Restless Leg Syndrome Community
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How does RLS/PLMD affect You?

I'm wondering if anybody else out there is affected by RLS/PLMD in the same way I am.  It's very specific.  Only when I'm falling asleep, my foot will jerk, sometimes rapidly, followed by the whole leg making a violent jerk.  There is no sleeping thru that.  Once it starts, I know I'm in for a long night because it does not stop.  Even if it does, then the other leg will start doing it.  (There is that creepy-crawly sensation a microsecond before the jerks, but I can't stop it from happening.)  This started in the early '80's with mild episodes 2 or 3 times a week but has increased strongly over the years.

I have incredible empathy for anyone suffering from this affliction / curse and pray daily that the true cause will soon be identified.
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Avatar universal
I believe I was born with RLS I have at least had it for as long as i can remember.  I am now in my 60's and have learned a lot of ways to cope wit RLS.  I know for me if I over eat it will be worse, If I gain weight it will be worse, if I take meds that make me sleepy it will be worse, playing games and stuff on a computermake it worse,what makes it better, cold I live in Ohio and if my RLS acts up I go outside and sit barefooted or walk around on the porch no matter how cold it is.  This will stop it. I believe it is a wake up thing, if you can get yourself totally wide awake it will go away, and usually, for me anyway, will not come back that night.  I have taken gabapintin and primaproxil for years but I found you have to take them early enough that they don't really make you sleepy, If you take them later again it is worse.  So I take mine at 5 or 6 and if it is a bad night I will take an extra one before going to the porch for 5 or 10 min.   I was a DES daughter and my mother had a placenta previa with me.  I was a repeat classical C section and the incision was made thru the placenta, she had a rapid blood loss and was without a natural pulse for I think it was 20 minutes.  I did a report on it in nursing school but for some reason didn't get information on myself to see if the rapid blood loss in any way affected me.   I wonder if either of these cercumstances were responsible for my RLS.  Any thoughts?  
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