Incontinentia pigmenti type 2, is a rare, genetic disorder having skin pigmentation that often is associated with ocular, dental, and central nervous system abnormalities. Due to the multitude of abnormalities, it is wise to involve a team of doctors consisting of Ophthalmologist, dentist, genetist, dermatologist and a neurologist so that appropriate treatment can be given.
It is very important to have routine eye/checkups as there is a risk of serious eye damage. Treatments such as glasses, photocoagulation or Vitreoretinal surgery for retinal detachments may b required. Meticulous dental care is also required for the patient.
Take care and do write in if you need more information.
we have all those doctors for her. i also have another question for you. we have been told that she has intractactable sezuires. is there a medicine that will stop these? she is currently on klonipin, zonagran, and vitaminb6. or do the medications that she is taking going to make her worse?