Primary bronchomalacia or tracheomalacia in newborns have an excellent prognosis, because airflow improves as the airways grow and wheezing is usually gone by age 3 years. When tracheomalacia is due to an anatomic abnormality or mass in children or adults the prognosis depends in large measure on surgical correction and how long the bronchial compression has been in place. The adult form, which is often due to connective tissue disorders or prolonged mechanical ventilation, is increasingly being treated with success by the placement of splints.
My son was dx with Tracheomalacia when he was a baby. He had a stridor that went away by 3 years old. He did not developement upper respiratory infections (URI) until he was almost 2. He is now 10. To date he has had RSV, 6 Pneumonia's, 6 Brochitis/Bronchilitis and 15 Croups. The doctors simply told us at the time that he would out grown it. We still struggle with his health.
The best advised I can give you is keep a calendar of events on him. Write on "his calendar" all the times he coughes is ill what meds he is on...whatever. This way if you have to go to the ER you will have all those answers at times when your brain will not work.
Yahoo has a great support group for Tracheomalacia-Brochomalcia; "LMTM Babies" LMTM_Babies***@****. The parents on the web site have been through so much and lend good advise. They are my godsend.
mother to Dominick (12) Hunter (10 TM) and Jennifer (9)
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