Aa
Bladder Problems and MS
Hi
For the past year or so I've had gradually worsening problems with my bladder, at first it was just a day or so when I couldn't empty my bladder until last July when it finally failed and I had to go to the emergency room and have a catheter inserted.
Several tests later and I've just been told that it's permanent and now my choice is to learn to self-cathertiser or have my indwelling catheter.
When I asked why this had happened they said that the nerves weren't sending messages to my muscles to my sphynter (sorry can't spell - brain fog).
But when I asked why this had happened they looked at my notes and said it was probably due to my ME/Chronic Fatigue Syndrome and that's it.
I haven't been offered any further tests even though I've rad that it's important to pin point why this happned and an MRi is often the next step.
I know that ME can cause incontience problems but not retention.
My other symptoms have been getting worse this past year and I wonder if I should be seen by a neurologist.
I already take Gabepentin and Amitryline but it doesn't touch the pain I get in my feet and legs, along with rib and upper back pain that literally stops me in my tracks.
Blurred vision, electric shocks in my hands, that horrible wet feeling on my legs, tingling, sometimes I have trouble swallowing - I could go on but.
Any ideas guys?
Should I push to see a neurologist?
Are there are any other meds that can help with nerve pain?
Thanks x
For the past year or so I've had gradually worsening problems with my bladder, at first it was just a day or so when I couldn't empty my bladder until last July when it finally failed and I had to go to the emergency room and have a catheter inserted.
Several tests later and I've just been told that it's permanent and now my choice is to learn to self-cathertiser or have my indwelling catheter.
When I asked why this had happened they said that the nerves weren't sending messages to my muscles to my sphynter (sorry can't spell - brain fog).
But when I asked why this had happened they looked at my notes and said it was probably due to my ME/Chronic Fatigue Syndrome and that's it.
I haven't been offered any further tests even though I've rad that it's important to pin point why this happned and an MRi is often the next step.
I know that ME can cause incontience problems but not retention.
My other symptoms have been getting worse this past year and I wonder if I should be seen by a neurologist.
I already take Gabepentin and Amitryline but it doesn't touch the pain I get in my feet and legs, along with rib and upper back pain that literally stops me in my tracks.
Blurred vision, electric shocks in my hands, that horrible wet feeling on my legs, tingling, sometimes I have trouble swallowing - I could go on but.
Any ideas guys?
Should I push to see a neurologist?
Are there are any other meds that can help with nerve pain?
Thanks x
Hello to all, just a bit about myself so you know where I am today too. I was diagnosed with Graves Thyroid disease in 2003 and had raidiation iodine treatment for this. My thyroid has never mellowed out to say the least. I started having other issues a year ago this month double vision, numbness on my entire rite side but only complete numbness is spots. I was sent to an optic nuerologist and had an MRI in May of last year.. it showed lesions that are common with ms but also ( as all of us in limbo land know) with many other conditions.. I am and have been living in this limbo nightmare for over a year now and it landed me in a psychiatric hospital the 28th of Feb. I had just given up.. so very many things have happened over this past year or so and I just lost the will to fight.. I had a ten day stay and during that ten days I was given different types of meds to help my vertigo, balance, nausea and the never ending pain both physical and mental.. I am now on remeron (mirtazapine) and it has changed things quite a bit.. In fact today is the first day that I have really been down at all since I came home. I also take antivert (meclizine) for the vertigo and it is the miracle drug for me. I too take 5mg to sometimes 10 mgs of diazapam almost daily.. it was first given to me for the the tremors I suffer from mainly upper body but entire upper most of the time. I now take it whenever I have an appt or have to write or have my weekend with my two youngest children.. yes.. my weekends with my babies.. Whatever they end up calling what is happening to me has taken my life away!!.. I cannot see to drive anymore.. cannot walk without awful pain, and the worst of all!!! My x husband and I decided due to my deteriorating health that our two young boys now 13 and 12 should live with him. This was the hardest thing over all that I have dealt with over this past year or more!! Today is a down day but i really dont have as many anymore.. I just wanted to post here to let all of you know that I feel your pain.. both physically and emotionally!! Many hugs to you all!! Terrie
Hi i think you should see a neurologist.
I know several people including my daughter with M.E. and non of them really get problems with bladder apart from my daughter who has to go all the time but she takes tablets. She has never had a UTI once lucky girl.
Urinary retention if there is no other reason for it I.E. stones etc or kidney problems is usually neurological.
I too have the pain in my feet and legs which is nerve pain not muscle pain.
To be honest i havent posted for nearly 2 weeks because my hands are arms are now comprimised and it has been a nightmare for me but thankfully i have felt a bit better in the last 2 days.
See your GP and ask to be referred. IF you can and they agree and if you can afford it see the neurologist on the first visit privately. It cost me 80.00 but its gone up to 105.00 now but you get 25minutes and they take you seriously.
Good luck. P.S. I have treid all the tablets for nerve pain but the best one for me I found is diazepam. I take one 2mg at night if the legs and feet are really bad and my doctor is happy for me to continue as 2mg shouldnt be a problem with addiction. Mind you I dont care if i do get addicted to 2mg of diazepam in the grand scheme of things if it helps my pain lol.xxx
I know several people including my daughter with M.E. and non of them really get problems with bladder apart from my daughter who has to go all the time but she takes tablets. She has never had a UTI once lucky girl.
Urinary retention if there is no other reason for it I.E. stones etc or kidney problems is usually neurological.
I too have the pain in my feet and legs which is nerve pain not muscle pain.
To be honest i havent posted for nearly 2 weeks because my hands are arms are now comprimised and it has been a nightmare for me but thankfully i have felt a bit better in the last 2 days.
See your GP and ask to be referred. IF you can and they agree and if you can afford it see the neurologist on the first visit privately. It cost me 80.00 but its gone up to 105.00 now but you get 25minutes and they take you seriously.
Good luck. P.S. I have treid all the tablets for nerve pain but the best one for me I found is diazepam. I take one 2mg at night if the legs and feet are really bad and my doctor is happy for me to continue as 2mg shouldnt be a problem with addiction. Mind you I dont care if i do get addicted to 2mg of diazepam in the grand scheme of things if it helps my pain lol.xxx
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