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What scares you most about your future in Limboland?
Probably everyone on this forum is in the same boat, ill but not knowing why, some of us guess what it might be. Whatever we all have to deal with horrid symptoms causing disability & fear of the future.
Personally my worst fear is loosing my eye sight, if I couldn’t see I wouldn’t feel in control of my self, if I couldn’t use the computer I would feel isolated from understanding friends.
I am at an age when being less mobile is pending anyway; I don’t have family or a career to worry about.
Personally my worst fear is loosing my eye sight, if I couldn’t see I wouldn’t feel in control of my self, if I couldn’t use the computer I would feel isolated from understanding friends.
I am at an age when being less mobile is pending anyway; I don’t have family or a career to worry about.
I have had many fears since my symptoms became a daily problem. How much longer will I have the use of my legs, why does everything overwhelm me when I'm usually such a strong person, why can't I think, will the fatigue finally get so bad that I won't be any good to anyone, and on and on and on.
But, as of last week, my biggest fear has changed. My husband was dx with "Mild Cognitive Impairment", he is only 55, and was actually dx on his birthday, Dec 2, last Wed.
Well, as always, I googled, and was very unhappy about the things I read.....ie.....preclinical dx given by neuro's who suspect alzheimer's, 50% of people given the MCI dx will progress to alzheimer's in 5 yrs, and on and on.
Now my biggest fears are how many good years does my husband have, how am I going to support us financially since I haven't been able to work since 2007? What is going to happen to us?
Needless to say, I don't think I've ever been this scared. I spent most of the last 4 days in a paralzed depression, but am getting better now. I know I have to find a way to deal with this, on top of all my health problems, but finding that way will be a major undertaking.
Wishing you all a very Merry Christmas and praying that all your symptoms will take a Christmas break!!!
God Bless,
doni
But, as of last week, my biggest fear has changed. My husband was dx with "Mild Cognitive Impairment", he is only 55, and was actually dx on his birthday, Dec 2, last Wed.
Well, as always, I googled, and was very unhappy about the things I read.....ie.....preclinical dx given by neuro's who suspect alzheimer's, 50% of people given the MCI dx will progress to alzheimer's in 5 yrs, and on and on.
Now my biggest fears are how many good years does my husband have, how am I going to support us financially since I haven't been able to work since 2007? What is going to happen to us?
Needless to say, I don't think I've ever been this scared. I spent most of the last 4 days in a paralzed depression, but am getting better now. I know I have to find a way to deal with this, on top of all my health problems, but finding that way will be a major undertaking.
Wishing you all a very Merry Christmas and praying that all your symptoms will take a Christmas break!!!
God Bless,
doni
I tend to look at life/death a bit diferently.I am not afraid of death in the least.I dont really know why but I never have been. I mean ofcourse it's a possibillity .But its always a possibillity and has been since we were born.If it is my time to go then it's my time. After I found out about the brain lesions is when I sort of had an epiphany.In a way I guess I have found inner peace and acceptence of whatever may be going on with me. I still have worries and concerns about the future of my family but all I can do is love them to the best of my abillity. I know that changing the way I look at myself and my situation has made a huge difference in my life. Depression and sadness
can make you feel awful even if you are not ill. So why not take a look at the positives and focus on what you can do. I know that may sound cheesy but it works for me....
Take Care , Theresa....
can make you feel awful even if you are not ill. So why not take a look at the positives and focus on what you can do. I know that may sound cheesy but it works for me....
Take Care , Theresa....
I try not to worry about the future as I've had a lot taken away from me. I had to leave work 11 years ago due to vision loss, leg problems and fatigue. I'm housebound unless someone can take me out in a car and push my wheelchair.
I now have swallowing problems daily and really fighting to keep weight up. After 11 years in limbo due to my Dad's problems they are now looking at hereditary/ genetic disorders. My biggest worry there is my daughter.
My mum has another neuro disorder, also a wheelchair user, she is getting frailer and i'm as much use as a chocolate candle.
I now have swallowing problems daily and really fighting to keep weight up. After 11 years in limbo due to my Dad's problems they are now looking at hereditary/ genetic disorders. My biggest worry there is my daughter.
My mum has another neuro disorder, also a wheelchair user, she is getting frailer and i'm as much use as a chocolate candle.
Hi,
Right now ..not knowing...and I would have to agree with SickMomma (Hi) If I am not being taken seriously and being treated soon enough for whatever is wrong..I'll be pissed.
JibJen
Right now ..not knowing...and I would have to agree with SickMomma (Hi) If I am not being taken seriously and being treated soon enough for whatever is wrong..I'll be pissed.
JibJen
My biggest fear is that my mystery illness will kill me because I didn't get treatment soon enough (because no one knows what's wrong with me).
They're fairly sure its an autoimmune disease of some sort, most likely lupus or something close to it. And I keep coming across stories of people who took 5, 10, or more years to get their lupus diagnosis and ended up dying within a year of Dx because it had progressed so far. Ugh.
My daughter turns 5 later this month and periodically asks me when I'm going to die. I tell her I'm not going to die until she's an old lady. And I hope I'm telling her the truth.
They're fairly sure its an autoimmune disease of some sort, most likely lupus or something close to it. And I keep coming across stories of people who took 5, 10, or more years to get their lupus diagnosis and ended up dying within a year of Dx because it had progressed so far. Ugh.
My daughter turns 5 later this month and periodically asks me when I'm going to die. I tell her I'm not going to die until she's an old lady. And I hope I'm telling her the truth.
My furry babies are my life. I have a picture of my Stormy girl in my wallet but not my husband..LOL
I really love dogs and animals in general.My dream would be to live out in the boondocks agin and have a sanctuary.
I have not shown dogs but I did show Arabian horses when I was younger.Growing up we had horses, chickens,cows,pigs,cats and ofcourse dogs.Those were some of the happiest times in my life.it's funny because I can remember all that stuff with no problem.....
Lets hope we all get some answers soon!
Please Take Care,Theresa
I really love dogs and animals in general.My dream would be to live out in the boondocks agin and have a sanctuary.
I have not shown dogs but I did show Arabian horses when I was younger.Growing up we had horses, chickens,cows,pigs,cats and ofcourse dogs.Those were some of the happiest times in my life.it's funny because I can remember all that stuff with no problem.....
Lets hope we all get some answers soon!
Please Take Care,Theresa
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