Aa
HUBBY UPDATE
Well he has been out since Tuesday, and I am trying so hard to make him eat and keep him on a proper diet for gallbladder infection but he is hard work. He has been asleep for 2 hours on the sofa, just woke up and now is so tired he wants to sleep again. IS THIS NORMAL? He seems to be just sleeping the day away.
I have realised this last 2 weeks since he got sick how ill I am really, and I am truly worried about what the future holds for us both now because if he keeps getting sick I know I cannot care for him or cope with him being ill.
I have tried really but I feel so ill right now.
I had a funny turn yesterday when I thought I was going to have another Transient Global Amnesia attack like i did in January 2007 when I lost about 3 hours of my life. This was brought on my stress the doctors think.
Yesterday I was having weird memory flashbacks and stuff going on just like when I was coming back round from my TGA attack almost like i was having some sort of seizure. I really had to contain myself and stop myself from panicking. I calmed down a bit and after a few hours my mind started to settle down again. Its weird like you are having thoughts you had earlier but they are delayed i cant explain it.
I have had bad headache for 3 days and a neck ache, and my legs hurt like hell. I just want to curl up and stay in bed but I know I cant as if i dont force him to eat he wont. He has a BMI of only 17 right now which is worryingly low for a man his height.
Its only 3.30 here in the UK and I am ready for my bed lol.
I did not realise just how ill I have become but i know now and its a real shock to me.
I just dont know what to do......I might have to get social services involved to do an assessment for us both as I need help right now to feed him and care for him even though I know he should be capable of doing this himself, he only has a gallbladder infection which will be removed soon, BUT he seems vague, and out of balance, not himself at all, just like an old man of 90. I am beginning to wonder if he had a small stroke in hospital, because on Monday afternoon his speach was terrible really slurred even his son noticed it.
Sorry for rant, it makes no sense but i just felt the need to moan to someone as I am scared to death right now what will become of us. x Maria
I have realised this last 2 weeks since he got sick how ill I am really, and I am truly worried about what the future holds for us both now because if he keeps getting sick I know I cannot care for him or cope with him being ill.
I have tried really but I feel so ill right now.
I had a funny turn yesterday when I thought I was going to have another Transient Global Amnesia attack like i did in January 2007 when I lost about 3 hours of my life. This was brought on my stress the doctors think.
Yesterday I was having weird memory flashbacks and stuff going on just like when I was coming back round from my TGA attack almost like i was having some sort of seizure. I really had to contain myself and stop myself from panicking. I calmed down a bit and after a few hours my mind started to settle down again. Its weird like you are having thoughts you had earlier but they are delayed i cant explain it.
I have had bad headache for 3 days and a neck ache, and my legs hurt like hell. I just want to curl up and stay in bed but I know I cant as if i dont force him to eat he wont. He has a BMI of only 17 right now which is worryingly low for a man his height.
Its only 3.30 here in the UK and I am ready for my bed lol.
I did not realise just how ill I have become but i know now and its a real shock to me.
I just dont know what to do......I might have to get social services involved to do an assessment for us both as I need help right now to feed him and care for him even though I know he should be capable of doing this himself, he only has a gallbladder infection which will be removed soon, BUT he seems vague, and out of balance, not himself at all, just like an old man of 90. I am beginning to wonder if he had a small stroke in hospital, because on Monday afternoon his speach was terrible really slurred even his son noticed it.
Sorry for rant, it makes no sense but i just felt the need to moan to someone as I am scared to death right now what will become of us. x Maria
Wow! Soo very sorry you are having more things added to your "pile". I said in a response in one of your other posts that I had an idea and that I was going to do some research on it. I think my idea was wrong...
I know that people tend to sleep much more when they are ill. It is necessary for the body to heal itself. I am sure that that is no consolation to you right now though.
I agree, too, that you should call social services just to see what resources they have to offer you. Is he able to get up on his own at all? If so, would it be too much for him to pop something in the microwave to heat up? Could someone (a neighbor, friend, or family member) assist you with cooking some meals to store in the freezer that could be heated up in the microwave so you don't have to worry about cooking for now?
The slurred speech is definately alarming to me! Did the doctors notice it and did they do any testing for a stroke? Did your husband feel any other symptoms when this was happening or before?
Social services should definately be able to hook you up with some kind of assistance. I don't know how things work over there, but I know here they have temporary home care that is covered by private insurance as well as medicare. I actually work for place that offers home care. We go into the patient's home 1-5 times/week to assist them with pretty much anything they need. Like personal cares, bathing, dressing, and things like that, but also meal prep/cooking, light housekeeping, etc. Maybe they have something there?
