Aa
A
A
A
Close
Pregnancy Community
72.4k Members
Avatar universal

Doctors say my baby isnt going to live :(

I found out that I was having a baby girl. I also found out that she has Trisomy 13. :( Doctors are telling me that my daughter isn't going live to be a year old. Btw this is my first pregnancy. Anyone else have or had this happen before? Did your baby make it to a year old? What should I do?

28 Responses
Avatar universal
Oh my gosh... that is not something a mother to be wants to hear... I will send prayers your way. How were they able to find that?
Avatar universal
Hi love, there is a post on here titled Scripture Prayer for Healthy Delivery. Idk your religious background, but you should read that prayer every night aloud. Trust in the Lord
Avatar universal
Pregnancy
Avatar universal
I don't know what Trisomy 13 is but my husband's step brother was born with a hole in his heart and the Drs pretry much guaranteed that he was not going to live and now he is like 19 or something. Still living. Sorry I don't know anything about Trisomy 13 but my point is that miracles happen.
Avatar universal
They found out through my blood work I had done @ 12 weeks. I think its a panorama test? It also tells you the gender. So the day I found out I was having a girl I also found out she had trisomy 13 :/. Good news bad news thing. The worst part is this happens to 1/16,000 women and usually women over 40. Im 20. Just my luck right? First pregnancy and they say she isnt going to live. :/

@jasmine. I am a Christian. And I definitely believe that God doesn't give people more than they can handle even when it feels like we can't. I trust god. As much as this is painful and I wish this wasnt happening. I know god has a reason for this even if I dont understand it. :/ all I can do is have faith and trust in him.
Avatar universal
Trisomy 13 is an extra t13 chromosome which is incompatible with life. Its not the same as down syndrome its more severe than that. The doctors say there is a possibility that she can live inside me. But there is a 80% chance ill misscarry once she gets older and the chromosome starts really affecting her. And that if I do deliever most likely she will only live for a few hours. If even that. Most likely I wont get to take her home.
Avatar universal
http://trisomy.org/what-should-we-do-now-necessary-information-after-a-diagnosis-of-trisomy-18-or-trisomy-13/
Avatar universal
Just pray hun! I will pray for you and your baby. God bless an I really hope the lord heals your baby girl <3
Avatar universal
No matter how it goes I think the best advice I can give is to cherish every moment you have with your baby girl ♡ and don't stress momma! Everything will be okay.
Avatar universal
I think maybe that website will help you
Avatar universal
http://whatsortsofpeople.wordpress.com/2009/01/25/living-with-trisomy-13-stereotype-propagation-and-the-illision-of-choice/
Avatar universal
Im sorry hun :(
Avatar universal
I have done my share of research on trisomy 13 patients and some do live to be older. Just have faith, have faith in God and yourself. Remember God will never give you what you cant handle. And if your baby girl doesnt make it she was put here for a reason, to impact people. Whether her life be short or long. Celebrate your gift with each day that passes. God bless you and your family. I am truly sorry that you have to go through this.
Avatar universal
I'm sorry you had to find that out:( my nephew was born with a heart defect n was diagnosed with digeogre syndrome it's when they are missing chromosome 22q..they didn't see any of the heart problems in the ultrasound if they would not found it after birth he would of any made it 2 days he had open heart at 4 days old he is going to be 7 months on Wednesday...it has been a hard road for him n my family but just say positive your baby is a blessing
Avatar universal
I too just found out on Thursday that my baby might also have a heart defect but won't knoe till born when he has an echo..we just have to stay positive n leave it in God's hands that everything will be ok
Avatar universal
Okay I follow idk how many fb pages for children and babies with t13 and t18 no they dont all make it always but dont let the dr put it in you head that the babybwont thrive yes she will have more health problems then usual and no its not going to be easy but dont listen to ignorance she needs a fighting chamce do you have a fb page if so I will tell you some pages to look up and you can read these kids and babies stories with t 13
Avatar universal
I have been looking at this and what it is you will be pleased to know I'm 22 having my 2nd baby n I had this I had the ambilical hernier as there are lost of different types of it and I'm fit and we'll now after my op to sort my stomach out
Avatar universal
Here are some pages all thriving some t18 which is similar to t 13 but also t 13 ...m The in dee structable delaney......is one page kaylis Krusade...prayers for vanessa..Team kylie T-13 princess ...chasidey jean villalobos.. alfiesnjourney ... Arayas story of compatability with life look thesebup please before you get to upset
Avatar universal
Speak over ur baby in Jesus name she won't have it! There is power in words! Don't let the docs write that baby off a death sentence! Jesus could use her to show them a real miracle and wake them up!
Avatar universal
So Sorry To Hear This Hun. Doctors Dnt Know Everything In The End God Has The Final Say. Sending Out Prayers For You And Your Baby Girl.
7673423 tn?1400599131
Please please check out prayers for Corbin on fb. It's a wonderful page about a mom who fought very hard to keep her son alive as long as possible with trisomy 13.  It can teach you alot at a more personal level. I'm very sorry. Sending good vibes your way
Avatar universal
No matter what the doctor says God has the final say so! Keep faith and stay positive u never know what will happen but don't add extra stress on the baby she needs to be given a chance before given up on (not saying u are but the doctors clearly are) doctors aren't always right....but God is always in your corner!!! Pray everything goes good for you mommas
7122105 tn?1407103099
Pray! God hears his children's cries. There is power in the name of Jesus! So cry out to Him. He does miracles every single day. You are worthy of his grace. Pray and have faith! ♥
4503521 tn?1400858886
Amen ladies great words of encouragement.  We all believe in the power of prayer and prayer changes things. Right now in the name of jesus I pray that God will move and provide everything your child needs. I plead the blood of jesus over you and your child. Trust me honey god can do the impossible I had ny daughter at 25 weeks born at 1lb 7 ounces.  Now she is 13 months.  The same god who brought her out is the same god who is going to see you thru. There is a saying that says if God brought you to it he will bring you thru it.  Keep the faith and remember god is in control of all things and he has the last say so.
Have an Answer?
Top Pregnancy Answerers
13167 tn?1327194124
Austin, TX
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Get information and tips on how to help you choose the right place to deliver your baby.
Get the facts on how twins and multiples are formed and your chance of carrying more than one baby at a time.
Learn about the risks and benefits of circumcision.
What to expect during the first hours after delivery.
Learn about early screening and test options for your pregnancy.
Learn about testing and treatment for GBS bacterium.