Aa
Mysterious disease, suffering for years
Hello everyone I thought about a million ways to write my problem to be easy on the eyes, so I'll begin by my status.
I Live in: São Paulo, Brazil (fairly Tropical weather)
Gender: Male
Age: 22
Weight: 154 pounds
Height: 5' feet 7'
Drink? No
Smoke? No
Exercise? Yes, regularly.
1st year medical student (started in UK going to finish in Brazil)
Sexual Orientation: Straight
Eating habits back in 2005: Junk food and regularly white rice with meat
Eating habits back in 2006: Vegetarian (consumed fish)
Eating habits back in 2007: Lesser junk food back to eat meat with white rice
Eating habits back in 2008 to present: Vegetarian again but now I do not consume any rice at all, just more vegetables
Take Any Medications? Yes, 25mg of Atenolol daily (began to take it in 2006)
Hypochondriac? No
Stressed? No
Brazil has an outbreak for Yellow fever, Malaria and Dengue, but its not common in my city or its surroundings at all and I do not have it.
Symptoms I am currently experiencing (with their respective year of discovery):
- Hypertension (2006)
- Hair loss everywhere in my body, but the top of my head was affected the most (2005 and I'm almost bald on top of my head)
- Gall stones (2006)
- Moderate Gastritis (2006)
- Hepatic Steatosis (I do not drink any alcohol at all) (2006)
- Bloating after eating (2005)
- Sometimes I get diarrhea with very strong pain in the lower GI, right below the belly button (2005)
- White Rice and junk food gives me cramps with diarrhea (present)
Important exams I did:
* Cholesterol: 20mg/dL LDL (Yes, I know, 20MG/DL LDL, how is that even possible!!) (2007)
* HIV: Negative (december 2008) <- This was my greatest fear I'm glad I ruled that out
* Hepatitis A: Negative (december 2008)
* Hepatitis B: Negative (december 2008)
* Hepatitis C: Negative (december 2008)
* Rubeola or Measles: Negative and Immune (december 2008)
* Toxoplasmosis: IgG 58.10 IU/mL / IgM 0.0 IU/mL (december 2008)
* EKG: Normal (2006, 2007, 2008)
* MRI of the neck down: Normal (2007)
* Chest X-Rays: Normal(2006)
* Ultrasound of the heart and other organs: Normal except for the abnormal finding of Hepatic Steatosis. (2006)
* CBC (Geez, I did SO MANY CBCs that I lost track but every single one came out to be normal) (2005, 2006, 2007, 2008)
* Colonoscopy: Small benign polyp was found and quickly removed, no other findings. (2006)
* Vitamins levels: normal (2007)
* Urine: Normal (Geez, I also did countless of of urine exam, so many kinds that I dont even remember anymore, even had to pee all day on a jar once) (2006)
* Testosterone levels (total): 739.7 ng/dL (Normal: 241.0 to 827.0 ng/dL)
* LH: 3.0 mUI/mL
* ACTH hormone: 16.3 pg/mL (Normal: 0.0 to 46.0 pg/mL)
* Prolactin: 7.5 ng/mL (Normal: 2.1 to 17.7 ng/mL)
* Plasmatic Cortisol: Normal
* Cardiac Enzymes: Normal
* Thyroid exams (TSH, T4, etc, etc): NORMAL
* Thousands of other exams that I already forgot: Normal
* Glucoses: Normal levels (2005/06/07/08)
* Endoscopy: Moderate Gastritis (2006/07)
For a few months back in 2006 I suffered with bloody diarrhea, the blood was quite red and fresh, which indicated lower GI bleeding. That was the reason why I did a colonoscopy in the first place, no abnormalities were found at all besides a small benign polyp which was removed and analysed and determined benign.
I am a very relaxed person, I do not suffer from any form at stress at all.
Strangest part?! I share the same symptoms with my Father, my Brother and My cousin family.
They all started to suffer from Gastro-Intestinal Disturbances / Hypertension / Hair loss, exactly like me. And around the same time as I started.
And when I say gastro intestinal disturbances I mean so severe that once I was rushed into the ER with a very staggering pain in the lower GI (below the belly button), I felt as if I was getting stabbed with a knife (from 0 to 10 I'd say 9.5, the pain level), the pain did not go away and the doctors thought I had apendicitis at the time, I did an MRI from the neck down and it revealed that everything was normal, so I was discharged without any treatment besides Buscopan.
