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Testing update

Dr,

My gf got her results back for 16 weeks- negative hsv2

My results at 14 weeks were negative also.  However I learned from Terri that my taking famvir off and on during this past 14 weeks could really change my tests.  I have stopped.

I saw a urologist and he performed a cystoscope and told me I was fine.  

It seems everyone that has looked at me sees nothing.  The redness on the end of my penis goes unanswered.  It occurs often at the opening with mucous type sticky clear fluid in my urethral opening. Burning pain continues off abd on (now for 3 months) in my lower back, buttocks, legs, rectum, perineum, testicles and urethra.  Often comes and goes and bonuses around.  I have had the current symptoms of burning shocking pains in my penis and urethra for 3 days.  My lower back feels like I'm laying on a heating pad turned up.  Headaches on top of that.  

I'm just scared.  I was ok with prostatitis diagnosis.  But urologist said it looked good.  

I just did the WB at 14 weeks but now know its not accurate cause I had taken famvir 1500 mg daily for 2 weeks.  Ugh

I am sorry to bother you again but I feel so lost.  Living with this pain is troubling.  I hope her 16 week negative is pretty solid since mine isn't accurate.  I hope I learn what is causing me so much discomfort.

Thank you  
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239123 tn?1267647614
MEDICAL PROFESSIONAL
Totally irrational thinking and analysis.  Why are you so intent on disregarding the good news that I'm trying to give you???  It's as if you're angriliy insisting you have herpes, in fact hoping you do, and won't be happy until someone agrees with your irrational self diagnosis.  

"Somehow the herpes virus causes your nerves to go "haywire"...which in turn causes muscles to randomly twitch."   That is total and absolute quackery!

"Every time I goggle my symptoms herpes comes up.  Prostatitis too."  As well as at least 20 other conditions, if you will pay attention.

You are focused on your symptoms like a laser beam -- but as suggested by my comments above, symptoms are only part of the evidence to consider.  They are, in fact, the least important predictors of an HSV infection.  Did you even notice the other factors I discussed above???

You do not have herpes.  Period, full stop.  Suck it up and move on.  This thread is over.  
Helpful - 0
Avatar universal
I have had increased muscle twitching for the past few weeks.  I read about Benign Fasciculation Syndrome (BFS) on here.  Says: Doctors aren't sure what exactly is causing the twitches, but Herpes is known to be one of the triggers. Somehow the herpes virus causes your nerves to go "haywire"...which in turn causes muscles to randomly twitch. There is no known cure, but there are medicines (like anti-anxiety medicines) which can lessen the symptoms.

Now I've been on lyrica since last week and before that I was on Wellbutrin.  The area that is twitching so bad was the area that was burning on the inside of my legs, especially my left leg.  I'm a mess

Every time I goggle my symptoms herpes comes up.  Prostatitis too.  
Helpful - 0
239123 tn?1267647614
MEDICAL PROFESSIONAL
Welcome to the forum.

As seemed likely based on our previous discussion, and your exchanges with Terri on the herpes forum, the evidence is quite conclusive that you are not infected with HSV (of either type).  Why am I so confident?

1) Your blood test results:  anti-herpetic therapy probably can sometimes interfere with development of positive blood tests.  However, it usually does not; the large majority of the time, it makes no difference, especially as late as 14 weeks after onset.  And this is expecially unlikely to have any effect on the Western blot.

2) Your symptoms: not once have you described any skin lesions (blisters, sores, etc) that usually occur with initial herpes.  While HSV can cause urethritis or procitits -- i.e. infection limited to the inside the urethra or rectum -- in the large majority of cases, there also are external lesions.

3) The time course of your near continuous symptoms:  Herpes symptoms don't last so long or recur as frequently as your symptoms have done.

4) The apparent failure of famciclovir (Famvir) to improve your symptoms.  Virtually all HSV infections would improve on such treatment.

5) Your partner's test results show you were not exposed to HSV of either type.

None of these factors, by itself, proves you don't have HSV.  However, the statistical probability of being infected in the face of all of them is zero for all practical purposes.  You're going to have to continue to work with your doctors to look to other causes of your symptoms.  In any case, your problem is far too complex anyway to be addressed by any distant online expert.  Therefore, I won't have any other advice.

Best wishes--  HHH, MD
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