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PAWOI and other symptoms.
I'm going to a neurologist on Tuesday to determine what's wrong with me, but I exhibit many symptoms of epilepsy, yet nothing shows up on an EEG.
I already have migraines, but I also have an extremely rare neurological condition called Persistent Aura without Infarction, a member of the Visual Snow entity, which was decided as 'not a migraine complication, but a new disease entity' last year. Basically my vision looks like it's covered in visual snow, except way worse since I'm missing parts of my peripheral vision and experience pretty severe palinopsia I also have ADHD and GAD, and was born with dyspraxia.
So, there's that. But the real problem I'm asking about is that for most of my life, I have had these really strange symptoms that no one could explain to me. It took me just last year to realize that they were all symptoms of partial seizures. Now, whether I'm having seizures or not, I'm not diagnosed with them, so any help regarding this is appreciated. I also understand that asking this online doesn't mean that I will be diagnosed, I just want to see if there are any similarities with epilepsy. Also, I am sixteen, which means I've had PAWOI for three years now.
-Auditory hallucinations. These include music, and ringing noises, like from a telephone or alarm clock. Many times I will go to look for the offending object only to realize that it isn't even on, and when covering my ears I can still hear it perfectly.
-Sometimes things randomly smell like metal and/or strange chemicals. These only last for a couple seconds, and it's almost like I lost my sense of smell since they're so strong. Happens in places where there would be no such smell, like my Spanish class. Sometimes things randomly taste like metal too, but this is less common. Happens to me very often.
-I space out and time will pass without me realizing it. It's almost like time 'skips' forward. Occasionally this will get so bad that I'll blink and be in a different room, and I won't know how I got there. Afterwards I have trouble talking and I get really confused. I know this could be ADHD, but something about this just doesn't seem right.
-Experiencing intense bouts of confusion. I won't be able to remember anything and at most times won't know what I'm doing. It will take me up to 10 minutes to do a simple task, like opening my locker, because I'll forget where it is, or what I'm doing. I get this strange sensation that I'm kind of like in a cloud. It's like feeling "blurry", if that was possible.
-Learning difficulties. I can do advanced math but have trouble with simple calculations. I also write words and letters upside down and backwards. I'm being tested for dyslexia.
-Visual Hallucinations. I know this is a crap-shoot category for me, since the juggernaut PAWOI came through and destroyed my vision, but sometimes I experience colored shapes (mostly squares and circles) moving across my vision, along with metamorphasia, which isn't supposed to be a symptom of PAWOI. Who knows though, it might be. I get it way too often.
-Visual Distortions. This is an incredibly INSANE symptom that I have no control over and is probably one of the scariest things I've experienced. For some reason, I don't really know why, the walls will start moving towards me. Like, actual moving, like I would get out of the way because it looks like it's going to hit me. Then I'll look up and see the ceiling doing the same thing, like it's going to crush me! The floor will start moving, like it's melted and turned into water. Things like windows will become twisted, like metamorphasia but waaaay worse. Things will sink into other things, like they've been melted. Other times the walls will start breathing or curve over me. Sometimes I feel like I was displaced to the left or right, or that my vision is turned sideways or slanted. WHAT IS THIS?! The only things I found that resemble this are Todd's syndrome and parietal lobe epilepsy, and I don't experience most of the symptoms associated with Todd's.
Please help me. I don't know what's wrong with me, and I don't want to be diagnosed with silent migraine. Nobody knows anything about silent migraine and there isn't much I could do except take anti-seizure meds. When I went on topamax these symptoms stopped, along with half of my PAWOI, but it had way too many side effects. Beta-blockers and anti-depressants aren't an option for me. I'm almost positive I have parietal lobe epilepsy but I'm not a doctor and I can't say for certain.
I already have migraines, but I also have an extremely rare neurological condition called Persistent Aura without Infarction, a member of the Visual Snow entity, which was decided as 'not a migraine complication, but a new disease entity' last year. Basically my vision looks like it's covered in visual snow, except way worse since I'm missing parts of my peripheral vision and experience pretty severe palinopsia I also have ADHD and GAD, and was born with dyspraxia.
So, there's that. But the real problem I'm asking about is that for most of my life, I have had these really strange symptoms that no one could explain to me. It took me just last year to realize that they were all symptoms of partial seizures. Now, whether I'm having seizures or not, I'm not diagnosed with them, so any help regarding this is appreciated. I also understand that asking this online doesn't mean that I will be diagnosed, I just want to see if there are any similarities with epilepsy. Also, I am sixteen, which means I've had PAWOI for three years now.
-Auditory hallucinations. These include music, and ringing noises, like from a telephone or alarm clock. Many times I will go to look for the offending object only to realize that it isn't even on, and when covering my ears I can still hear it perfectly.
-Sometimes things randomly smell like metal and/or strange chemicals. These only last for a couple seconds, and it's almost like I lost my sense of smell since they're so strong. Happens in places where there would be no such smell, like my Spanish class. Sometimes things randomly taste like metal too, but this is less common. Happens to me very often.
-I space out and time will pass without me realizing it. It's almost like time 'skips' forward. Occasionally this will get so bad that I'll blink and be in a different room, and I won't know how I got there. Afterwards I have trouble talking and I get really confused. I know this could be ADHD, but something about this just doesn't seem right.
-Experiencing intense bouts of confusion. I won't be able to remember anything and at most times won't know what I'm doing. It will take me up to 10 minutes to do a simple task, like opening my locker, because I'll forget where it is, or what I'm doing. I get this strange sensation that I'm kind of like in a cloud. It's like feeling "blurry", if that was possible.
-Learning difficulties. I can do advanced math but have trouble with simple calculations. I also write words and letters upside down and backwards. I'm being tested for dyslexia.
-Visual Hallucinations. I know this is a crap-shoot category for me, since the juggernaut PAWOI came through and destroyed my vision, but sometimes I experience colored shapes (mostly squares and circles) moving across my vision, along with metamorphasia, which isn't supposed to be a symptom of PAWOI. Who knows though, it might be. I get it way too often.
-Visual Distortions. This is an incredibly INSANE symptom that I have no control over and is probably one of the scariest things I've experienced. For some reason, I don't really know why, the walls will start moving towards me. Like, actual moving, like I would get out of the way because it looks like it's going to hit me. Then I'll look up and see the ceiling doing the same thing, like it's going to crush me! The floor will start moving, like it's melted and turned into water. Things like windows will become twisted, like metamorphasia but waaaay worse. Things will sink into other things, like they've been melted. Other times the walls will start breathing or curve over me. Sometimes I feel like I was displaced to the left or right, or that my vision is turned sideways or slanted. WHAT IS THIS?! The only things I found that resemble this are Todd's syndrome and parietal lobe epilepsy, and I don't experience most of the symptoms associated with Todd's.
Please help me. I don't know what's wrong with me, and I don't want to be diagnosed with silent migraine. Nobody knows anything about silent migraine and there isn't much I could do except take anti-seizure meds. When I went on topamax these symptoms stopped, along with half of my PAWOI, but it had way too many side effects. Beta-blockers and anti-depressants aren't an option for me. I'm almost positive I have parietal lobe epilepsy but I'm not a doctor and I can't say for certain.
Have you been seen by a Psychiatrist? I don't mean for you to take that the wrong way, but there could be something going on with a chemical imbalance in your brain causing this to happen. That chemical imbalance needs to be corrected.
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