Keep us posted and hang in there! Things WILL get better!
(((hugs to you)))
Sarah
PS-what are they giving him to treat the infection while he is waiting for surgery? Some of those meds are really harsh on the body and can cause all kinds of side effects like sleepiness, being off balance, etc.
I know that people tend to sleep much more when they are ill. It is necessary for the body to heal itself. I am sure that that is no consolation to you right now though.
I agree, too, that you should call social services just to see what resources they have to offer you. Is he able to get up on his own at all? If so, would it be too much for him to pop something in the microwave to heat up? Could someone (a neighbor, friend, or family member) assist you with cooking some meals to store in the freezer that could be heated up in the microwave so you don't have to worry about cooking for now?
The slurred speech is definately alarming to me! Did the doctors notice it and did they do any testing for a stroke? Did your husband feel any other symptoms when this was happening or before?
Social services should definately be able to hook you up with some kind of assistance. I don't know how things work over there, but I know here they have temporary home care that is covered by private insurance as well as medicare. I actually work for place that offers home care. We go into the patient's home 1-5 times/week to assist them with pretty much anything they need. Like personal cares, bathing, dressing, and things like that, but also meal prep/cooking, light housekeeping, etc. Maybe they have something there?
Keep us posted and hang in there! Things WILL get better!
(((hugs to you)))
Sarah
PS-what are they giving him to treat the infection while he is waiting for surgery? Some of those meds are really harsh on the body and can cause all kinds of side effects like sleepiness, being off balance, etc.
dear maria,
oh goodness knows i wish we lived closer. i would have my husband whip up a bunch of food for you and mike, and we could sit and have tea.
i am so, so, so sorry for everything that is happening to you and mike, and i know when one of the cards in the delicate house of cards we all maintain begins to wobble, it shows how precarious the structure of our lives with chronic illness really is. the only thing i can say is try not to get too far ahead of yourself, like niko suggests. i succeed in scaring the living *%&! out of myself when i start thinking about all the "what ifs" and unknowns.
like buffy suggests, maybe put a call into social services on monday so you can do some information gathering and feel like you're being proactive. it may be all for naught since once mike has his procedure, he will likely snap back and be up and running again. even so, you will have some information that may help you to not feel so powerless.
i was thinking about mike and the possibility of a stroke--if he hasn't been eating and his blood sugar has gotten really low, that might be an explanation for his slurred speech?? just a thought.
also, dealing with protracted stress like you have takes its toll on everyone, but when you layer it on top of your illness, it's no wonder your head hurts and your life is basically flashing before your eyes.
oh goodness knows i wish i could give you a big hug, maria. please try to get some rest, my friend. i am praying for you and mike that this will all be behind you soon.
love
binx/IWC
oh goodness knows i wish we lived closer. i would have my husband whip up a bunch of food for you and mike, and we could sit and have tea.
i am so, so, so sorry for everything that is happening to you and mike, and i know when one of the cards in the delicate house of cards we all maintain begins to wobble, it shows how precarious the structure of our lives with chronic illness really is. the only thing i can say is try not to get too far ahead of yourself, like niko suggests. i succeed in scaring the living *%&! out of myself when i start thinking about all the "what ifs" and unknowns.
like buffy suggests, maybe put a call into social services on monday so you can do some information gathering and feel like you're being proactive. it may be all for naught since once mike has his procedure, he will likely snap back and be up and running again. even so, you will have some information that may help you to not feel so powerless.
i was thinking about mike and the possibility of a stroke--if he hasn't been eating and his blood sugar has gotten really low, that might be an explanation for his slurred speech?? just a thought.
also, dealing with protracted stress like you have takes its toll on everyone, but when you layer it on top of your illness, it's no wonder your head hurts and your life is basically flashing before your eyes.
oh goodness knows i wish i could give you a big hug, maria. please try to get some rest, my friend. i am praying for you and mike that this will all be behind you soon.
love
binx/IWC
Hey Maria,
This is not the contract you signed my dear!!
There's definitely something inside you that you have held on for too long.
You ARE a strong person and you have very little fear, remember?
This has not changed. Just some circumstances outside you.
Don't let them take over.
Just to help you process things a bit better:
Practice mindfulness. Live in the moment. See the present
as just the way things are now.
Mikes symptoms are just part of a message.
It is valuable information that his body is not in harmony and in balance.
