You are in wonderful hands there at St. John Want2BeMama. I will keep you in my prayers. I have known several parents who's babies were in the NICU there at St. John and they have nothing but wonderful experiences from that whole traumatic situation. The staff is amazing and truly love what they are doing and the lives they are helping.
hey yeah my baby boy is at st. johns also.. hes doing pretty good lately they just increased his feedings and so far knock on wood his tollerating them...so hopefully hell be able to grow fast!
With you being in the Detroit area, what hospital are you using? With Nadezdha I went through St. Johns' because their NICU was one of the best in the country. My little one had several days in the Special Care unit there, and the nurses and everyone were amazing.
I am so glad that lil Gabriele is doing good. It broke my heart into a million pieces when you wrote that his eyes finally opened. My babies eyes and I'm sure yours too, were still sealed shut when he was born. Of course my baby only lived for a couple of hours, but I would have given anything to see his beautiful eyes. I feel that you are so lucky, and I know you are going thru a rough time, so I don't want to sound mean. I would have given anything for my baby to live. You are strong, and God only gives us what we can handle. God has blessed you and your baby. He has given you a wonderful gift. You will get thru this and so will Gabriele. Please keep us posted, it warms my heart to know that 24 weekers can make it. You are always in my thoughts and prayers.
Glad things are going well! THat is great about the oxygen....and don't worry, my 34 weeker had to come home on oxygen and needed it for 2 months! So he is doing GREAT! Oxygen supplementation is NOT a big deal.....he's so little, it only helps him and will help him feed!!! That's great about the head US.....glad no bleeds!!!! Keep praying sweetheart!!!! Don't rush him....you'll have your ups and downs, but you will hold your sweet boy in your arms soon enough!!!!
Great update you gave earlier. How have the feedings gone today?! I recall in the beginning, the amount of food they receive is so small. It seemed like drops of food to me and I remember thinking "how can anything gain weight from that?!" But they do...and your little one will starting gaining soon too!
How are you holding up? You sound very positive which is great! You must be exhausted though. Are you still pumping? It's such a grueling experience---you spend so much time back and forth from the hosp and all that time pumping, there is little time for sleep, let alone an emotional "break". You are obviously a very strong person - I hope you are doing what you can to take care of yourself too.
You continue to be in my thoughts!
I would like to say first that you are in my prayers and i have been thinking about you since your first post. your story comes close to my heart. My best friend delivered her son at 25 weeks and he weighed 1 lb 9 ounces. I never got the chance to see him that little however i saw his diapers and couldnt even imagine. myself never being in this siutation have no idea what it is like. I can only say please do not give up hope! My lil buddy is now gunna be 8 years old soon! He is the love of everyones life who knows him he is so sweet and intellegent! Always has been! He will put a smile on your face with or without words. My friend was told on several occasions to say "goodbye" but she didnt and wouldnt give up. Her faith and their strong will was able to bring him home and allow him to be a part of this world. By the sounds of it, the docters and nurses are taking good care of your little guy. He seems to be progressing well and this is great to hear! Even with a step back the few steps forward are so rewarding! Take care and be strong! Feel free to add to my friends list. I have shared your story with my best friend who is also praying for you. God bless!
Hey guys!!!
Thank you Logan reading ur post just makes me stronger...i was at the hospital last nite and better news! Hes off the insulin as of today! YAY! and he had a bowl movement last nite so they are starting to feed again today! hes going from 21% oxygen to 25% or 30% sometimes but they are reassuring me that its still ok and that i shoudnt worry about it! They have been doing belly x-rays and its not showing anything just that his white blood count was elavated so hes been on antibiotics (sorry sp?) his vital signs are still stable, his skin looks sooo much better!! he finally opened his eyes last nite and it was the cutest thing everr!!! i cannot wait till he comes home with me!
Julianne....that was such good news to hear i really hope my little guy makes it too and even if he has to stay in the hospital longer than 2 months its ok too i just want him to be healthy and strong! Thank you hun.
My sister was born at 23.5 weeks weighed 1.5lbs and stayed in the hospital for 2 months. She is now 27 years old.
Hey there. Glad to hear that he's hanging in there. I've been thinking of you and hoping we'd get an update.
I'm sure the docs will begin feedings as soon as they can. I think the nutrition from the iv is sufficient for a while. Even in my almost 32 weekers, we had some issues with immature digestive systems and didn't start feedings for a few days, then had to stop them for a day or 2 with each after about 1 week. Are they doing regular belly x-rays? I think that is one tool they use to watch for NEC. That is good news on the head u/s!
Hang in there. I know it is tough to be strong, but you will get thru this. Feel free to PM me if you want to chat off line too. I'll praying for your little one and family!
Hey guys!
My little guy seem hes doing ok....they did the u/s of his brain and theres no bleeding! YAY! so that is a relief! They still not feeding him, if everything goes on schedule they should start feeding him next week so hopefully he can gain some weight, his insulin is still going up and down, they are giving him ivs with sugars, protein and fats, they took the light out finally so now i can bring a blanket to cover his isolette, his vital signs are stable, and his on 21% oxygen which ive been told its really good...the only thing im worried is why they are still not feeding him, they say he is spitting up residue from feedings from before...they have this tube going tru his belly thats spitting up green liquids, they say its not coming out from the bottom its coming up, somenthing must not be working properly with his intestines, they still havent figured out what it is, but they have him on antibiotics just in case...im just really anxious i want him to eat and get big soon....anyone had these problems with a preemie before???
Hi, I had triplets at 29 weeks and the NICU stay is one of the hardest things I've gone through. I was diagnosed with Post Traumatic Stress Disorder after we brought them home; it's something no one can understand unless you've been through it. I know how hard it is, and I'm sorry you have to go through it. I lost one of my triplets after a month from an NEC infection (intestines) and it was awful. I truly hope your little guy stays strong and gets big fast. My mom works in a NICU and she's seen lots of miracles in there! They had a 15 oz. baby survive!
We became friendly with the other families in the NICU and that can also be a great support system. I didn't meet any families of with a baby born at 24 weeks, but there were a few 26 weekers that we saw progressing well during our 4 week stay. We saw 2 that were discharged (both were about 5-6 months old) and a few months later, I ran into one mom with her baby in a store---she was doing great!
I assume the little guy is intubated to help with breathing. Have you been able to hold him yet? I know the machines and tubs and everything are very scary, but you'll grow accustomed to it. One nurse described it to us as being extra sets of eyes and ears, but explained that the they also use what they themselves see and hear to know when to react. In other words, when the monitors 'alarm', it isn't always an alarming situation, so (hard as it is) try not to fixate on that too much.
It's perfectly normal to feel anxious, sad, scared and mad all at the same time. It is a long road for you and I know it must be hard to see other babies move in and out of the NICU knowing that your baby will have to stay longer than most. You have to just take one day at a time. Even at this tender age, your baby knows you, knows your voice, and will be comforted by you being there by his side.
Hugs and prayers to you and family. Keep us updated.
Hey there!! How are you doing??? How is your little boy doing???? My little girl was born at 34 weeks and 5 days..... SHe was in the NICU for 2 weeks and came home on oxygen. I know that at 24 weeks.....there will be a long road for you. I know you feel like you did something wrong and are just angry and screaming and you can look at babies. That's how I felt after my first and second miscarriges.
How is your son> WHat are the doctors saying? I watch the discovery health channel a lot and I can think of three stories right now where the babies were born at 24 weeks and, yes, they were in the hosptial a long time, but they were okay!!!! Please updates us. Where are you? What state? Do they have a good NICU????