Hello! I am a 38 year old female who was diagnosed with hashimoto's encephalopathy in 2007. My first symptoms were severe insomnia, followed by uncontrollable convulsions/seizures. I also had hallucinations and aphasia. I could not speak a complete sentence and forgot many words.
I was admitted into the hospital and they thought I might have a mental disorder. Doctors & specialists preformed every test imaginable. They had to put me under anesthesia to do these test because of the myoclonus.
My question is how do I explain to a physician that I actually have this very rare disease?? The diagnosis is in my medical records, but there is no "code" for HE. So they file it under Hashimotos Thyroiditis, which is NOT what I have. It is effecting any treatment a physician recommends and I do not believe I am on the right meds to help me live a semi-normal life.
Any help would be greatly appreciated! Thank you for your time :)