Aa
I guess it's really Official - MS Dx.
Hi Everyone.
I have not posted in a bit, have been quite crazy lately but I had a nuero appt. today, and although I am not "surprised" at my MS Dx. (as we have been discussing it with my doc so much). It all came to life today when my doctor handed me my prescription for Avonex and my pretty little Avonex Support Kit to get me started.
I have to admit my eyes got teary as it has been a long time coming with this dx. as I always new in my heart (according to all my medical records) that MS was the culprit. But it just really seemed so "real" when I got my script.
I have to say I am scared. I know I am going to be okay, but I am scared, maybe because I just watched the DVD's about my injections and I am not totally thrilled but I can do this.
Thanks for ALL your support and advice throughout my years of limbo with this.
Jib Jen
I have not posted in a bit, have been quite crazy lately but I had a nuero appt. today, and although I am not "surprised" at my MS Dx. (as we have been discussing it with my doc so much). It all came to life today when my doctor handed me my prescription for Avonex and my pretty little Avonex Support Kit to get me started.
I have to admit my eyes got teary as it has been a long time coming with this dx. as I always new in my heart (according to all my medical records) that MS was the culprit. But it just really seemed so "real" when I got my script.
I have to say I am scared. I know I am going to be okay, but I am scared, maybe because I just watched the DVD's about my injections and I am not totally thrilled but I can do this.
Thanks for ALL your support and advice throughout my years of limbo with this.
Jib Jen
Hi,
Yes RRMS. I will take it 1x a week .Yikes. I will get through this!
I am feeling a bit more realistic about it now...
Jibby
Yes RRMS. I will take it 1x a week .Yikes. I will get through this!
I am feeling a bit more realistic about it now...
Jibby
At least now you can take something that should slow down the progression of MS. So has he diagnosed you with RRMS then? Do you have to take the Avonex when you are in a flare or can you just start it even if your not having a relapse, it sounds very complicated to me lol. I would never do it no needles lol.
You are bound to be all over the place jibby its a relief in some respects but a bit scary in another.
xxx big hugs.x
You are bound to be all over the place jibby its a relief in some respects but a bit scary in another.
xxx big hugs.x
Hey there girlie,
I hadn't checked out the Avonex website!! lol SOOO, thank you! I'm not sure why I hadn't looked there. I am a silly girl.
I had activities for my son this morning but will be checking it out today.
We can do this together....we can. :)
(((Hugs)))
I hadn't checked out the Avonex website!! lol SOOO, thank you! I'm not sure why I hadn't looked there. I am a silly girl.
I had activities for my son this morning but will be checking it out today.
We can do this together....we can. :)
(((Hugs)))
I am glad you got your answer finally, but I can completely see how the 'official' stamp would put your emotions into turmoil. Even though you knew what it was, w/o that label, I think some small part of you is still holding out hope for something with a quick fix, no matter how small the odds are.
Reading about all of you who have recently been diagnosed, it has been very easy to empathize with each of you, but I'm sure it is a whole different level of emotion when it is actually your name on the diagnosis.
I hope things go really well for you and that you are one of the lucky ones with an easy adjustment period to the Avonex! I think the needles will be easier to adjust to than you think. I did the HCG diet last summer with Intramuscular Injections and by the end of the 40 injections, I was doing them myself instead of having to get my husband to do it. And I will admit that looking at those needles kind of intimidated me at first.
Interestingly, my first big 'flare' came 3 months after I stopped injecting pregnancy hormones so I'm thinking that is another factor pointing at MS. I'm really disappointed that I will probably not be able to do anymore rounds of HCG because it really worked well for me and I haven't regained any of the 20 lbs. I lost.
I hope you are able to give yourself time to experience all the emotions you will be going through with no pressure to rush yourself.
Valerie
Reading about all of you who have recently been diagnosed, it has been very easy to empathize with each of you, but I'm sure it is a whole different level of emotion when it is actually your name on the diagnosis.
I hope things go really well for you and that you are one of the lucky ones with an easy adjustment period to the Avonex! I think the needles will be easier to adjust to than you think. I did the HCG diet last summer with Intramuscular Injections and by the end of the 40 injections, I was doing them myself instead of having to get my husband to do it. And I will admit that looking at those needles kind of intimidated me at first.
