m.s i thnik but no dxs

[momentoman]

Dear sir/madam,
                              How do I start this e-mail well to begin?  Last year I suddenly got this episode of really itchy hands with confusion and the feeling of been drunk. Went to my G.P who told me I had stress. At this time I started having double vision. Was hospitalized in the local hospital and was discharged with sinuses.  (MRI and ct brain fine)

Saw E.N.T Consultant    all fine ECT.
    
During the twelve months had an episode of urine urgency, went to G.P laughed done bloods nothing showed up so he told me it was all in my head and there was nothing he could do for me. This lasted 7 wks or so.

About 7 weeks ago I started having very bad halo’s and double vision again, with really bad cognitive difficulties.  Started forgetting things and making mistakes, at work.  Cognitive ability  had recovered enough since the last episode  that I could work. But had I begun to notice  that I was making mistakes with money and was forgetting things again.

Went privately to bons secours in Dublin, to see a (Neurologist) was taken in had mri came back clear.  Saw Psychiatric consultant  for 2 hours   who said I was one hundred percent. Had all kinds of tests done except M.R.I  of c spine and LP.
This has cost me allot of money, Went back to see neurologist who flicked the results of the e.e.g and M.R.I across at me saying he could’nt find anything. And that my Problem was psychosomatic, this coming from someone who has never done a neurological examination of me. As part of been off from work I had to see the company medical doctor who did do neuro exam and said I definitely showed signs of M.S. And that I should prepair myself to that end. I asked her if it could be psychosomatic and she said the deep muscle twitching in my back are not something my mind could do. Also she found a tremor in both arms.
My wife who is medically trained has also felt muscles twitch and go into spasm in various parts of my body. If I walk or do any exercise my arms and legs become extremely heavy and my afternoons are filled with fatigue that I have never experienced in my life.  Numbness and lack of sensation, in my hands and feet when I drive. Neurologist says there’s to many symptoms to be M.S. And that I need to see two of his expensive friends a psychiatrist and Neurologist , I feel its a bit of money spinner. And I know my minds ok and also my wifes.



can i have clear tests and still have M.S

[MrsAristotle]

Like your ID LOL.

Well another person told they are suffering from psychosomatic or anxiety disorder etc.

WHY would you all of a sudden start with that anyway. Mostly people who have psychosomatic disorders have had lots of awful things going on in their life and the physical illness is their way of coping with things. You dont sound like that.

Before this started though did anything unusual happen, did you have a virus, accident anything that could have caused something to be triggered off?

Now to MRI. Well yes you can have clear MRI for years and then BLAM you get one with lesions.

You might find that your MRI is too early to show up lesions in the brain IF THEY ARE IN THE BRAIN THAT IS. Lots of lesions are found in the spine, but then they are tricky little things too as they can hide.

I think on my thread with links there is a link all about clear MRI and lumbur punctures you might find interesting.

I have had lesions on my spinal MRI twice and still not diagnosed I even had a positive VEP which shows I had optical neuritis and demylination event still no diagnosis.

Why because I had a lumbur puncture and it showed inflammation in the blood as well as the CNS so this is classed as a negative result for MS.

As to too many symptoms to have MS thats hysterically funny, some people have so many symptoms with DIAGNOSED MS that you need more than an A4 piece of paper to write them on.

http://hcd2.bupa.co.uk/fact_sheets/html/multiple_sclerosis.html#2

I have the fatique in the afternoon about 3pm i can set my clock to it. When I worked my administrator found me asleep one afternoon at my desk it was 3.05 LOL.

Any numbness in the extremities should be investigated it is usually neurological or autoimmune or disc problems.

I am not sure how does your medical situation work in Dublin?

You need a spinal MRI really but I would wait for that as it could be too early to show lesions yet.

By the way I get the itching hands and toes its like having really bad chill blains and when it comes it drives me nuts.

After my first MRI I waited over 6 months for the next one which showed some subtle change so it is probably a good thing to hang on for now unless you get something else which is more scary in the meantime.

You are in good company with your partner and I am sure she can keep an eye on you WHAT I am bumbling on about really is it can take years to diagnose MS I have been trying now for 3 years and friends on here a lot longer than that.. and we are still here to tell the tale.

You are right too the neurolgoist needs to do proper tests on you I sometimes despair at the cavalier attitude of these so called experts.

So well after rambling on to answer your question again YES YOU CAN HAVE MS WITH CLEAR MRI.

5% of people with MS get clear results. If you think at the last count there are about 100,000 people in UK with MS there are a lot of people out there with MS with clear MRI AND TESTS. (If my math is right).

Mariax

[supo_uk]

Hi

We all can understand what you are going through in some way.

My two cents worth:

Were you *told* your MRI was clear/normal? What did the radiologist report say? My mantra is:

get copies of all  your medical records from all sources.

if someone thinks there is something seriously, physically wrong caused by physical problems they are rarely wrong

Welcome to the group.

[MrsAristotle]

Oops your right i should have told him to get copies after the fiasco with mine.

xxxx maria

[momentoman]

thank you for your comments,