My daughter actually had an IVC filter placed in the vena cava soon after the clots were found. However, the doctor decided to remove the filter since he believed, due to her age, that it posed a risk of causing clots in the future. He then put in stents in each leg to keep the veins open. I am now worried about the stents and whether they should be removed since they also appear to cause clots. My daughter does not actually have APL syndrome, only the antiphospholipid antibodies.
Thanks for any input.
Blood clots are a major characteristic of antiphospholipid (APL) syndrome. This occurs in a wide variety of medical conditions, most notably systemic lupus erythematosus (SLE). Usually medicine is taken to dissolve the clots and keep new clots from forming. When this does not work, filters, not stents, may be placed in a large blood vessel, usually in the inferior vena cava. Drug eluting stents have been successfully used to treat coronary artery disease. However there have been a number of recent reports of blood clots.
I suspect that your daughter has had a filter placed, rather than a stent. She should talk with her doctor to clarify this. Also if not already done, she should have a thorough evaluation by doctors with expertise in APL to determine the cause.
This is a difficult, worrisome medical problem. You should get the most expert help available.
Good luck.