I HAVE THE SAME THING.. IT FEELS LIKE DUST OR CRUMBS IN MY THROAT, USUALLY RIGHT SIDE. I WILL COUGH CANT TALK OR BREATH, CORDS ARE ACTUALLY CLOSING. I CARRY A EPPI PEN AND HAVE HAD TO CALL EMS, I USE MY INHALER AND NEBULIZER, BUT DONT HELP MUCH, AND I NEVER KNOW WHEN ONE WILL COME ON EITHER
Wow! Thank you!! Its so nice to know I'm not alone!
I was sent to an ear, nose and throat specialist, who found nothing wrong, and concluded I must have acid reflux. (???) While I do find this hard to believe, I'm still taking their anti heartburn medication nightly. Unfortunately, I'm at my worst when I'm weakened by allergies (spring) or a cold, so I have to 'wait' for one or the other to trigger a wave of episodes to convince this doctor (or myself) the accuracy of his diagnosis.
Meanwhile, does your epi pen work? I thought epi pens were for severe allergic reactions? What have your doctors suggested causes your episodes and what was their solution? (If you don't mind my asking...I'm not feeling very confident in my doctors right now.)
If this helps you, I've learned that when I feel it coming, pose myself and try to relax. It most certainly causes an instinctual panic (almost for my very survival!) when it happens, and the more I can remain calm, inhale deeply initially while I still can, I can help myself to lessen the severity and the duration of these attacks. My initial instinct is to run for a glass of water, although I have to remember I can choke on that for real! But, while I can, it seems to calm me a bit. (And then as soon as I'm done, keep the bladder empty in case it happens again soon, which I often have repeats)
Have you found any tricks that help you?
Thanks again for writing!
I can relate to you as well. My cough has been going on for almost three years and occurs every two months or so. Like you I was originally told that I had acid reflux which was crazy. My cough is a strong itch more under my right ear than in my chest; the cough is never in my chest, just in this location. I can press my finger on the area and cause myself to cough. If I am eating something (especially salty foods) and swallow, if a grain of food gets on the area I start to cough. If I lay on my right side and have sinus drainage, I cough. I have an appointment with another ENT tomorrow and plan on crying, kicking and screaming to get something done because at this point everyone wants me to just keep using Nasonex and Allegra D which only makes the cough drier rather than helping.
Hello to all of you who suffer from this horrible cough. I too am inflicted with this. This violent cough will come on for no reason at all. I have acid reflux but that is under control. Have been to pulmonary doctors, had several lung tests done and told they could not find anything. There must be something to cause the coughing spells. PLEASE if any of you find a doctor who can cure this please e-mail me. I will travel anywhere. My e-mail address is cynthia.***@****
I haven't had much luck with doctors either, it does seem to be related to allergies, colds etc.
On thing that does help is to purse your lips almost like you are going to whistle and breath slowing in / out. That usually keeps me from closing up completely. Try not to breath in hard, that always seems to make it close up tighter, hard not to do when you feel like you can't breath tho.
OMG! Finally, I am so excited to have finally found people with the same thing I am suffering! I too have had this damn cough for at least 5 years now. Also have been to lung doctors, ent doctors, also a cardio doctor. Nothing is EVER Wrong...except of course "probable" acid reflux and allergies to dust bunnies...I remember when it first came on was a really bad flu virus and I had laryngitis. It has now come to the point where I am having fainting spells as well as a seizure. I'm also going through pre menapause and when it's "supposed" to be that time, and I have a lot of water retention, it gets bad then too as well as a cold and allergy symptoms.
I really hate that we are all suffering from this weird problem...And I also pray that someone can find something to make them stop.