Aa
Still, same breathing problem, no Diagnosis
David
I am sure you rem me I have posted links of some of my ealier posts below thus post Still have the undiagnosed breathing issue Heart is def out unless they messed up Asthma is out from challange test even though I stoped using the inhaler only 1 day before still only 1% change at level 5 VCD does not seem likely to my ENT though havent had test during breathing problems
I am begging to think this is really GERD - hitaus hernia realted My hernia is 5 cm. It does seem like when my gerd is bad the breathing is bad, not always.I have been sleeping in recliner lately had some improvment In fact went 2 months with out hardly having an issue Now its back again on and off But I thought if it was gerd related it would be asthma from gerd or broncspasms See I have had PFT's when my breathing was really bad and I scored excellent on them SO ?
Since you are an expert I need to know any other possibilites. What about something with the nervous system? What about a gland, like thyroid? What about a rare diseae? what types of things there can cause issues. What about a mucsel problem? And what about a problem with the actual diphram.
Up to date desc: Feels like I cant get a satisfying breathe at times. I do feel like something is restricting my diphram at times. It feels like sometimes when I inhale just a little that its taking too much effort like my lungs are too full of air. On the exhale same thing. And this feeling of breathlessness persists during and inbetween breaths. Its like a dull feeling. Here: stop breathing for 10 secs. feel that dull feeling of needing air? thats it! but the breath dosent fix it.
hypervenolation - painc are ruled out
Ive had some wierd suggestions, for example cleveland clinic said maybe a bad sensory receptor, that will go away in time? ? ?
I need help I am young very in shape eat healthy this is not fair
I am def not the only one with the problem, just meet a girl my age. EXACT same thing! I'll have her post below too.
I am sure you rem me I have posted links of some of my ealier posts below thus post Still have the undiagnosed breathing issue Heart is def out unless they messed up Asthma is out from challange test even though I stoped using the inhaler only 1 day before still only 1% change at level 5 VCD does not seem likely to my ENT though havent had test during breathing problems
I am begging to think this is really GERD - hitaus hernia realted My hernia is 5 cm. It does seem like when my gerd is bad the breathing is bad, not always.I have been sleeping in recliner lately had some improvment In fact went 2 months with out hardly having an issue Now its back again on and off But I thought if it was gerd related it would be asthma from gerd or broncspasms See I have had PFT's when my breathing was really bad and I scored excellent on them SO ?
Since you are an expert I need to know any other possibilites. What about something with the nervous system? What about a gland, like thyroid? What about a rare diseae? what types of things there can cause issues. What about a mucsel problem? And what about a problem with the actual diphram.
Up to date desc: Feels like I cant get a satisfying breathe at times. I do feel like something is restricting my diphram at times. It feels like sometimes when I inhale just a little that its taking too much effort like my lungs are too full of air. On the exhale same thing. And this feeling of breathlessness persists during and inbetween breaths. Its like a dull feeling. Here: stop breathing for 10 secs. feel that dull feeling of needing air? thats it! but the breath dosent fix it.
hypervenolation - painc are ruled out
Ive had some wierd suggestions, for example cleveland clinic said maybe a bad sensory receptor, that will go away in time? ? ?
I need help I am young very in shape eat healthy this is not fair
I am def not the only one with the problem, just meet a girl my age. EXACT same thing! I'll have her post below too.
Pulled this from the national jewish site.
Eat six smaller meals instead of three big meals. Smaller, more frequent meals are recommended since many people with chronic lung disease feel more short of breath when their stomach is full. This is because the diaphragm can not work as well when the stomach is full. You can satisfy your nutritional needs, keep your stomach comfortable and help your diaphragm to work better by eating smaller, more frequent meals.
So, if you reverse this. Its saying that a hernia can def cause brething problems because it puts stress on the diaphragm
Eat six smaller meals instead of three big meals. Smaller, more frequent meals are recommended since many people with chronic lung disease feel more short of breath when their stomach is full. This is because the diaphragm can not work as well when the stomach is full. You can satisfy your nutritional needs, keep your stomach comfortable and help your diaphragm to work better by eating smaller, more frequent meals.
So, if you reverse this. Its saying that a hernia can def cause brething problems because it puts stress on the diaphragm
A related discussion, Short breath and nasal disorder was started.
MEDICAL PROFESSIONAL
Sorry, but the “picture of that test” did not come through with your E-mail, below. I can imagine that it shows flattening of the Inspiratory Flow Volume Loop and that is characteristic, if not diagnostic, of VCD.
Yes, the episodes you’ve experienced are consistent with the diagnosis of VCD. With this condition, there is inappropriate closure of one’s vocal cords, usually only with inspiration but occasionally with both inspiration and expiration. The key statement in your description, below, one expressed often by persons with VCD is: “It feels like sometimes when I inhale just a little that its taking too much effort like my lungs are too full of air.”
