Vitamin D deficeincy

[evo123]

I am vitamin D (amongst others) deficient.  Can any tell me about this and the causes, symptoms and effects it has on the body.

Kind Regards

[MrsAristotle]

Your family have been through the mill though haven't they.

What makes me so mad about all this is the government want you out working and when you get sick through no fault of your own they penalise you and dont support you. Its madness that you have to stop your daughter going to nursery.

The NHS dont seem a very good employer to be honest. My daughters girlfriend has Rheumatoid A, and gets really bad days, she loves her job she is a physc nurse. She cant do the 12 hour shifts she used to do and can only manage about 4/5 hours and they are talking about sacking her for gods sake, she has worked in the same place for 16 hours, talk about supporting people.

I hope you get DLA its a nightmare. I got mine but a few of my friends didnt and had to fight for it.

Vitimin D is very important for your health.

The problem is the doctors dont seem to bother with incidental findings. On my MRI spinal they found NODES which can cause problems, and told me there was nothing on there simply because it wasnt nuerological bizarre or what.

Anyway if you can this week the sun is shining. Sit outside about 1pm if your able and get some natural sunshine as a boost its better then supplements.

Hugs Mariaxx

[evo123]

Thank you for the links, they are very interesting.  

I never knew there was so much relevence in Vitamin D.  I wonder why not one of my doctors has mentioned to me about my low count or have looked into correcting this.  I ordered copies of all my test results and these showed my Vit D count (amongst others) as low.

[evo123]

Thank you for the compliment on my daughters, they are beautiful and loving - they keep me fighting this.  They have themselves fought their own battles too.  My eldest has a duplex kidney sytem with uretrocele and reflux. We nearly lost her as a baby as she was undiagnosed and ended up with septacemia through a UTI.  She now has scarring to her kidneys but is doing great now and is off all her meds.  My youngest has a tethered spinal cord and had spinal surgery this year to free her cord and is doing excellent now x They are all now being assessed for Ehlers Danlos syndrome as they all have hypermobile joints and blue scelera.  

Thank you for the link it is very informative.

I have applied for DLA and am awaiting a decision.  I work for the NHS and have been unable to work since may so my ssp stops in November, so my childcare element of child tax will stop also meaning my 1 and 2 year old will have to be taken out of nursery.  I really do not want to give up my job as I love it and it fits in great around my children but I am starting to feel I have no choice.

I just want to say that many people will benefit from this forum and from your help and kind words x

evex

[PlateletGal]

This is what researchers are now seeing with people who are chronically ill. We may have a low or even low normal vitamin D result and a higher (usually within normal range) vitamin D 1,25 hydroxy level.  



Vitamin D metabolites as clinical markers in autoimmune and chronic disease.

Journal: Ann N Y Acad Sci. 2009 Sep;1173:384-90. Authors: Blaney GP, Albert PJ, Proal AD.

Affiliation: Stillpoint Centre, Vancouver, British Columbia, Canada.

This was e-mailed to me through co-cure, an organization that keeps physicians, researchers and patients in on the latest research for (mostly) Chronic Fatigue Syndrome and fibromyalgia.

For a link to this article on vitamin D deficiency and DYSREGULATION... check out:

http://www.ncbi.nlm.nih.gov/pubmed/19758177




Reversing Bacteria-induced Vitamin D Receptor Dysfunction Is Key to Autoimmune Disease:

http://www.ncbi.nlm.nih.gov/pubmed/19758226


Dysregulation of the vitamin D nuclear receptor may contribute to the higher prevalence of some autoimmune diseases in women:

http://www.ncbi.nlm.nih.gov/pubmed/19758159

[MrsAristotle]

Hi and welcome to the group. Wow you have really been through the mill havent you. I love your photographs what a beautiful family.

My friend had POTS with fibromyalgia and other has POTS with M.E.

I see you GP is now looking at M.E. to explain your symptoms. I have posted on the links thread (on this group its a seperate thread for any useful websites) a brilliant web site all about M.E. It can affect so many things in your body far too many to mention here but a read from the link would really help you understand this illness.

As to Vitimin D defiency some of the symptoms you are displaying could be from a low Vitamin D. I have found a very good fact sheet all about Vitamin D. It might be a bit ready with a lot of statistics but in the main it really does explain all about it.

http://ods.od.nih.gov/factsheets/vitamind.asp

My neurolgoist told me the best way to get your Vitimin D is to just sit outside if you can at lunch time and get at least 20 minutes sunshine on your face as its the sunshine that really converts into Vitimin D. Lack of Vitimin D can affect your bones.

You also have to be careful not to overdose on Vitamin D as too many supplements can become toxic. Its learning to get a balance.

I will say what I told my daughter. She had a hysterectomy and very quickly felt well and was off doing all kind of things and forgot to rest she has 2 boys.

You have been through the mill and have 3 young children to care for and had Csections too.

You must rest and pace yourself.

Your in the UK if your mobility is affected have you applied for DLA? If not you should do so, as this can open doors for more money to help you with your family, you know like a cleaner etc.

Have you had the occupational therapist to assess you for help in the home? I did and they put rails up, bath lift all kinds of things to help me.

There is help out there for you if you dont know how to get them please let me know and I will give you telephone numbers ok.

You are a very positive person and I am sure you will get through this ok. Its just knowing what you are fighting against that would help.

Anyway I hope the link helps you I found it very informative.

Lots of hugs Mariaxxxx