Have they tested you for histoplasmosis ? I would ask about that .
They have not tested me for ANYTHING...They just keep telling me to wait another year and come back...then nothing again. I just got off of the phone with my doctor's nurse and she says that the two offices in the hospital (family practice and internal medicine) are now "fighting" over my file. Internal medicine wants me to wait until April for my appointments and a new CT, but family practice insists that I have treatment done now because of other symptoms (hair falling out, severe hormone fluctuations, extemely awful fatigue, GERD...etc). They think something else is going on. Hallelujah! She said that the 4mm nodule in my right lung they think is a scar although all the new nodules are pleural and non-pleural (radiology report still says "several" but no specific number or size) which I have to admit scares the be-Jesus out of me. I just keep getting information little by little.
I will definitely ask about the histoplasmosis. Thank you very much, and I will keep you posted after my appointment on Wednesday.
PLEASE KEEP ME POSTED , I KNOW WHAT IT IS LIKE WAITING TO HEAR IF YOU HAVE A HORRIBLE ILLNESS .I GO TOMORROW FOR A CT SCAN FOR ALL THE SCARES ON MY LUNG AND THEY WON,T CALL ME UNTIL LATE NEXT WEEK , BUT I FEEL VERY AFRAID , DON,T KNOW WHICH WAY TO TURN .I JUST KEEP PRAYING THAT GOD HAS BIG PLANS FOR ME . I WILL KEEP YOU IN MY PRAYERS . FELICIA
I have a diagnosis! I have Sarcoidosis! There is A LOT of information on the web about it. I went to the doctor today and in reviewing my medical and personal history, they finally told me what I have, and it ALL makes sense! I'm SO exicted to have a diagnosis, since it equals a prognosis! YOU ARE ALL IN MY PRAYERS!
i was diagnosed with breast cancer in Dec. 0f 08. 44 year old female. Had a PET SCAN in Jan. 0f 09. Oncologist told me the breast cancer had spread to my lungs and lymph nodes in chest and some bone areas. Before I was diagnosed with breast cancer, I had developed a dry cough could not get rid of, still had cough during Chemo, oncologist related it to chemo. Went thru 8 rounds of chemo. Did another PET SCAN after Chemo and oncologist said it did a great job of getting rid of the breast cancer but spots were still showing in lungs and bones and more spots in spleen, without doing any further testing, he wanted to start me on Chemo again immediately to contain the other spots......At this point I was devasted, decided to get a second opionion. Went to different Ocologist and she started doing all kinds of scans immediately...CAT SCANS, BONES SCANS, MRI'S after all scans were done, spots still showing up on lungs, so I went in for a lung and lymph node biopsy. Came back as Sarcoidosis. Also during all this all my blood work came back normal, no abnormalities. Cancer count down where it should be within normal limits, had a bone scan done on spine area and it came back as sarcoidosis. Had a partial mastecotomy and went thru 33 treatments of radiation, have been getting Zometa treatment every 3 months for bone issues and scans done every 3 months, last PET SCAN done in January came back and everything stayed pretty much the same, just had CAT SCAN of chest, abdomin and pelvis, now showing new nodules in lungs....Scarred to death........not sure if sarcoid is acting up or something new, but I did develop the cough back just about a month ago and was sick with a small cold, still having very dry cough, no shortness of breath, blood work was perfect again. Lung specialist wants to do another lung biopsy........VERY NERVOUS AND SCARRED......
Hi everyone! Like alot of you I have nodules on both of my lungs. July of 2011 I had a catscan that revealed 1 nodule on my right lung. I was told to repeat the catscan in 6 months. I had my 2nd catscan done at the end of December. Now they tell me I have developed several nodules on both lungs. I am a bit concerned about this. Now I have to wait another 6 months to see if it grows. I am at high risk for breast cancer and I had a hysterectomy 3 years ago that revealed pre cancer cells on my cervix. I am beside myself with worry.