The doctor is correct that the levofloxicin could be the culprit re. your body aches and inability to do what you did prior to the levo med..
I had pneumonia in Dec. got bettter went home, and because I had a foley catheter still, I saw a urologist for it's removal. The urologist rx'd CIPRO, one pill destroyed my life. I have major panic attacks. fear of water in my face, fear of closing my eyes to sleep, body pains, loss of appetite, personality changes, memory/mind problems and several other severe reactions. My wife must care for my needs daily. I'm 64.
Levoflox... is in the same family as Ciprofloxicin. You need to read online "Adverse reactions Cipro" There's a long story of a young man like yourself. The FDA pulled many of the floxacins and left a few (5 or 6) but they have "double black box warnings on them. Very bad stuff, my urologist when I told him of this, said another patient of his told him of reactions but he didn't believe him. The doctor said he later went online and read it all for himself. Get help fast!! I'm not sure there is anything to counter act the damage, but check. ** Forgive my spelling it's the best I can do now after Cipro. (No I have not filed a law suit) Now I've relapsed pneumonia again and taking breathing treatments, oxygen etc.
The rapid decline in exercise capacity that you have experienced in a very short period of time truly is extraordinary. The most important issue at this time is to find the cause of the shortness of breath. Levofloxacin has been associated with a wide range of adverse events, many of which are musculoskeletal and so I would not be surprised if the suggestion that your multi-site musculoskeletal symptoms were the result of reactivation of a rheumatoid process. I could find no report of this association but I suspect that the Levofloxacin, given its potential side effect on tendons and muscles could be the cause, in the absence of a history of rheumatoid factor positivity.
The approach to diagnosis of the cause(s) of your symptoms must include evaluation for heart failure, lung failure (including diffuse lung disease, as seen with the non-infectious pneumonias, and recurrent clots to the lung with or without pulmonary hypertension) and diseases that effect the muscles of respiration.
I am surprised that a diagnosis was not established at the Mayo Clinic and that raises the question that the cause of your disorder may be a rare disease.
Given the amount of time that has passed and the persistence and severity of your symptoms, it would not be unreasonable for your doctors to repeat a number of the tests that were initially negative or normal at the outset and now may provide clues to the diagnosis and how it might be treated. That is not uncommonly the case with diffuse lung diseases that involve both lungs in their entirety.
From your description, yours is a very serious situation; one that requires that every possible effort be made to establish a diagnosis and promptly treat it. I suggest that you ask your doctor to contact the physicians at the Mayo Clinic to provide them with an update on your condition and then, either by actual physical reevaluation or with the use of Tele-Medicine, give them the opportunity for further consideration to your illness.
Do not accept any further delay.
Good luc