hope u will feel better soon <3
Hi i am seeing breakspear clinic but not until 24th May that is as soon as I can get in. The doctor is a specialist in all things Lyme and other diseases.
I hope you have had a good time with your daughter. Thank you for taking the time to copy that out for me, its very interesting. xx mariax
Hi Maria!
I'm still down in Toronto at my daughter's and flying out tomorrow.
So, I have copied an older reply that includes some pertinent info:
"Some underlying infections can lie dormant for years.
First they enter the body during some "unfortunate" event, ranging from a
a hike in the forest and getting Ticked (Borellia or commonly called Lyme)
having sex with your unsymptomatic partner that returned from a mission with the Armed Forces ( Golf War Syndrome and Stealth Pathogen/Mycoplasma Fermentan-Incognitus) or playing with a pet -and one doesn't have to be bitten necessarily, it can be transmitted by fluids like cat's saliva on the fur and just petting and afterwards rubbing one's eyes! ( Bartonella or other coexisting infectious agents).
Most people are unsymptomatic or their original symptoms gradually disappear, usually following some short term antibiotic treatment.
It's usually the immune system that kicks in to take care of things until
the immune system gets weakened by excess stress- this could mean a lot of things like emotional events, traumas, illnesses, accidents etc.
There's a critical point where the scale tips and then this is the trigger for the infectious pathogen to get activated. Once activated it starts feeding off sterols from the host's cell membrane-as cholesterol is their preferred fuel.
This weakens the cells structure and impacts on the mitochondria -energy production-until apoptosis or cell death. Eventually the pathogens take over
entire organs or systems this way. Of course the most vulnerable and weakest parts of the body get affected first.
The problem with all this is that these pathogens are extremely invasive
using cellular membrane to disguise themselves as regular cells, escaping detection from most tests and the immune system as well!.
This explains the negative results that patients are getting. It is too easy for many physicians to claim that there's nothing wrong with the patient and it is in all their head!
One more reason to deal with specific Labs, specific tests and expert doctors. I would recommend an infectious disease specialist who has the LLMD designation. This is very important as the IDSA dictates the protocol and policy regarding most of these -difficult to detect- infectious diseases.
And the Protocol is going against the health and well-being of the patients,
suffering from chronic autoimmune, neurodegenerative and undiagnosed conditions for various political and financial interests
Most MDs that might be knowledgeable in this field WILL NOT risk their careers, breaking protocol. So the patient is riding the medical merry -go-round from test to test from specialist to specialist.
Unfortunately, most patients get multiple medications to manage all their symptoms and never get well!
Here in Ontario there's not even ONE Lyme Disease Specialist, because
The College of Physicians and Surgeons reprimands every Doctor that
treats Lyme and Mycoplasma Infections beyond the "recommended"
short course of antibiotics according to their protocol.
The last LLMD who I recommended to someone in Ontario, was going under the name of Dr. B for anonymity between his Lyme patients.
Well now, as of November he is no longer treating Lyme Disease patients
and I heard that he's been muzzled!
I do hope you find some answers. There are still a few good doctors that care more about their patients, than the system and the policies.
Next time I will explain more about my situation.
You are welcome to comment or ask any questions and if you prefer you can pm me directly"
Wish you well.
Niko
dear maria,
if you are able to get tested for bartonella, that would help determine whether you have cat scratch disease. most lyme docs will test for that as a co-infection of lyme disease. have you had any rashes, in particular after the more acute onset of your illness? i think bartonella can cause a vertical, stripe-like rash in some individuals.
the folks at breakspear could likely order that test for you. i don't think your regular GP will be able to have the proper testing done, but i could be totally wrong about that.
xoxoxo
binx
I hope you can get into the private clinic soon. It sounds like those tests are almost certain to come back positive but maybe such a long course of antibiotics would be likely to get rid of something out there like CSD, or something we haven't even thought of, too.
I feel like I may be grasping at straws also, hoping for something treatable like Lyme's or something similar, after 3 doctors now have told me they think it is MS. But without the proof in the MRI, maybe it's not!
And especially in your case, they have run so many tests for the normal stuff, it has gone on so long without a remission, etc. It MUST be something out of the norm or they should have figured it out by now.
You are excellent at this kind of research so I hope you find something to finally get this puzzle to make sense!
Valerie