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Avatar universal

What is wrong with me

So I went to my follow up for c.t scan results and hey guess what they found no kidney problem at all hence the problems started with my kidney function in May,
They are now referring me to a neurologist because they think it all may be to do with referred pain!!!!!!!!???? What is this all about,
I have done some research on loin pain hematura syndrome and it matches everything I'm going through yet they have not even considered it please help doc your advice would be greatly appreciated thanks
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Avatar universal
I had 2 kidney doctors not on the same page but i knew something was wrong and girl keep fighting for your health bc only you know. I was a sick kid in and out of hospitals test it was great not but guess they all came back normal. I was like no this is not normal I found the right family doctor who believed me and what i have is Klippel-feil syndrome supper rare but has to do with your spine.
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Avatar universal
Not a doc just a pushing patient bc its real not faking
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Avatar universal
Well seen neurosurgeon and he is very sure it's not my spine related,
He has ordered a MRI scan just to be certain and is suppose to be asking my doc to do other referral (kidney specialist) another waiting journey can't fault them for trying just really fed up now,
I'm sure they will tell me it's nothing,
Thanks fot your reply
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Avatar universal
Sorry about late response I'd kinda given up on this site too
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Avatar universal
Well I am now at a loss, I hAve seen gynaecologist who are looking into post nova sure ablation as the cause if the case it will be hysterectomy,
Neurosurgeon has told me I have a spine degenerative disease,
Also urology state I have a lot of retention some follow ups to attend but still suffering 4/7 days thsnks  
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