Aa
Just Venting
I am 30 weeks today and when I was about 18 weeks I found out my baby has Trisomy 18, also know as Edwards Syndrome. My baby is considered "incompatible with life" and is unlikely to make it to birth and even if she does she has less than 10% of surviving past her first birthday. Most babies die a few hours after they're born. I guess I'm just sad and nervous. I mean I feel hopeful and we've made it this far so I want to think positive but then again I want to be realistic and be prepared for the worst. I don't know what to feel anymore!
Im so sorry for the thngs you are goin through....im a ftm & I dnt even thnk I wuld hve the nerves or be able 2 tlk abt it but God doesnt put mre on you than you can bare : ) Praying for you, your unborn, & family.
Anytime hun, I believe women need other women!! Who else could more closely relate to what you're going through?!?! Friend me, I want to know what life will bring you and your family during this time. And of course if there's anything I can do...even if you just need to vent. My ears are here for you.
Stay positive. I had a pregnancy 5 years ago and at the 18 week ultrasound found out my baby had a severe omphaloseal and had died. His organs and heart were all outside his body and his brain did not develop properly. I had to be induced and give birth at 19w5d. It was labelled a miscarriage and not a stillbirth because it was less than 20weeks. But sometimes things are not meant to be. If it weren't for this experience I would not have my beautiful perfect daughter who'll be turning 4 soon. No matter what happens you'll make it through... it will be very hard. But everything happens for a reason and god does not give you more than you can handle.
She is my third. I am trying to stay positive and keep the hope alive. I have faith it will all turn out okay and I know GOD wouldn't send anything my way if I couldn't handle it. Thank you all for your kind words.
Charly... That is a rock and a hard spot. My heart breaks for you to even have to endure pregnancy with this on your heart, heck pregnancy its self is a hard enough time. Is this your first?!? Idk what to say, no ones words can really make this easier on you or better for your daughter... Whatever your religious preference is, know that many of us will be praying for you and your family. All you can do hun is do your very best with what you've got. Life deals us some pretty shity hands sometimes for reasons we'll possibly never know. But I do know that nothing in life just happens. Your daughter was conceived and lives in you for a reason. In my experience in loosing ppl close to me, I always wish I had more time to enjoy their company, EMBRACE the time you are with your daughter. Count every kick on Sundays, or everytime she gets the hickups. Make a recording or her heartbeat and keep it all together in her baby book. Have a celebration gathering to celebrate the live inside of you NOW... and like any of us moms, deal with tomorrow - TOMORROW. There's nothing unrealistic about that. <3 (HUGS)
Don't loss hope. God is more powerful they told me that i was not going to make it to the 1st month. But God has the last word now I'm 4 months & i have faith my babe is going to be here with me in April. They also told my sister that my niece was going to come with down syndrome & now she's 1 year and healthy. Have faith.
I couldn't imagine going through this. I would have lost it by now. I'm praying for you, your baby, and your family.
Omg im so srry i will keep u and ur baby gurl in my prayers i wish u da best! Like da other post said test are nt 100% accurate; stay positive dat ur baby will b fine and survive.
Thank you for the kind words. They gave me an amnio after my blood test came back positive for a chromosome disorder. The amnio test confirmed it. They says its almost 100% positive. But you are right. Tests and doctors can be wrong. But we do know that she has major heart problems, they did extensive fetal echo tests (heart ultrasounds) and they told me her heart has major problems along with other issues like a cleft palate, cysts in her brain etc...
Im ssoo sorry youre going thru this! I couldnt imagine! But isnt that from the results of a blood test and how accurate is the result really? Dont give up just yet because doctors and tests can be wrong! I hope and pray everything turns out better than what youre being told!! You will be in my thoughts and prayers!!
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