Duodenal Atresia

[vidyakonda]

My wife is 27 years old and she is 29 weeks pregnant. This eveving when scanning was done, it was found that the baby had duodenal Atresia, we are planning for extensive tests for further compications. Now, Iam not able to understand what to do. Please advise me what can be done at this stage.

[vcsmyers]

I know this is from two years ago, and I hope that your child is doing better.  I just wanted to give you some uplifting news from someone with an older child with DA. My daughter is now 16.  She was born with DA and malrotation and had corrective surgery 12 hours after birth.  She did fine for 11, almost 12 years but then did have to have another surgery due to adhesions.  She had a bad time in the hospital but after three weeks, was home and doing fine.  That was more than 4 years ago and she is a beautiful teenager living a normal life (we do watch her bread comsumption because this seems to cause her some problems).  I really hope this gives you inspiration and helps you look forward to good times in the future.

[Dawn77Jett]

I would love to hear from you:) grandson spent 21 days in NICU came home for 5 days and now back in hopital with throwing up complications:( how is your son now? Would love to hear some encouraging feedback:)

Ty
Rhonda

[3boys2girls]

I am currently going through a very similar situation with my almost 1 yr old he was born with 11 small bowel atresia surgery 6 hours old and another surgery at 8 weeks old and for the past 3 weeks he has been having large yellow vomits and we had a green one last week and went to the hospital only to be told he was improving and they were not sure what was causing all the vomiting. It's very scary not knowing and not being able to help your baby. If you would like to talk more I will answer anything I can. Good luck.

[Aron9]

I came across your comment while I was desperately searching for adhesion after duedonal atresia surgery. My son had DA surgery when he was only 1 day old and had stayed in NICU for 2 wks. Operetion was successfull and we spent a wonderful 1 month together at home. He had some yellow colored vomiting issues but the amounts were not large and he was gaining good weight and I was even only breastfeeding him. We were told he had reflux and used some med. to treat this. When he was 1.5 months old, one night he suddenly refused feeding and vomited very large amounts with bile and we immediately tok him to hospital wlere they took a film of the intestine which showed adhesions at several locations. The reason of this was scar tissues from the DA surgery. They tried everything within 2 days to handle adhesion without a new surgery but the condition of our angel was worsening so he had another surgery for the adhesions. 6 weeks baby with 2 opeartions, it is really so devastating and I am deadly scared if this will happen again as each surgery brings risk of adhesions. I really need some advice and support of people who have gone through similar issues, pls help! I am so worried for my little angel..

[BethG2]

i had Duodenal Atresia when i was born and had surgery when i was under 1 day old, i had pain at age 7 and now at age 14 as well but do you know if twisting of the bowl is common in people with this and do you think i could be likely to have this when im older too?

[jakoky]

hi there, my little miracle girl will be turning 13 in 2 weeks...they told us at 20 weeks she had something "wrong" with her bowel....they named the possibilities of downs and cystic fibrosis..the next 13 weeks were emotionally hard...at 33 weeks, her bowel was close to bursting and my labour was induced...she was born at huge 5 lbs 11 oz but very sick...not only was her bowel and stomach not connected, she had 3-4 atresias throughout and a web(layer of skin) at the bottom of her small bowel...she had to undergo 3 major surgeries in her first 4 weeks, in which they removed 1/3 of her stomach, joined the tummy and bowel, repaired all the atresias, plus removed the web...they also removed an area of bowel that became infected with e-coli...she battled all of this plus many preemie issues, and through prayer and the amazing docs at vancouvers childrens hospital, we brought her home well on her due date...she turns 13 soon, and is the picture of health..she has her many scars to remind us of her battles, and does have some stomach aches, but she is perfectly healthy...i wish u well..

[Leeniesul]

My son was born with duodenal atresia. He also was born with tracheoesophageal atresia and esophageal atresia and a hypoplastic aorta with coarctation. Despite all this he is the cutest sweetest child ever! He is the most amazing boy in the world! (Ok, not biased :)

It is scary not knowing what is to come for your child with surgeries etc. But with today's medicine they do amazing work. My son had open heart surgery when he weighed 3lb 15 oz. -talk about tiny.

