Holy Schmoley! They finally diagnosed you! I just popped on here to see how you all were doing, and haven't done so in soo long, and can't believe my eyes! Here's to anti-virals! Sounds like they looking at an interferon for your near future!
Aw Mrs. A :) Truly I'm glad you will finally, finally be treated.
((((Hugs))))))))
shell
Is it sort of bitter sweet? you knew in your heart that you had MS for years.
Why is getting a DX so hard for so many..
You still have the be the MAMA of Limboland because you helped so many with your post...
Your friend in the USA.. Illinois
JB
No wonder you have felt so crummy. You have a lot going on! I am so glad you have hope again! That is so important. I would expect you'll start to feel better as you detox and start getting things back into balance.
So did I understand correctly that your doc isn't planning to treat you for Ehrlichia? Lyme is a 'maybe' for you, but I would have thought she'd treat the Ehrlichia. It can be quite nasty all by itself.
It does seem confusing that you could have MS, which involves an overactive immune system, with multiple high virus loads, which suggests a suppressed immune system. It's almost like yours is suppressed and malfunctioning at the same time. No wonder doctors had trouble figuring you out. I am so glad you went to see this new doc! And you can call back the doc who thought you had two diseases and tell him he was wrong. It's more like 8-10 diseases!!
Keep us posted!
Maria,
Hugs --- I think, this is good. I know it ***** but it is good. You can FINALLY get your health to a better place and fight the issues one by one OR preferrably all at once.
I suspect the first stop would be B12 (it will give you energy and improve your immune system) then the viruses and co-infections. Baby steps thought because your body might go into shock from all this wonderful treatment now. :)
I am so very glad that you are going to be moving forward and getting your health back on track...that is fabulous news... a diagnosis, though, for you my friend doesn't really change anything except improving your health. EBV is so hard on your system...so hard...and once you get that resolved it will improve the shingles and co-infection. You have been so sick for so long, it's time to just take care of you!
Hello my friend,
I am sorry a DMD will not be an option for you but hopefully they can calm your system down enough to give you releif and treat your MS.
I am so glad you have an answer. not MS but an answer..wish you had gotten this 5 years, 11 months and 4 days sooner though.
I am doing good with DMD. My symptoms are minimal..lately have had a bit of a reving up of them..but otherwise ok..
I do not like making adjustments and changing my life for this..I got mad the other day with the heat and wanting to go to the beach but could not take the the heat...I love the heat or should I say used to but my body can not do it anymore...I sat home in the air conditioner room...looking outside and a beautifal day...I was pissed.
enough about that.
I hope you feel better soon!
Love you
Jenny
LOL, i am ok, no different then i was 2 days ago hun. At least now i have some hope.
I am not bothered about the MS diagnosis there is no disease modifying drugs for me now, its too far gone lol. I dont have RRMS its PPMS and probably has been for a while now.
All my doctor can do is support me with all the other things going on, and hopefully if we can calm all them down then the MS will its self calm down again.
At the moment it is running at level 10 and has been for 3 weeks and quite frankly i feel so ill right now I was running out of strength, but at least now she has given me a bit of hope lol.
As I have had it pointed out to me on other forums it could be that it is Lymes only and the doctor has it wrong because Lymes and MS are almost identical, BUT I have to trust her opinion on this, she isnt a young women, but very experienced and the leader in my country on Lymes, so I am assuming she knows what she is talking about and is not just after my money lol.
She is doing everything she can to get the treatment for the viruses on the NHS so it will be free.
So its onwards and upwards.
I have to say my neuro has always maintained i have had TWO diseases and that is why he was always a bit reticent about given me a diagnosis of MS because some of my symptoms never did fit right. So he was right too in a way wasnt he.
How are you anyway Jenny are you getting any relief with your DMD? I hope so hun.xx
UMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMMM
OMG.. I am ....happy you got a dx...but gezzzz what 3 others too...HOW are you doing my love?? I knew you would get an answer..I knew it...
but OMG..Really..So what do we do now..WILL you eventually start a DMD?
OMG Maria..Please take it easy..are you okay? Big hugs to you
Love you Jenny
Maria,
I'm glad that you,(our) Mama Bear is going to cont' to be around!
We wouldn't want it or have it any other way.:)
Love filled hugs and blessings,
Tammy:)
Thank you tammy, i am still going to be here though hun. Not going anywhere this is my gentle loving place. xxx
Maria,
I'm not sure as what to say!
Sad but yet being validated and having answers is a relief and blessing.
You waited far too long
Congrats on finally getting the confirmation of what you already knew(MS):(
I'm so sorry there is all the other stuff to have to deal with, as if MS is not enough and Lymes.
Detox sounds good even though it's a hospital stay. SORRY!
You need to do what you go to do just so you can get on the road to recovery and to finally have some HAPPY DAYS.:)
I will continue to lift you in prayer daily and I trust the Lord will give you the energy and stamina needed to get where you need to be.
You sure have waited a long time but yet you have been patient and very encouraging to all of us.:) Thankyou!
Now, Take care of yourself and know that we all will be praying for you and wishing the best. Your loved so much!
I'm sending BIG gentle hugs and lots of Love your way.
Tammy:)