I had a fever on Thanksgiving and a couple of days later developed a rash. I went to an urgent care center and was diagnosed with pityriasis rosea. I questioned the diagnosis and saw a dermatologist two weeks later who also stated it was pityriasis rosea. It spread to my scalp so I again questioned it and went to my primary care provider who found nothing wrong. On 12/27 after spending hours googling and looking up symptoms I went to an STD clinic and was diagnosed with Syphilis on 1/3 and had shots the same day to treat it. They asked me if I was having any other symptoms. I stated that I just started wearing glasses earlier in the year and haven't been wearing them and felt I should and that I was having occasional "ocean sounds" in my right year. They didn't think that I should be concerned about Neurosyphilis, but because of the hearing they allowed me to have a lumbar puncture as part of a study. I had the spinal tap on 1/9 and got the call the same night that I did show elevated levels and appeared to have Neurosyphilis. Which actually surprised me as I'm pretty sure that my syphilis could have only been in me for 6-9 months and from my understanding you typically only get Neurosyphilis after having syphilis for a long time. I began having penicillin shots on 1/10 as well as taking probenecid 4 x a day. I'm half way through treatment. Because I had three providers "miss" I'm super paranoid on my treatment. My questions are as follows:
1. Since starting treatment the sounds in the ears have improved, but I'm still extremely tired and feel that I can't concentrate as well. I've also felt as though my glands under my right side jaw are sore or a little swollen. Is this a possible side effect of the treatment, the syphilis or something else?
2. I understand that any hearing loss may be permanent, but at what point in my injections can I expect to feel better or will it take even longer?
3. I can't find anything on how successful this type of treatment is for Neurosyphilis. I will be going back every three months after treatment, but I'm curious on the success rate of the treatment. Should I be concerned that this treatment may not work?
4. I was tested for HIV at the same time as syphilis and that came back negative. There would have been no chance of being infected for at least 8 weeks prior to the hiv test done at the same time, but I see a connection with syphilis and hiv. Is it possible that I could be hiv + and that the syphilis caused a neg?
I know I'm sounding paranoid, but I'm just not finding much online and I haven't found a new doctor yet that I feel comfortable asking. I'm currently having the injections thanks to the local std clinic which are nurses and not specialist. They have been great, but just concerned. Thanks