VCD is a functional, not an anatomical disorder. It can occur as an isolated phenomenon, can mimic asthma and can also occur in conjunction with asthma. VCD has been associated with GERD, Panic Disorder and with Allergic Rhinitis. In some instances, optimum therapy of these conditions alleviates recurrent VCD. Most importantly, for you, VCD is a treatable condition, the treatment being Speech Therapy, provided by a Speech Therapist, ideally one experienced in the diagnosis and treatment of VCD. Your pulmonologist may be able to refer you to such a qualified person. Treatment by a speech therapist, without much prior experience with this condition is not advisable.
The following abstract may be of interest to you and your doctors.
Good luck
Authors Full NameBalkissoon, Ron.
InstitutionDepartment of Medicine, National Jewish Medical and Research Center, University of Colorado School of Medicine, Denver, Colorado, USA.
TitleVocal cord dysfunction, gastroesophageal reflux disease, and nonallergic rhinitis. [Review] [84 refs]
Source Clinical Allergy & Immunology. 19:411-26, 2007.
AbstractVCD is often mistaken for asthma and can lead to treatment with corticosteroids and the development of significant side effects. Early and correct diagnosis will avert significant iatrogenic complications. For many individuals, the role of postnasal drip and GERD in the pathogenesis of VCD is central, as they are often associated with VCD and likely lead to increased laryngopharyngeal sensitivity and hyperreactivity. Much needs to be further elucidated in terms of the underlying pathogenesis of VCD. Management of VCD requires identification and treatment of underlying disorders and referral to speech therapists that can teach techniques of throat relaxation, cough suppression, and throat clearing suppression. [References: 84]
Yes, the episodes you’ve experienced are consistent with the diagnosis of VCD. With this condition, there is inappropriate closure of one’s vocal cords, usually only with inspiration but occasionally with both inspiration and expiration. The key statement in your description, below, one expressed often by persons with VCD is: “It feels like sometimes when I inhale just a little that its taking too much effort like my lungs are too full of air.”
VCD is a functional, not an anatomical disorder. It can occur as an isolated phenomenon, can mimic asthma and can also occur in conjunction with asthma. VCD has been associated with GERD, Panic Disorder and with Allergic Rhinitis. In some instances, optimum therapy of these conditions alleviates recurrent VCD. Most importantly, for you, VCD is a treatable condition, the treatment being Speech Therapy, provided by a Speech Therapist, ideally one experienced in the diagnosis and treatment of VCD. Your pulmonologist may be able to refer you to such a qualified person. Treatment by a speech therapist, without much prior experience with this condition is not advisable.
The following abstract may be of interest to you and your doctors.
Good luck
Authors Full NameBalkissoon, Ron.
InstitutionDepartment of Medicine, National Jewish Medical and Research Center, University of Colorado School of Medicine, Denver, Colorado, USA.
TitleVocal cord dysfunction, gastroesophageal reflux disease, and nonallergic rhinitis. [Review] [84 refs]
Source Clinical Allergy & Immunology. 19:411-26, 2007.
AbstractVCD is often mistaken for asthma and can lead to treatment with corticosteroids and the development of significant side effects. Early and correct diagnosis will avert significant iatrogenic complications. For many individuals, the role of postnasal drip and GERD in the pathogenesis of VCD is central, as they are often associated with VCD and likely lead to increased laryngopharyngeal sensitivity and hyperreactivity. Much needs to be further elucidated in terms of the underlying pathogenesis of VCD. Management of VCD requires identification and treatment of underlying disorders and referral to speech therapists that can teach techniques of throat relaxation, cough suppression, and throat clearing suppression. [References: 84]
David I saw the head pulmonary doctor at UPMC today. He said he knows what the problem is.
He said I have VCD.
He based it on a prior flow loop test I had at another doctors office, during which my breathing was not the best, Here is the picture of that test. He said its flat on the bottom and I have VCD. Do you agree? Wow, maybe finaly an answer.
http://www.flickr.com/photos/47239101@N07/4344392882/
He said I have VCD.
He based it on a prior flow loop test I had at another doctors office, during which my breathing was not the best, Here is the picture of that test. He said its flat on the bottom and I have VCD. Do you agree? Wow, maybe finaly an answer.
http://www.flickr.com/photos/47239101@N07/4344392882/
4th day in row good breathing, although had a 3 hour flair up last evening.
I am not a Dr and this may be way out in left field but... I was diagnosed with ABPA in Dec. '09 after nearly 3 years of searching for answers regarding breathing problems. Many wrong diagnosis's! Our stories are very different but after reading your back postings, two things jumped out...your two jobs! ABPA is an allergic reaction to the mold, Aspergillus. When you read up, it is mentioned that peiole working at jobs such as yours can inhale this mold. If you research go to University sites...I don't have web sites at my fingertips .. a british web site is excellent. Just a possibility....
AndyDandy
AndyDandy
Like today, my breathing is flawless, feel great!!!!
Yesterday it was great also.
Yesterday it was great also.
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