I am a 54 year old male, non-smoker with chronic asthma and bullous emphysema. I was diagnosed about 10 yrs. ago with the emphysema but never really took it seriously and have not really treated this disease aggressively. I do take theophylline, advair, albuterol & cromolyn in a nebulizer. Had pleurodisis done on my right lung after a pneumothorax in the early '70s. About 6 yrs. ago, had another pneumothorax, again right lung and had major bullae removed and what amounted to a resection on that lung. What an improvement that made in my breathing, it was like being borne again.
I have always exercised, aerobics, hiking and weightlifting, but when I had the last operation expanded my horizons to include softball every summer. During the last operation contracted HEP C and just finished a yr. of interferon and ribavirin. I've been off 2 mons. only to discover a nasty acineobactor infection in my right lung, much pain and after a CT scan, more bullae diffuse in the right and a few in the left.
So now I start the research and to tell you the truth, am scared ++++less! I have consulted a reknown surgeon locally, a critical care pulmonologist and others as what to do. They all say live a normal life, but offer no specifics.
Well heck, I would like to proactively attack this disorder thru. breathing exercises, aerobics and get back to weight lifting and softball. I know one must be careful to avoid the DeSalvo reflex (there's another term that escapes me regarding not bearing down or holding your breath).
Any and all suggestions are appreciated!
jakie