Aa
Back from my appointment
Hi Everyone,
Well, I am back from my appt.
I told him I was feeling better but I still had numbness and tingling but it is less frequent than last time I saw him and is more of a come and go basis....
My nuero said thre was no change on my MRI from last one done in June 2009
I asked if he thought this was MS and he said no but it will be a wait and see kind of thing and we need to continue to track my sensory symptoms ..He said he wanted to see me in 2 months and start weening me off my migraine meds to see if there is a corralation between the 2...
I don't know if this still leaves me in limbo..
JibJen
Well, I am back from my appt.
I told him I was feeling better but I still had numbness and tingling but it is less frequent than last time I saw him and is more of a come and go basis....
My nuero said thre was no change on my MRI from last one done in June 2009
I asked if he thought this was MS and he said no but it will be a wait and see kind of thing and we need to continue to track my sensory symptoms ..He said he wanted to see me in 2 months and start weening me off my migraine meds to see if there is a corralation between the 2...
I don't know if this still leaves me in limbo..
JibJen
Hi binx,
Any Friday is a good Friday..but Thanks my day was good. I am so sorry to hear that you are unable to work..I wish docs could get on the same page...i wish i could get on the same page as my doc....
We do have alot of good medical facilities here..I think this is my next move depending on outcome of next appt. in 2 months....it's awesome you are a New Englander at heart! Love the Pats too..but they really fouled it up this year!!!! oh well next year.. i have my TV back now...hehehhe My husband has season tickets for the Pats and I love when he goes to games because it is my quiet time to watch a movie or relax alone...
Well binx...have a great weekend..be well ...
the fight goes on..and on......................and on
Bye for now
JibJen
Any Friday is a good Friday..but Thanks my day was good. I am so sorry to hear that you are unable to work..I wish docs could get on the same page...i wish i could get on the same page as my doc....
We do have alot of good medical facilities here..I think this is my next move depending on outcome of next appt. in 2 months....it's awesome you are a New Englander at heart! Love the Pats too..but they really fouled it up this year!!!! oh well next year.. i have my TV back now...hehehhe My husband has season tickets for the Pats and I love when he goes to games because it is my quiet time to watch a movie or relax alone...
Well binx...have a great weekend..be well ...
the fight goes on..and on......................and on
Bye for now
JibJen
hello again, jibby jen,
i hope your friday went a little better for you and that you get some good relaxation time this weekend. i get the same prickly cold feelings in my hands and feet, primarily on my left side, and it is really troubling sometimes. i haven't had the pain you describe though. is there anything that gives you relief, or do you just have to wait it out?
i am not able to work, nor have i been for the past year which has been pretty devastating to my little family and is the source of much stress which is something i have been advised to avoid at all costs. as far as a diagnosis goes, my rheumatologist and neuro-ophthalmologist both said that since my thyroid isn't to blame, MS & lupus have been taken off the table, and every single blood test they run has come back normal, i am probably dealing with an autoimmune process triggered by a viral or bacterial infection that has affected my central nervous system and is also causing small vessel vascular inflammation in my optic nerves. we'll see how they proceed now that the last batch of blood tests my rheumie ran further indicates that i am in *perfect health* on paper. i am guessing the next step will be to start looking for this mystery virus or bacteria, but who knows?
as far as the multiple docs are concerned, i guess it has its pluses and minuses. the neuro-ophthalmologist has been talking with both the rheumie and the neuro, but the latter two haven't communicated yet which i think is too bad. i have to fill one in on what the other is advising and it's hard enough for me to keep track of stuff on my own, let alone communicate it in a digestible form to them.
this is just a thought, but perhaps if your neurologist ultimately comes up empty for you, maybe you ought to consult with a rheumatologist since some autoimmune functions can cause neuro-type symptoms? you have some phenomenal medical schools/teaching hospitals in MA and the rest of new england that might be a good resources for you. (i was born near springfield and am a new englander for life. go patriots!)
i hope you have a really nice weekend.
take good care,
binx
i hope your friday went a little better for you and that you get some good relaxation time this weekend. i get the same prickly cold feelings in my hands and feet, primarily on my left side, and it is really troubling sometimes. i haven't had the pain you describe though. is there anything that gives you relief, or do you just have to wait it out?
i am not able to work, nor have i been for the past year which has been pretty devastating to my little family and is the source of much stress which is something i have been advised to avoid at all costs. as far as a diagnosis goes, my rheumatologist and neuro-ophthalmologist both said that since my thyroid isn't to blame, MS & lupus have been taken off the table, and every single blood test they run has come back normal, i am probably dealing with an autoimmune process triggered by a viral or bacterial infection that has affected my central nervous system and is also causing small vessel vascular inflammation in my optic nerves. we'll see how they proceed now that the last batch of blood tests my rheumie ran further indicates that i am in *perfect health* on paper. i am guessing the next step will be to start looking for this mystery virus or bacteria, but who knows?
as far as the multiple docs are concerned, i guess it has its pluses and minuses. the neuro-ophthalmologist has been talking with both the rheumie and the neuro, but the latter two haven't communicated yet which i think is too bad. i have to fill one in on what the other is advising and it's hard enough for me to keep track of stuff on my own, let alone communicate it in a digestible form to them.
this is just a thought, but perhaps if your neurologist ultimately comes up empty for you, maybe you ought to consult with a rheumatologist since some autoimmune functions can cause neuro-type symptoms? you have some phenomenal medical schools/teaching hospitals in MA and the rest of new england that might be a good resources for you. (i was born near springfield and am a new englander for life. go patriots!)
i hope you have a really nice weekend.
take good care,
binx
Hi Binx,
I wish you well on Monday with your appointment... I have to admit I am a little jealous that you have more doc's working with you.....than me....does it seem to have more benefits having more opinions or more confusing? I do wish you well...I know what you mean about good and bad days all to much...Are you able to continue working? (I must go back and read your posts forgive me) Are they suspecting any particular dx. for you?
