods.for those months I am blessed with menopause type symptoms.I'm sure it is possible to have both pcos and endo.
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Avatar universal
I agree with you. ive been to see many different doctors and they all tell me that my options are a hysterectomy or early menopause
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Avatar universal
i have pcos and endometriosis it causes so much pain and many problems the docs have said to take birth control and for me it makes it worse any one have any ideas
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Avatar universal
I have both pcos and endo i was diagnoses 8yrs ago and have had many hormone treatments even been put through artificial menopause to try relieve some of the symptoms but no joy! I have also had keyhole and laser surgery to try remove some of the endo but its still getting worse i am now waiting for a op to remove the worst of it but as its so servere it will be like a partial hysterectoramy :( which if its unsucessful at controlling the endo i will need a full hysterectoramy!!! I have been struggling with this and have only been getting any help from doctors by keeping record of periods etc and constantly goin back. But there are many options for you before it gets to this stage its just that my endo is so servere and they cant control mu bleeding which is wat makes it worse and im practically riddled with it that i have no other options im only 23 and suggest that you get the doctors to help you sooner rather than later as once it gets to this point there is only a few options left to help you. I hope you find out soon. ASK for prostap injections and levonelle with it as its one of the most helpfull thing also the coil can provide relief hope this helps.
Mel
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Avatar universal
Hi all,

I was also diagnosed with few cysts in ovaries 8 months back. My doctor has advised me to take medicine named Crisanta which is a oral contraceptive pill. my periods have become regular but now i m facing another problem that on 3rd day i dont get much blood as it is on 1 and 2 day. Just have fear that that ocp do harm our body i.e. liver and kidney. Can anyone help me.
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Avatar universal
YES YOU CAN HAVE BOTH I HAVE BOTH AND I WAS  DIAGNOSED IN 2008 IN THE MIDDLE OF 2009 I CHANGED MY DIET AND LOST 30 POUNDS AND AT THE BEGINNING OF 2010 I WAS PREGANAT I HAD MY BABY IN SEP 2010  SHE WAS A VERY HEALTHY  BABY 8 POUNDS 150Z SO IT IS POSSIBLE TO HAVE A CHILD BEC I WAS TOLD THAT I WOULD NOT HAVE A BABY AND I AM PAIN FREE UNTIL THIS DAY THANKS TO THE FATHER BEC IT IS VERY PAINFUL AND I WAS GLAD WHEN I FIND A GREAT DR TO HELP ME BEC THE OTHER DR'S GAVE ME THE RUN AROUND AND I HAD THE WENT THREW 3 DR'S THAT COULD  NOT HELP ME SAYING THEY DIDN'T KNOW WHAT WAS WRONG  AND I PRAY TO THE FATHER THAT IT DOES NOT COME BACK AND I AM 26 YRS OLD NOW SO I WISH ALL OF YALL GOOD LUCK BEC ITS NO JOKE GOD BLESS YALL ALL :)
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Avatar universal
I do, was diagnosed in 2006.
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Avatar universal
I have been diagnosed with both polycyctic and endo. It's hell hope and pray you don't have both.
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1838882 tn?1318485936
oh no]=

I hope that you are able to get preganant!!!!

I am worried now!!

I hope I can have babies]=
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1838882 tn?1318485936
hey!

I am 20 and have been disgnosed with PCOS.
I too have great pain in my rectum and problems with my bowels (which is always being associated with irritable bowel syndrome)

I have suspected that I have endo too since I was diagnosed with PCOS,simply because of the pain,the clotting during my menstrual cycle and the pains i get in my lower pelvic region,bowels and rectum.

I have just started seeing a specialist and she seems to think my self diagnosis is correct,but still isn't being much help.
I go in again to see her next week so I'm hoping I can push for a laparoscopy as I want to find out once and for all and get it treated as my partner and I want to have babies asap.

I understand your suffering sweetheart!

