Please do keep us posted. I live in a pretty rural area that doesn't have many specialists. I have some major lung issues as well as other problems that are definitely more than the local doctor can bite into so I do travel pretty far to see the specialists that I need. I would go to a university type of setting as far as finding a specialist in IPF. Like I said, there are different types of IPF, it is important to get the right diagnosis and treatment.
Oftentimes, asking the doctor for help in finding the right specialist is helpful as well as searching online. Keeping you in my thoughts...Sunny
Thanks, Sunny! I have been so anxious about this and just haven't know how to approach my doctor. We don't have any pulmonologists (or other specialists) in our area so I think he usually treats his patients himself. He's a good doctor--just a little old-fashioned. I've done a lot of reading on the internet and what I have read doesn't sound at all encouraging. I'll keep my progress posted.
I would definitely see a specialist, especially if there is consideration that you may have IPF. You need to have imagining (CT scanning), possible biopsy etc...for an accurate diagnosis. I have also read that there are different types of pulmonary fibrosis with different treatments., more of a reason to see a specialist. I am not a doc, this is just my opinion. Push for that specialist referral. Sunny