Am lost in medical hell

[shado1205]

Hi Everyone ;)

I am posting this here as I have no idea where else to do so. I have been plagued with medical issues starting when I was a baby when I had polio, which was disputed later by Dr's that never saw me as a paralysed baby on the grounds there was a vaccine. I guess the docs and my parents back then were just making it up. Moving on, I was diagnosed with porphyria after unnecessary abdominal surgery that resulted in a complete bowel obstruction and a healthy appendix being removed. I had what was supposed to be simple surgery on my spine in '99 which led to osteomyelitis and finally arachnoiditis. I am currently in pain management. I had to MRI's done of my brain, a year apart, and while the first was ok the second came back with obvious MS spotted, but again, Dr's can't seem to agree on this and while they bicker I am left out in the cold. I am almost always fatigued and have frequent occasions where my left knee (previous arthroscopic surgery) swells and locks up. It is very painful and if I force it to move there is a loud popping sound heard by several people across the room. Lately the calf muscle in my left leg has all but vanished. I have no idea why but the difference between right and left is striking. My GP is convinced there is something going on and said even with negative bloodwork I can have RA or other autoimmune diseases, just that I would be sero-negative. He is also upset by the brain images showing MS. I have a shopping list of specialists to see and no $ to shell out for co-pay to all of these Dr's and the tests they order. In the meantime my leg continues to shrink. This, by the way, is the leg that was paralysed from polio. I have been a guinea pig stuck and cut countless times needlessly, been made far worse by surgery and on top have had to pay for it all.
I am in constant pain, have weird muscle twitching, headaches, disturbed vision and occasional kidney pain. I have very little sensation in my feet and can't move my toes at all.
At this point I don't know where to turn for help or how I would even pay for it since no one will accept what ins pays. Does anyone here have any suggestion as to who I should see or would it be better to just forget about it and let nature take its course?

[selmaS]

Hi ...no worries, I do pray u find answers and support in that community. : )

"selma"

[shado1205]

Thanks ;) i have both, somewhere in my pile of records. No, I have not had an LP and have zero plans to get one. Have had more than my share of painful procedures (some that were screwed up) and having another one I don't have the money for just is not gonna happen.
Thanks-will head over there!