Because my close relatives suffer from the same symptom I assumed it was infectious, but the CBC ruled that out.
I am going to perform an exam this wednesday to check whether or not I am poisoned with a metal compound such as Barium (my town had a case of barium contamination in a place near the water supply).
Been a few months that I been exercising regularly, it didn't change much besides slowing my heart rate. But I still feel palpitations which are VERY annoying, especially after I eat something.
I dont even need to say that I been o thousands of doctors, right? And did THOUSANDS of exams to try to find a cause for my hypertension and NOTHING.
I've been told I was Hypochondriac and that my symptoms are related to stress, and quite frankly I am very tired of hearing such a thing.
My story is simply: One day I was normal the next I was shitting blood, loosing hair and hypertensive. I was not stressed or depressed before or after it happened and I still am not.
Do I feel incredibly thirsty? Not presently, but when I use to consume junk food back in 2006 yes, I did and quite regularly.
My forehead is very oilish, which indicates liver problems. My LDL cholesterol is very low which indicates liver problem.
Did I do Liver Biopsy? No doctors ordered it, so, no.
Did I loose or gained weight? My weight has always been around 154 pounds, I do not get any more fatter nor skinnier.
Did I have fever? Maybe not, I might have felt a little warm but not in a concerning level so I didnt even check.
Do I still suffer from bloody diarrhea? Not bloody anymore, but I still suffer from diarrhea when I eat certain foods such as rice or junk food.
My Hairloss is so weird that whenever I clean my room I find hair from my legs, arms, and in massive amounts, they just come out. When I have to remove
hair from my nose I dont even feel pain, it just comes out as if it was loosen up there.
I been SUFFERING with these problems since 2005, came around to really know them in 2006.
Perhaps that if it was only me who had those symptoms I would feel hypochondriac indeed, but my brother, my father and my cousin family (two females and one male) are experiecing the exact same symptoms.
Now I am trying to find a fellow doctor who would be kind into analyzing my case and not just dismissing me as a hypochondriac or stressed.
Thanks if you took the time to read this, I appreciate, I put some effort into writing it because I wanted to know if anybody could help me and not just dismiss me as a hypochondriac.
I Live in: São Paulo, Brazil (fairly Tropical weather)
Gender: Male
Age: 22
Weight: 154 pounds
Height: 5' feet 7'
Drink? No
Smoke? No
Exercise? Yes, regularly.
1st year medical student (started in UK going to finish in Brazil)
Sexual Orientation: Straight
Eating habits back in 2005: Junk food and regularly white rice with meat
Eating habits back in 2006: Vegetarian (consumed fish)
Eating habits back in 2007: Lesser junk food back to eat meat with white rice
Eating habits back in 2008 to present: Vegetarian again but now I do not consume any rice at all, just more vegetables
Take Any Medications? Yes, 25mg of Atenolol daily (began to take it in 2006)
Hypochondriac? No
Stressed? No
Brazil has an outbreak for Yellow fever, Malaria and Dengue, but its not common in my city or its surroundings at all and I do not have it.
