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Restless Leg Syndrome Community
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Avatar universal

restless leg syndrom

For years I have had this prickly, tingling, itching feeling on my legs and can also be in my hands and feet and arms. Doctors have always attributed to anxiety, but I was skeptical. I finally started keeping a log and I went to the doctors this morning with it and he said that you have Restless leg syndrome. After he said that I told him that my grandmother and mother have that. I always thought I might have this but never mentioned to the doctors. I will have some of the symptoms during the day, but very minimal. then right around 4-5 pm Is when it really starts when I try to rest. He said your anxiety can also stem from this becaluse you hav never known what all these strange feelings have been, and you panicked. I am starting the requip tonight and if  this helps me, my prayers have been answered. I have always feared MS and my doctors said the only symptoms you have are the tingling and prickling. YOU have had this for so long you would have developed more symptoms by now. So to put my mind at ease I am going to also have a brain MRI. I just hope to god I get some answers. the doctor doesn't expect to find anything on MRI, but wants to put my mind at ease. I have feared MS for 4 years, but really the only symptoms I have had are the tingling. I just want to lay all my fears to rest, especially my biggest one MS.
4 Responses
213375 tn?1202407400
So glad to hear that you finally have an answer to you neurological "symptoms"!  My grandmother has Parkinsons and RLS and takes Requip for both.  I have always feared the Parkinson's more than something like MS, and after questioning her about her early symptoms over a decade ago, I am now convinced that I too am developing it.  How long did you feel it coming on before you had to begin the medication?  I wish you luck on your MRI, although I'm sure everything will be fine!  I hope you felt well today and that your Requip helped to settle your legs!

Cori
213375 tn?1202407400
Forgot to mention my symptoms!  Tingling in feet, calves, and occasionally hands and forearms.  It is constant in my feet but creeps up my legs as the day progresses and when really anxious my arms and sometimes head are affected.
Avatar universal
I was worried about parkinsons too, when this first was mentioned, but then my doctor said there are many people that have rls, that are older, and never had parkinsons. Nobody in my family ever had it either. I have primary rls which means no other illnesses, I hope. I have been having these prickly tingling and itchy feeling for a couple of years. Was always tod it was anxiety. I didnt buy it. Even when I was anxiety free, I would feel this way and my feelings start at around 4-5 pm. I took my first requip last night. I felt better but still felt things. My doctor said don't expect to work over night. You start with a low dose .25 and work your way up to 1 mg. I am keeping my fingers crossed but I really feel this is what I have. I have wanted a MRI for years and now that I am finally getting It I am so scared. My doctor said he doesn't expect to find anything. I have had the same symptoms for 4 years. If you had something neurological you would have other symptoms by now. Do you think you have parkinsons, or rls? Or do you think that you have both? I know with parkinsons they shake a lot and jerk alot right? I used to be a certified nurses aid and had someone with parkinsons.
213375 tn?1202407400
I am sure they will find nothing wrong on you MRI.  From the symptoms you've describes it matches RLS perfectly, and as your doctor said, considering you've been symptomatic for so long, your symptoms would have definately progress by now.  I'm sure you'll be fine! :-)

I'm not sure what dosage my grandmother is on, but it is definately high considering the Requip is controlling both her Parkinson's and RLS.  If she misses a dosage she shakes terribly and cannot sleep because of the RLS.  She suffered from it for years before the doctors diagnosed her with it.  In fact she wasn't diagnosed until she went to her newest doctor who she was referred to for the treatment of her Parkinson's.  She described her symptoms and he instantly said it was RLS and not a manifestation of the Parkinson's as she thought.  The early symptoms she described I have too, and she remembers having them over 2 decades ago.  If she drank too much coffee or tea, or got into stressful situations she would tremble in her hands, knees, and in extremely stressful situations her neck/head would shake and she would "vibrate" internally, inside body cavity, like her organs were jumping/vibrating.  I have had these symptoms from the very beginning of my anxiety and panic disorder and can remember it happening in stressful situations as a teenager as well.  The thing that worries me the most is not only do I feel the tingling in my feet all the time, if I'm really stressed it travels up my calves, appears in my hands and forearms, and I sometimes tingle in my face/scalp, and inside my body cavity as well.  It is totally unsettling!  On the days that I am able to convince myself that it's only a manifestation of anxiety symptoms I wonder if I will ever be able to feel normal again, but most days I am convince that I have some sort of neurological disorder that will eventually lead to my death.  My grandmother at this point has a constant tremor in her hands, and just about when it's time to take her next Requip her arm from the elbow down jerks violently.  Whenever she get upset her neck and legs get involved.  I feel for her.  She hates it, but can do nothing to prevent it.  Just take her pills and remain calm as best she can.  I know I'm only 31 years old, but I fear that I will have an early onset of either of these conditions.

I wish you the best of luck and hope you felt well today!

Cori
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