Duodenal atresia doesn't mean that there will be any other issues  but the doctors have a responsibility to tell you all of the possibilities- even though it makes for a very scary pregnancy.

Feel free to get in touch and ask any questions you might have. (you can also chek out our blog page for info and photos of my son www.thedremanns.blogspot.com

[jenstam]

Please message me and I can give you info.

[Jen159]

Hi, my sister is 20 weeks pregnant and undergoing addition tests because they suspect duodenal atresia. As i'm sure you know the feeling, we are very nervous and confused. we have never heard of this and now the doctors are telling us all the percentages of the baby having Downs Syndrome and other complications. She has to go for her amnio tomorrow but any information you can provide me would be such a help.

[jenstam]

I bet the rib pain and feeling that you're going to POP is excruciating right now! I went through this and I sincerely feel for you!! I sent you a PM in response to yours. Let me know if you have any specific questions. GOOD LUCK and you are all in my thoughts and prayers!!

[megnryan]

I am currently almost 34 weeks and my baby was just diagnosed with duodenal atresia and I am also suffering from uncomfortable polyhydramnious. The doctor we met with last night talked to us about the increased risk for Down's Syndrome with this condition as well as other complications (e.g. tracheal atresia) and needless to say, my husband and I are very scared and devastated to learn this. I was relieved to find this forum and wondered if tomwit and jenshim are able to share any other news/advice to us as we wait nervously for the day I go into labor. Were you given statistics or what your chances for coexisting conditions like Down's were? Any words of comfort would be greatly appreciated. Thank you.
meg

[jenstam]

My son had the same problem with an intestinal atresia and my water broke 5 1/2 weeks early as a result. However, we did not know about it before he was born. He had surgery, weighed 5 lbs 7 oz and spent 3 weeks in the NICU. He is a lovely, healthy baby now, at nearly 4 months old. I would love to share experiences with you. Message me here on this site and we can chat if you would like. You would have to create a profile.

[tomwit]

My wife and I were told that our baby was suffering from dueodenal atresia at 36 weeks.  My wife suffer from polyhydramnimois as a result. Her next week of the pregnancy was filled with fear and uncomfortable situations. She was induced at 37 weeks and little Isabel was born (5 lb 8 oz) She had her surgery and spent 2 weeks in NICU before she came home to us. We heard all the horror stories about multiple complications but it does not need to happen to you. You may be fotunate. We are happy and healthy and expect nothing but the best. If you are a soon-to-be parent with this condition and want to know anything about it please e-mail me at ***@****.

Tom

[motherpeg]

how long after episodes with abdominal pain did you have to have surgery for the 30cm section that died.  Did it have anything to do with scar tissue.  Any problems after this.

[lclee]

Thanks for explaining duodenal atresia.  I know that duodenal stenosis is partial blockage and is also fixed soon after birth.  Do you know if these both conditions result in scar tissue forming?

[N1]

I was born in 1972 with duodenal atresia.  I was treated with surgery within 3 days of birth. I had no major problems (but was admitted to hospital with abdominal pains at ages 7 and 14) until age 21. Adhesions from the scar tissue from the original surgery caused the intestines to twist and a 30cm section 'died'. This section was removed and I recovered quite quickly.  Overall this condition has not effected my quality of life to any great extent.

I thought you might like to know that this condition was fairly easily managed in my case.

Good Luck.

[Still_AndiJ]

I went looking around the internet and found a really great website for you to check out. It has a lot of information.

http://www.1uphealth.com/health/duodenal_atresia_info.html

Basically what it says is that the duodenum (upper portion of the small intestine that connects to the stomach) is either partially blocked or stenosed (narrowed). From what I have read, it appears they can do surgery to correct it.

The good news is that they know about it and can take steps to fix it right away. My prayers are with your family, take care of each other and if you ever need and ear to bend, we are all here for you.


God Bless,

Andrea

[Lisadengel]

Unfortunately, I don't know what that is...I am sorry.  So I definitely can't tell you what to expect.  But I wanted to tell you that I hope everything works out okay.

Lisa