Symptoms I am currently experiencing (with their respective year of discovery):
- Hypertension (2006)
- Hair loss everywhere in my body, but the top of my head was affected the most (2005 and I'm almost bald on top of my head)
- Gall stones (2006)
- Moderate Gastritis (2006)
- Hepatic Steatosis (I do not drink any alcohol at all) (2006)
- Bloating after eating (2005)
- Sometimes I get diarrhea with very strong pain in the lower GI, right below the belly button (2005)
- White Rice and junk food gives me cramps with diarrhea (present)
Important exams I did:
* Cholesterol: 20mg/dL LDL (Yes, I know, 20MG/DL LDL, how is that even possible!!) (2007)
* HIV: Negative (december 2008) <- This was my greatest fear I'm glad I ruled that out
* Hepatitis A: Negative (december 2008)
* Hepatitis B: Negative (december 2008)
* Hepatitis C: Negative (december 2008)
* Rubeola or Measles: Negative and Immune (december 2008)
* Toxoplasmosis: IgG 58.10 IU/mL / IgM 0.0 IU/mL (december 2008)
* EKG: Normal (2006, 2007, 2008)
* MRI of the neck down: Normal (2007)
* Chest X-Rays: Normal(2006)
* Ultrasound of the heart and other organs: Normal except for the abnormal finding of Hepatic Steatosis. (2006)
* CBC (Geez, I did SO MANY CBCs that I lost track but every single one came out to be normal) (2005, 2006, 2007, 2008)
* Colonoscopy: Small benign polyp was found and quickly removed, no other findings. (2006)
* Vitamins levels: normal (2007)
* Urine: Normal (Geez, I also did countless of of urine exam, so many kinds that I dont even remember anymore, even had to pee all day on a jar once) (2006)
* Testosterone levels (total): 739.7 ng/dL (Normal: 241.0 to 827.0 ng/dL)
* LH: 3.0 mUI/mL
* ACTH hormone: 16.3 pg/mL (Normal: 0.0 to 46.0 pg/mL)
* Prolactin: 7.5 ng/mL (Normal: 2.1 to 17.7 ng/mL)
* Plasmatic Cortisol: Normal
* Cardiac Enzymes: Normal
* Thyroid exams (TSH, T4, etc, etc): NORMAL
* Thousands of other exams that I already forgot: Normal
* Glucoses: Normal levels (2005/06/07/08)
* Endoscopy: Moderate Gastritis (2006/07)
For a few months back in 2006 I suffered with bloody diarrhea, the blood was quite red and fresh, which indicated lower GI bleeding. That was the reason why I did a colonoscopy in the first place, no abnormalities were found at all besides a small benign polyp which was removed and analysed and determined benign.
I am a very relaxed person, I do not suffer from any form at stress at all.
Strangest part?! I share the same symptoms with my Father, my Brother and My cousin family.
They all started to suffer from Gastro-Intestinal Disturbances / Hypertension / Hair loss, exactly like me. And around the same time as I started.
And when I say gastro intestinal disturbances I mean so severe that once I was rushed into the ER with a very staggering pain in the lower GI (below the belly button), I felt as if I was getting stabbed with a knife (from 0 to 10 I'd say 9.5, the pain level), the pain did not go away and the doctors thought I had apendicitis at the time, I did an MRI from the neck down and it revealed that everything was normal, so I was discharged without any treatment besides Buscopan.
Because my close relatives suffer from the same symptom I assumed it was infectious, but the CBC ruled that out.
I am going to perform an exam this wednesday to check whether or not I am poisoned with a metal compound such as Barium (my town had a case of barium contamination in a place near the water supply).
Been a few months that I been exercising regularly, it didn't change much besides slowing my heart rate. But I still feel palpitations which are VERY annoying, especially after I eat something.
I dont even need to say that I been o thousands of doctors, right? And did THOUSANDS of exams to try to find a cause for my hypertension and NOTHING.
I've been told I was Hypochondriac and that my symptoms are related to stress, and quite frankly I am very tired of hearing such a thing.
My story is simply: One day I was normal the next I was shitting blood, loosing hair and hypertensive. I was not stressed or depressed before or after it happened and I still am not.
Do I feel incredibly thirsty? Not presently, but when I use to consume junk food back in 2006 yes, I did and quite regularly.
My forehead is very oilish, which indicates liver problems. My LDL cholesterol is very low which indicates liver problem.
Did I do Liver Biopsy? No doctors ordered it, so, no.
Did I loose or gained weight? My weight has always been around 154 pounds, I do not get any more fatter nor skinnier.
Did I have fever? Maybe not, I might have felt a little warm but not in a concerning level so I didnt even check.
Do I still suffer from bloody diarrhea? Not bloody anymore, but I still suffer from diarrhea when I eat certain foods such as rice or junk food.
My Hairloss is so weird that whenever I clean my room I find hair from my legs, arms, and in massive amounts, they just come out. When I have to remove
hair from my nose I dont even feel pain, it just comes out as if it was loosen up there.
I been SUFFERING with these problems since 2005, came around to really know them in 2006.
Perhaps that if it was only me who had those symptoms I would feel hypochondriac indeed, but my brother, my father and my cousin family (two females and one male) are experiecing the exact same symptoms.
Now I am trying to find a fellow doctor who would be kind into analyzing my case and not just dismissing me as a hypochondriac or stressed.
