For the last 15 years I have had a chronic lung disorder. In the last three years it has gotten worse. I am working with an excellent team of doctors, however they are stumped. My lungs are strucurely fine. We have ruled out many diseases and disorders. The only two tests which have come back with abnormalities are a biopsy showing a 20% level of fat cells in the lungs and two low level functions in my T-cells. The doctors think the two abnomalities may have been caused by the chronic lung infections. They are considering a "mucus" disorder. However, they are having difficulty finding information on this. Do you have any infomation on this or a suggested source to go to? Your help would be greatly appreciated. JEV
The findings you've described are suggestive of the diagnosis of Pulmonary Alveolar Proteinosis, a treatable condition of unknown cause. T-cell (lymphocyte) abnormalities have also been described with this condition. The finding of fat in the lung can also be caused by the chronic aspiration of lipid containing nose drops.
If not already done, the biopsy slides should be reviewed by a pathologist with special expertise in the diagnosis of pulmonary disease.
Have you considered having an evaluation by National Jewish? They are the #1 respiratory hospital in the US & do lots of out-patient evaluations & consulations. They participate with many medical plans & made a world of difference to me when I was an outpatient there for evaluation and treatment a year ago (after I hired & fired 3 lung specialists in HI). Their website is www.NationalJewish.org & they have a toll-free number you can call.
Best of luck--sorry I don't have any other suggestions.
Starion--thriving in HI
Thank you for the comments. I believe the doctors feel they have ruled out Pulmonary Alveolar Proteinosis. I had a CT done when I had a severe infection and there was no sign of anything in the alveolar. I have never had nose drops. Any other thoughts? JEV
Copyright 1994-2018MedHelp.All rights reserved. MedHelp is a division of Vitals Consumer Services, LLC.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. MedHelp is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.