Hi LeagueCityRealtor, I tried sending you a message but it did not allow it. I read you had headaches that improved after your tethered cord was corrected. Can you please tell me how your headaches were, where and how often before the surgery? I have frontal and occipital headaches and constant brain fog. Would really like to hear more and would like to contact you via email if possible. Have a history of spinal fusion from T8 to L2. Thanks
Hi I agree stick to the meds u r on, but if u can get a CT of ur cervical spine and brain u may want to ...check for ne bulging disks that may be playing a role as well as nething else.
When u have symptoms similar to LUPUS and MS u should test for all conditions with similar symptoms.
Good luck and do keep us posted.
Thanks...I was never sick until 2002.I went to a Neuropathic doctor/pain mangement. He gave me 4mg Tizandine (Flexeril) and 5mg Oxycotin. I haven taken the Oxys only under extreme pain. Which fortunately has been happening. Shelby isnt a doctor but works in that compactity and she had question the SLE, Lupus, scleroderma??? the disease association to that blood test came back with that and "mixed connective tissue disease..95%? Drug indced SLE...90%? Neonatal Lupus 100%????????
I just wake up and hope that everyday isn't a dense fog!
You do have a heavy burden. Please stay on the MDs to get you diagnosed. If you can just find one really good MD who will aggressively test and diagnose you, then treat you. For me, it was two: a neurologist and an endocrinologist. Much luck and keep us updated.
Hello! Soon yeah that would be nice...6 years of this.
Okay I do have a thryriod problem and take levothyroxine down to 25mg from 50mg. My Sodium, Serum and TSH were considered on the LOW end. that was the lastest test.
I printed up my tracker for my doctor, decided to send her all of May and continued for June.
Lol, on 1994 I had a car accident where my back did hurt but just like the scar on my nose...Fairfax Hospital in VA left me on the stretcher with my nose open and in excrusiating pain...but since I SMELLED like beer I must have been drinking it. Never took blood test. Ever since then for the longest time it didn't hurt. I was like all the these symtoms crashed down on me all at ONE time! The memory is not doing well either.
I had been under a mountain of stress and soon there after I noticed that I just feeling wasn't feeling up to par!
In 2003 I was going for a gall bladder removal. I have low blood pressure and that freaked the nurses out and thought I needed to go to Trama...There I met a Cardiologist and after their load of test they came up with my irregluar heart beat. The doc told me that "If you want to live another 10 years you have to cut out smoking." So I quit in Feb 2004 after 36 years of such a nasty dirty habit. ICK..
After many tests the doctor came up with Hep C...Did the 48 weeks of sticking myself and pills of hell. The doctor then told me that I was CURED! Come to find, no one is cured they are in remission. That was 2005-2006.
Then one night at work I had to get up and walk to the ring phone...and I feel on my butt my whole right leg was numb and unresponsive. It took what felt forever to get feeling back but probably 5 min. Then the next weekend I choose to go to the emergency room and while I was there it turned out that my heart was slowing up. They kept me overnight and there was an incident and I had to get an emergeny pacemaker. After the weekend the docs changed it to be inside me. I weighed more back then, but now it's disgusting looking. So now I can not have any MRI...only CT Scan.
Then 2008 I final got my gall bladder out, 2009 I had a couple of cysts extracted from my left arm pit.
I was also diagnosed with Pulmanory Hypertension in 2003/4, but in 2010 new doctors didn't think the others were correct.
I have had ever since 2009 Tinnititus...I went to the ear,nose, throat doc and he said it was "normal for my ears to just gush with fluids" But gave me antibotics, finish that and it still hurt, but that doc said I couldn't have any more. And gave me some over the counter BS pills.
Now my memory is failing so damn fast. My boyfriend accuses me of not paying attention and gets equally upset too. I tell him I can't help it, and he just don't understand because he chose to not do what the doc told him to do and now refuses to go back for any corrections. So he has an arm that is so fragile that he can break it just by accidently hit it.