Sometimes we do not pay attention. Sometimes the message is stronger
and then we may listen. It is an opportunity to correct the imbalance.
Good or bad information, news, events are only such according to the "judgement"or the "concepts" we have about them in our heads.
The BMI scale you are using for Mike is "different than the one I use.
I use the BMI Prime.It is a ratio of actual BMI to upper limit BMI which is
25 for Western Societies. So Mike's BMI Prime is 17/25 or 0.68.
Optimum is 0.74-0.99. So now he is in a category just below optimum!
Get him some apple juice, apple cider vinegar and a little virgin coconut oil. The first 2 will help with pain and the coconut oil with energy. His brain can use this for energy as well. Coconut oil can cross the blood-brain barrier and supply much needed energy in such circumstances where glucose supply is limited.
It is normal that he needs to sleep. His body is fighting constantly to beat this thing and at the same time he is unable to get enough fuel to continue , so nature prevails by having him sleep a lot to save energy.
You need to rest and this is what your headaches are telling you.
And worrying about every detail. Worry is a form of fear, but very unreal.
It is future based, a product of thinking and very demotivating.
Invite what you really want. Your energy will attract whatever you are putting out there. So you might as well go for your heart desires!
Maria, let go of the heavy stuff that is not serving you.
Once you lighten the load, you will feel better, regardless of the outside circumstances. Allow yourself this, and the reward is that you will be able to serve Mike and anyone around you in a more gratifying manner.
Now it is just a struggle. I know it and I feel it in my gut!!
Stay Strong and True to yourself.
We may not be neighbors as Buffy put it, but we are right there with you in thought and spirit.
Keep us posted.
Blessings and Hugs
Niko
This is not the contract you signed my dear!!
There's definitely something inside you that you have held on for too long.
You ARE a strong person and you have very little fear, remember?
This has not changed. Just some circumstances outside you.
Don't let them take over.
Just to help you process things a bit better:
Practice mindfulness. Live in the moment. See the present
as just the way things are now.
Mikes symptoms are just part of a message.
It is valuable information that his body is not in harmony and in balance.
Sometimes we do not pay attention. Sometimes the message is stronger
and then we may listen. It is an opportunity to correct the imbalance.
Good or bad information, news, events are only such according to the "judgement"or the "concepts" we have about them in our heads.
The BMI scale you are using for Mike is "different than the one I use.
I use the BMI Prime.It is a ratio of actual BMI to upper limit BMI which is
25 for Western Societies. So Mike's BMI Prime is 17/25 or 0.68.
Optimum is 0.74-0.99. So now he is in a category just below optimum!
Get him some apple juice, apple cider vinegar and a little virgin coconut oil. The first 2 will help with pain and the coconut oil with energy. His brain can use this for energy as well. Coconut oil can cross the blood-brain barrier and supply much needed energy in such circumstances where glucose supply is limited.
It is normal that he needs to sleep. His body is fighting constantly to beat this thing and at the same time he is unable to get enough fuel to continue , so nature prevails by having him sleep a lot to save energy.
You need to rest and this is what your headaches are telling you.
And worrying about every detail. Worry is a form of fear, but very unreal.
It is future based, a product of thinking and very demotivating.
Invite what you really want. Your energy will attract whatever you are putting out there. So you might as well go for your heart desires!
Maria, let go of the heavy stuff that is not serving you.
Once you lighten the load, you will feel better, regardless of the outside circumstances. Allow yourself this, and the reward is that you will be able to serve Mike and anyone around you in a more gratifying manner.
Now it is just a struggle. I know it and I feel it in my gut!!
Stay Strong and True to yourself.
We may not be neighbors as Buffy put it, but we are right there with you in thought and spirit.
Keep us posted.
Blessings and Hugs
Niko
Hi A. I am not much use right now but saw your post and wanted to wish you the best. Hang in there. You and your husband will work out something. As for SS, I would suggest you start right away. Don't wait until you are too far gone to go through the necessary motions/whatever is necessary. I am learning the hard way to seek help before I think I need it or it's too late.
Give yourself a nap, ask a neighbor for help (I'd help if I could in a heartbeat and I'm no Mother T). I don't know your story but I hope you aren't trying to do everything yourself.
Hang in there and keep us posted.
I'll check in and intro myself when I can type more.
Give yourself a nap, ask a neighbor for help (I'd help if I could in a heartbeat and I'm no Mother T). I don't know your story but I hope you aren't trying to do everything yourself.
Hang in there and keep us posted.
I'll check in and intro myself when I can type more.
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