Every story is unique, but as rare disease sufferers, we share common challenges. Your story could inspire others to not feel alone, create awareness of the issues faced by patients of rare conditions and their loved ones, and evoke change. What challenges have you faced in finding diagnosis/care for yourself or a loved one? What more needs to be done in your opinion to support children and adults facing rare conditions, and have you learned something you feel should be shared in order to help others? Your voice is important, your story unique. We invite you to join us as we strive to bring people together on these issues, evoke discussion and together, voice the needs of individuals bravely facing rare conditions. Thankyou for sharing.