Thanks for understanding my "weirdness" I am making a list ..a running list.. as we speak (type)..
I am sorry to say I had a crappy day with my hand...my tingling has turned to prickling pain in my hand and it is cold as ice and still some odd sensation in leg ...but tomorrow is Friday..Thank God!!!
Be Well!
Jibby Jen (kinda catchy)
I wish you well on Monday with your appointment... I have to admit I am a little jealous that you have more doc's working with you.....than me....does it seem to have more benefits having more opinions or more confusing? I do wish you well...I know what you mean about good and bad days all to much...Are you able to continue working? (I must go back and read your posts forgive me) Are they suspecting any particular dx. for you?
Thanks for understanding my "weirdness" I am making a list ..a running list.. as we speak (type)..
I am sorry to say I had a crappy day with my hand...my tingling has turned to prickling pain in my hand and it is cold as ice and still some odd sensation in leg ...but tomorrow is Friday..Thank God!!!
Be Well!
Jibby Jen (kinda catchy)
hi jibby jen (i like that!)~
thanks for inquiring about me. i am just treading water here having my good days and bad days, waiting for my new medication to show signs that it's helping. i also have a neurologist appointment on monday, so we'll see what he says about the rheumie's theory and approach. i'd like to think the docs communicate with each other, but from what i have experienced, that is not generally the case.
you know, i don't think your questioning things is a bad thing at all. like you said, it would be good to have your thoughts all written down so that when you see your neuro next time, you can get some answers. someone has to be thinking about this stuff! and if it isn't the doctor, it might as well be you.
hope you're having a good day, jenny.
best wishes,
binx
thanks for inquiring about me. i am just treading water here having my good days and bad days, waiting for my new medication to show signs that it's helping. i also have a neurologist appointment on monday, so we'll see what he says about the rheumie's theory and approach. i'd like to think the docs communicate with each other, but from what i have experienced, that is not generally the case.
you know, i don't think your questioning things is a bad thing at all. like you said, it would be good to have your thoughts all written down so that when you see your neuro next time, you can get some answers. someone has to be thinking about this stuff! and if it isn't the doctor, it might as well be you.
hope you're having a good day, jenny.
best wishes,
binx
Thanks Maria,
I have not heard from Stormy eaither..have not seen her around..last I heard was of her LP and starting to feel badly..hope she is okay...
Yah now..I agree wait and see for what...I flunked at this appointment...didn't ask any questions...I was not as prepared as my last one.....(idiot)
The no MS was because he saw no NEW lesions on MRI which can not give me a dx of MS at this time..Beleive me I am not wishing for this to be..the wait and see part leads me to beleive wait and see what happens until perhaps I need I need another MRI...or I get worse symptoms ????I don't know
This is what I don't get and what MAY be a little confusing for me...It is apparent that I have had similar symptoms in the past years (numbness and tingling) and have had MRI's for them..yes I have migraines I do not deny BUT symptoms were never associated with them..I have had increasing lesions as well throughout the years as shown on MRI's and also indicates demyelination....so....can you really say that because I don't have any NEW lesions at this exact point in time...even though past MRI's were suggestive of MS that it is NO MS? OR is what I have been experiencing the last 6 mnths my first apparent symptoms and he needs more to confirm??? (See here I go aagain questioning things) I really need to stop this.....
My next appointment is going to be to stop my migraine meds...in the meantime I am going to try and focus on just logging on all my symptoms and trusting hiim he is right on this....AND maake a list of questions that I did not ask the last time.....
I hope you feel better Maria - big hugs right back at ya!!!!
Thank you all for listening to me babble on ........Binx how are you getting aong?
Jibby Jen
I have not heard from Stormy eaither..have not seen her around..last I heard was of her LP and starting to feel badly..hope she is okay...
Yah now..I agree wait and see for what...I flunked at this appointment...didn't ask any questions...I was not as prepared as my last one.....(idiot)
The no MS was because he saw no NEW lesions on MRI which can not give me a dx of MS at this time..Beleive me I am not wishing for this to be..the wait and see part leads me to beleive wait and see what happens until perhaps I need I need another MRI...or I get worse symptoms ????I don't know
This is what I don't get and what MAY be a little confusing for me...It is apparent that I have had similar symptoms in the past years (numbness and tingling) and have had MRI's for them..yes I have migraines I do not deny BUT symptoms were never associated with them..I have had increasing lesions as well throughout the years as shown on MRI's and also indicates demyelination....so....can you really say that because I don't have any NEW lesions at this exact point in time...even though past MRI's were suggestive of MS that it is NO MS? OR is what I have been experiencing the last 6 mnths my first apparent symptoms and he needs more to confirm??? (See here I go aagain questioning things) I really need to stop this.....
My next appointment is going to be to stop my migraine meds...in the meantime I am going to try and focus on just logging on all my symptoms and trusting hiim he is right on this....AND maake a list of questions that I did not ask the last time.....
I hope you feel better Maria - big hugs right back at ya!!!!
Thank you all for listening to me babble on ........Binx how are you getting aong?
Jibby Jen
that is a good question, maria--where is theresa?
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