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Hypoplastic left heart syndrome

I am 24 weeks pregnant, yesterday I had an ultrasound done to make sure the baby is growing healthy and he has all his body parts etc. At first the appointment was going great baby Ethan was very squirmy and kicking the little camera thing they use. He has all his fingers and toes and arms and legs  . everything was good until the doctor came in to look for himself... He said we have a serious problem,the left side of the heart is not developed right this baby is going to have serious problems when he is born
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Avatar universal
It does inspire me to hear other families have gone through it, yesterday I was just a ball of tears and helpless feeling useless but I know I am not the only one and I must be strong for my little angel.. I thank you ladies for your prayers and support. Although it is painful  no mother wants to see her child tied to tubes etc. But I have great faith the Lord will hear all of our prayers! God bless you all as well
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He had his main arteries switched he had surgery on the 3rd day he was born.
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My son has something very similar dnt give up technology these days are incredible my son is now 6 almost 7 and is very healthy my need another surgery but not sure the surgery he for hasn't been around more than 20 yrs. It's hard but it will be all worth it.. !
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Avatar universal
I'm so sorry to hear what you're enduring but know that this diagnosis doesn't have to be final because God still is in the business of miracles and proving that doctors don't always have the final say....baby still has more time to develop so just pray and anticipate a miracle. Congrats on your baby...his purpose is still great and you all will prevail and  have a testimony to give others hope as well. Hang in there and think positive. ..I can only imagine how hard this is but know that I will be one of the many strangers praying for great strength and health for you and your lil one. Best wishes.
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Avatar universal
Look up Bowens Heart: bowensheart.com

He was the little baby boy of one of my favorite singers born with HLHS. Maybe their story can inspire you. He's 4 years old now!

I'm so sorry for the pain you feel. Reach out and get support.  Don't go it alone. I'm praying for you and your family in Jesus name.
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Avatar universal
I don't know how to explain what I am feeling I am devastated I can't stop crying I'm in heart brake while my baby actually has a broken heart... I just think about the surgeries hes going to have to go through right after he is born and the big scar in his chest he's going to have to grow up with...
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