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1926656 tn?1334970201

O my....

So I've been emailing back and forth to a patient education liaison about my whole HHT(my hereditary disease), what my specialist says he has researched, and what is true.  She works for the HHT international foundation.  This is all she does is work with thousands of people with HHT, doctors that only research/treat HHT, and she herself knows pretty much all there is to the disease itself.  And she is dumbfounded as to why I'm being treated this way.  I have no higher risk than any other woman in the WORLD for uterine rupture trying for VBAC.  And him telling me that I could have a spontaneous bleed from an unknown AVM in my uterus is unfounded because that is insanely rare!  She emailed me all kinds of literature for me to give him.  And I'm DEMANDING to see his "research" monday.  I'm also calling some more midwives, seeing if one will pick me up, and telling everyone that keeps feeding me bs to sit and spin.
5 Responses
Avatar universal
Good for you!!! I hope you get your vbac!!
1926656 tn?1334970201
Me too!!! my boyfriend and I got in a fight about it tonight, because he's scared he'll end up raising our kid alone.  But after about 10 minutes of going back and forth about it he admitted he's just really friggin scared too because he's a first time dad and he doesn't want anything to happen to either the baby or me.  And if something did happen to me my two year old would go to his dad, which would tear my boyfriend apart.  He's been my kid's dad since he was about one.
1911870 tn?1345419009
Good! I'm happy you got some real info on your hht. Don'tet stupid doctors bully you around.. You go girl! Lol. (:
1926656 tn?1334970201
The thing is I already knew this info from living with HHT for 14 years.  But I guess since I'm not a doctor my knowledge isn't important.  I just needed some backup from people that know wth is going on I guess.
1936550 tn?1348360208
You go girl!!! lol I truly hope and pray you get what you want. Make all the pregnant women proud and speak up to your Dr! I had to leave my old Gyn because she was telling me how I will deliver at the first prenatal visit. I said no its my body wtf!
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