Thanks if you took the time to read this, I appreciate, I put some effort into writing it because I wanted to know if anybody could help me and not just dismiss me as a hypochondriac.
3 family members ! All 3 blood tests same time , rule out anything genetic, keep chin up , hope feel better Cheers Mike
Oh yeah, forgot to mention, my thyroid was exhaustively tested. The symptoms I have fit as a glove to thyroid problems, but I am quite sure my thyroid is health and sound.
Hello guys, first of all, thanks for replying.
You are very thoughtful rebel. Although I am quite sure I don't have any bowel disease, the colonoscopy was decisive.
And something struck me while I was reading the replies.
Think about it, my heart rate and blood pressure goes up AFTER I ingest food, the more I ingest the faster my heart and bp goes up. Remember I mentioned I have hepatic steatosis ? (non-alcohol related) That means that whenever my liver tries to process the food something else comes along that makes my bp rise, perhaps some form of chemical or toxin. The blood could be coming from the bile duct, from the liver. Although I don't bleed anymore after I stopped eating junk food and meat.
Now atenolol-wise I started having the problems before I started to take atenolol (hair loss, hypertension, bowel disturbances, etc). So atenolol is not the problem.
And the only thing I can think off that my cousin family, my brother and my father and I share or shared was the meat and the water and that's about that.
I think I should pay a visit to an Infectologist, or something related. I noticed that if I go to a cardiologist he'll focus on the heart, if I go to a general practice he'll quickly overview my case and send me to a cardiologist.
Been more than a year since I last went to the doctor, at the time I was quite disturbed in having to hear it was all in my head. And that year I pretty much was not thinking about the health problems, I was unstressed and quite happy, result? the problem continued. After I graduate I am going to be the doctor who thinks outside of the box, hehe.
You are very thoughtful rebel. Although I am quite sure I don't have any bowel disease, the colonoscopy was decisive.
And something struck me while I was reading the replies.
Think about it, my heart rate and blood pressure goes up AFTER I ingest food, the more I ingest the faster my heart and bp goes up. Remember I mentioned I have hepatic steatosis ? (non-alcohol related) That means that whenever my liver tries to process the food something else comes along that makes my bp rise, perhaps some form of chemical or toxin. The blood could be coming from the bile duct, from the liver. Although I don't bleed anymore after I stopped eating junk food and meat.
Now atenolol-wise I started having the problems before I started to take atenolol (hair loss, hypertension, bowel disturbances, etc). So atenolol is not the problem.
And the only thing I can think off that my cousin family, my brother and my father and I share or shared was the meat and the water and that's about that.
I think I should pay a visit to an Infectologist, or something related. I noticed that if I go to a cardiologist he'll focus on the heart, if I go to a general practice he'll quickly overview my case and send me to a cardiologist.
Been more than a year since I last went to the doctor, at the time I was quite disturbed in having to hear it was all in my head. And that year I pretty much was not thinking about the health problems, I was unstressed and quite happy, result? the problem continued. After I graduate I am going to be the doctor who thinks outside of the box, hehe.
HI fisrt of all im sorry youre feeling so terrible you poor thing, i bet you are frustrated, i agree with Cherei thats it could be environmental aswell, but i have Ulceative Colituis and Chrons disease which causes some of the side effectsyou have mentioned, and if they have done a proper colonascopy they would have found that, if they were a good doctor.
You just need one doctor to look outside the box so to speak and peice this all together.
I believe you and i know youre not a hypocondriact(or however you spell it).
ill chat to you anytime you want.
Brooke
You just need one doctor to look outside the box so to speak and peice this all together.
I believe you and i know youre not a hypocondriact(or however you spell it).
ill chat to you anytime you want.
Brooke
I thine enviormental toxins should be looked into as family has same symptoms..your not hypochondriac your on to something..did theydo a full thyroid panel...sure sounds like a bit of hypothyrodism..also not ulcerative colitis...sounds like that too...
does your brother father and cousinslive with or very near you...what do your homes have in common any recent changes paint, new carpet etc?
You sound like gluten affects you..have you tried brown rice?
does your brother father and cousinslive with or very near you...what do your homes have in common any recent changes paint, new carpet etc?
You sound like gluten affects you..have you tried brown rice?
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