I have been on medhelp for a few years but just discovered this site today. I'll make a list of my symptoms, maybe someone can shed some light on a possible diagnosis??
2002: i get my first stomach pain problems. Basically very intense pain in my upper abdomen, rolling on the floor in pain. With or without intense reflux that goes up to the teeth, so strong it can mimick a toothache. Happened several times between 2002 and 2006, I got an endoscopy that showed nothing at all.
Over the year, the pain will pop up here and there, I can ho months without it.
But in the last past couple of months, it has come back quite often. Generally at night, but can be anytime. Pain is in the adomen, sometimes also on the right side like under the rib cage.
I recently got a colonoscopy: all negative. Doctors have no idea what causes the pain/reflux. I take painkillers when I have these pains.
2003: out of the blues I get severe migraines with aura, lasted 10 days. Seing yellow stars in my eyes when closed, very weird! The migraines went away as suddenly as they had appeared. They reappeared here and there, with the aura a few times, but only for a day. The last one was in 2006. I has 'regular migraines' for a few months after that, here and there but have migraine free for quite a while now.
i had one MRI done at the time: it showed one lesion, the doctor said it could be from the migraines or possibly MS. As the migraines went away, I forgot all about that.
2007: I got a miscariage, d&c. A few days later I had 3 weeks of intense fatigue, never had that before or after when pregnant. I woukd sleep all day. Then it went away but about a month later I had my first 'neurological flare up'. I had numbness, tingling and a cold feeling in my right leg and right hand. For a month I could barely drive. It got better but now my right leg is always colder than my left one. If I tried to run very fast, like I have had to make quick flight connections a couple of times: my right leg becomes instantly totally numb, a dead weight and it makes it hard to run.
My right hand is generally ok, but last year I has bad sinusitis and at night my right hand would be as cold as if I had plunged it into a bucket of cold water. Once the sinusitis was cleared up, it got back to normal.
I know that the miscarriage caused all these weird neurological problems!
After the big neurological problems started, I had 2 MRI (march 2008), brain and spine: they showed nothing abnormal...
The neurologist sent me last year to see a vein doctors: no,my legs circulation is perfectly fine. She had said to come back see her if the vein test was normal but I have not gone back, fed up.
My intense and recurrent stomach pain/relux lately has me wondering if this could be what's called the MS hug??
Sorry for this long post! ... Anyone has any suggestion of what could be going on with me?
BTW I was tested years ago for Lyme disease, celiac disease: negative.