I now take 4 x 50mg Tramadol I started with 1 but in 2006. 2 every 12 hours. 25 mg Levothyroxine, Lamictal150mg, 100mg Zoloft, 100 Gabpentin, and I do have other that are considered narcotic but only when the pain overcomes all my other pills.
And so now I have moved to Norh Carolina away from all those Spanish inquisition in VA...LOL This doc was looking Lupus..oh my...I looked under Dementia and I have symtoms, MS I have symtoms, one chirpractor said my spine was an "S", idk for sure.
I'm hoping for a diagnosis - would be nice.
If you can look at my trackers go for it.
Hello! Soon yeah that would be nice...6 years of this.
Okay I do have a thryriod problem and take levothyroxine down to 25mg from 50mg. My Sodium, Serum and TSH were considered on the LOW end. that was the lastest test.
I printed up my tracker for my doctor, decided to send her all of May and continued for June.
Lol, on 1994 I had a car accident where my back did hurt but just like the scar on my nose...Fairfax Hospital in VA left me on the stretcher with my nose open and in excrusiating pain...but since I SMELLED like beer I must have been drinking it. Never took blood test. Ever since then for the longest time it didn't hurt. I was like all the these symtoms crashed down on me all at ONE time! The memory is not doing well either.
I had been under a mountain of stress and soon there after I noticed that I just feeling wasn't feeling up to par!
In 2003 I was going for a gall bladder removal. I have low blood pressure and that freaked the nurses out and thought I needed to go to Trama...There I met a Cardiologist and after their load of test they came up with my irregluar heart beat. The doc told me that "If you want to live another 10 years you have to cut out smoking." So I quit in Feb 2004 after 36 years of such a nasty dirty habit. ICK..
After many tests the doctor came up with Hep C...Did the 48 weeks of sticking myself and pills of hell. The doctor then told me that I was CURED! Come to find, no one is cured they are in remission. That was 2005-2006.
Then one night at work I had to get up and walk to the ring phone...and I feel on my butt my whole right leg was numb and unresponsive. It took what felt forever to get feeling back but probably 5 min. Then the next weekend I choose to go to the emergency room and while I was there it turned out that my heart was slowing up. They kept me overnight and there was an incident and I had to get an emergeny pacemaker. After the weekend the docs changed it to be inside me. I weighed more back then, but now it's disgusting looking. So now I can not have any MRI...only CT Scan.
Then 2008 I final got my gall bladder out, 2009 I had a couple of cysts extracted from my left arm pit.
I was also diagnosed with Pulmanory Hypertension in 2003/4, but in 2010 new doctors didn't think the others were correct.
I have had ever since 2009 Tinnititus...I went to the ear,nose, throat doc and he said it was "normal for my ears to just gush with fluids" But gave me antibotics, finish that and it still hurt, but that doc said I couldn't have any more. And gave me some over the counter BS pills.
Now my memory is failing so damn fast. My boyfriend accuses me of not paying attention and gets equally upset too. I tell him I can't help it, and he just don't understand because he chose to not do what the doc told him to do and now refuses to go back for any corrections. So he has an arm that is so fragile that he can break it just by accidently hit it.
I now take 4 x 50mg Tramadol I started with 1 but in 2006. 2 every 12 hours. 25 mg Levothyroxine, Lamictal150mg, 100mg Zoloft, 100 Gabpentin, and I do have other that are considered narcotic but only when the pain overcomes all my other pills.
And so now I have moved to Norh Carolina away from all those Spanish inquisition in VA...LOL This doc was looking Lupus..oh my...I looked under Dementia and I have symtoms, MS I have symtoms, one chirpractor said my spine was an "S", idk for sure.
I'm hoping for a diagnosis - would be nice.
Hi...what testing did u have done so far?
With muscular and neuro pains I would thing an MRI?..If so, what area, ur spine, brain?
Chronic Fatigue can also manifest bcuz u have pain...many like to call it a separate condition....Have u had blood work done to check for low levels of Vit D, B12, magnesium and potassium, calcium?
How is ur thyroid?
So may diff things can cause this from stress to something in our family medical history so do look there as well.
I pray u get answers soon.
What are your symptoms, even the minor ones?