--Jess
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1797929 tn?1315679221
I am currently 27 almost 28 in two months, I was finally diagnosed after two people in my family urged me to see more doctors to get help in 2009. I have had trouble trying to find a doc that cares and listens to me at all! Most tell me that my horrible and excruciating pain during bm's and periods and ovulation is normal and fine. We all know our bodies, not to mention I have a huge pain threshhold I have been told by many docs, anyways before I was diagnosed I was a severr dieter and had bulimia and anorexia off and on throught my life, which is very bad but helped keep my weight in check, that i suffered with throughout my life. At 150 lbs at age 20 I became pregnant and had my first child, ten months after he was born, my daughter was born. I have been told that was a miracle nad that you are more fertile right after you have a baby. Anyways, I was then diagnosed with a alight uterine prolapse and the pain worsenend, as did the weight gain up to 205, I am 5'8" so alot of people just thought I looked chubby. But it wasnt until my sister and my cousin were diagnosed that I sought a military doc through our insurance(hubby is army) that was also an endocrinologist. Doctors had always tested only my thyroid and told me levels were ok, he tested testosterone and prolactin and both were way too high. He put me on metformin, but we moved and got out of the military before I could be adjusted on the meds and b/c and hav continued insurance to watch it. So it is now 2011 and I am still trying to find a doc, that will help me deal with my Huge blood clots, cysts, retched pain (especially during intercourse at times) and other symptoms(I am still on only 500mg of metformin a day) cause I dont have insurance and many docs will not up it and think im "fine" I swaIR, i dont know what i have to do to reinerate to these so called care practitioners that i am and have been in serious pain for all my life and want thsi to change. I did however drop fropm 205 last year to 145 before I surprisingly became pregnant(obviously through diet and major excercise and herbal changes)! The doctors were all surprised as was I (my two kids are 5 and 6) . I am now 5 months pregnanat and dealing with the pain again, i am up to 174 already wich is alot of wait too fast and tha is partly due to the fact my appetite just wants carbs and naughty things and so I have laxed on my diet for PCOS. I was denied insurance for being on metformin and cannot afford anythingt else so now I am sol, but after thsi baby is born, I am going to find a damn endo and see about the ENDOMETRIOSIS/( that also runs in my family and looking at the symptoms does fit my other issues.) thanks ladies and know that you can have life after being diagnosed and can have children, my sis after much trying and weight loss also got pregnant at age 29! There is hope sisters, lets shrug off the bad docs and trust our bodies that are talking to us!!!
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Avatar universal
I have severe Endo AND PCOS... Have been fighting them for yrs. Trust me. Its possible. I am 27 just got done with lupron on Jan 19 and started my first period on April 16. I may never naturally conceive without clomid,and may need to go as far as ivf. I will keep u all n my prayers. God bless. If anyone needs to talk or needs info at all, feel free to contact me.***@****
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1661741 tn?1304764999
Iv also been trying to get pregnant for over a year and it is getting depressing now!
We've just found out I have PCOS and maybe Endometriosis, Iv just got my date through for my laproscopy for 7th july. Really weried i might not be abil to have kids depressed over it all and making me argue with my partner alot because of i all ARGHHHHH :(

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1552719 tn?1294869225
I've been trying to get pregnant for over a year.
We've just found out I have PCOS and Endometriosis. I just had my laproscopy Dec 15th, 2010. It's pretty bad and the scar tissue has attached to my lower intestines. I get awful pains in my bowels. This has been going on with me since 7th grade, I'm now 22. This has been misdiagnosed that long. First I was diagnosed lactose intolerant, and then with IBS and I also had an ovarian cyst that I was told would just go away. I guess it didn't register with any doctors until I couldn't get pregnant and no fertility drugs were helping. I sure wish it would have been caught sooner, maybe it would't be this bad. 8 or 9 years is a long time to let endo build up. The pain is horrendous and sometimes unbearable. I always knew it was something more than IBS. I know people who have IBS and I never saw them in the kind of pain that I had.

As far as having children, I know that it can take years. I go back to see my Dr in 2 days to find out what the plan is so my husband and I can decide what is best for our lives. I wish you all the best. Support is definitely something needed when dealing with endo and PCOS.
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Avatar universal
I have Endo and PCOS- was diagnosed with PCOS in 2002, was told I could not have children.... I do not get cysts, still have a regular period but I do not ovulate.  Changed Drs, he did a lap and found I had Endo also.  Cleaned me out, gave me chlomid and I had my son in 2005.  Had another Lap in 2008, another round of chlomid, had twin girls in 2009.  Since I am done having children, my dr & i decided on doing a laproscopic partial hysterectomy.  This should (but not necessarily means it will) make the Endo go away.  Having this done in two weeks
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Avatar universal
hey i dont know if this is much help to you but you can have both endo and PCOS at the same time, i suffer from both and have be diagnosed and both can be very painful, my lower right abdominal is always in intense pain especially around the menstrual cycle

take care!
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