Interestingly, my first big 'flare' came 3 months after I stopped injecting pregnancy hormones so I'm thinking that is another factor pointing at MS. I'm really disappointed that I will probably not be able to do anymore rounds of HCG because it really worked well for me and I haven't regained any of the 20 lbs. I lost.
I hope you are able to give yourself time to experience all the emotions you will be going through with no pressure to rush yourself.
Valerie
Oh Jibby! I'm sooo sorry! It is going to be a weird ride of emotions for a bit, at least it has been for me. It has been a few months for me now, and I still can't believe it. I never got any kind of closure though, so maybe I'm a little bit different.
I'm glad that they gave you all the tools you need right off the bat. Suprisingly those packets they give you usually have really good info and help you to feel a little bit stronger that you can do this.
What made them/you chose Avonex over the others? When I was first dx'd I went over to the MS forum and asked them for some advice as to how to deal with the emotions. A lot of them said to just let yourself "feel" them, they are all normal. It is just like going through the grieving process and takes time.
Please let me know if there is anything I can do or if you need someone to talk to!
Love and gentle hugs!
Sarah
I'm glad that they gave you all the tools you need right off the bat. Suprisingly those packets they give you usually have really good info and help you to feel a little bit stronger that you can do this.
What made them/you chose Avonex over the others? When I was first dx'd I went over to the MS forum and asked them for some advice as to how to deal with the emotions. A lot of them said to just let yourself "feel" them, they are all normal. It is just like going through the grieving process and takes time.
Please let me know if there is anything I can do or if you need someone to talk to!
Love and gentle hugs!
Sarah
Hey Jibby!
I just got back from Europe and just felt to check in and say hi!
If there's something that I can say that may make sense here for you and for anyone else in a similar situation, well here it goes:
"Where there's Love, there's no Fear, as these 2 Master Emotions that rule and drive Life,cannot co-exist"
"God is Love, and he who abides in Love abides in God, and God in him"
(I John 4:16)
This Great Law in Spirituality is the ultimate Gift we can give to ourselves.
It transcends all levels of our Being, by simply recognizing our connection to our Higher Power.
My own Life has been driven by this principle-whether in sickness or disease, despair or disappointment, controversy or disharmony, as commonly "accepted"- by simply being in God's Consciousness.
Love and Hugs!
Niko
I just got back from Europe and just felt to check in and say hi!
If there's something that I can say that may make sense here for you and for anyone else in a similar situation, well here it goes:
"Where there's Love, there's no Fear, as these 2 Master Emotions that rule and drive Life,cannot co-exist"
"God is Love, and he who abides in Love abides in God, and God in him"
(I John 4:16)
This Great Law in Spirituality is the ultimate Gift we can give to ourselves.
It transcends all levels of our Being, by simply recognizing our connection to our Higher Power.
My own Life has been driven by this principle-whether in sickness or disease, despair or disappointment, controversy or disharmony, as commonly "accepted"- by simply being in God's Consciousness.
Love and Hugs!
Niko
I was not done LOL
Anyhoot. I hope to get things all done Monday and call for my trining and just ask them. Have you gone on Avonex website? Good info there too.
Jibs
Anyhoot. I hope to get things all done Monday and call for my trining and just ask them. Have you gone on Avonex website? Good info there too.
Jibs
Hi sweetie,
It is weird. it will be 4 years in May I have been on this crazy ride..My first doc for 3 and this doc for just about 1. This doc is my forever doc.
I think I was numb for a bit. I knew it was MS
I have a lot of sensory issues, numbness, TN, spasms in hand, numb thumb that comes and goes. fatigue, and have had vision issues in left eye although ON was never dx. weakness as well. FUN!
I loose words when I talk and get lost mid sentence - memory issues
The said something about filling out paperwork/for a nurse but have not found it in book/kit yet. The Kit and DVD is amazing. ActiveSource.com is a website from Kit that has a lot of info.
I will have a nurse come out to do injection training...I freak'n hate needles. My doc said it is not bad and the DVD people said it is not really bad...Just so you know it does not matter if the needle is long or short...it is going to have same "discomfort level". I learned that from DVD so there goes my theory LOL
We CAN do this together!
It is weird. it will be 4 years in May I have been on this crazy ride..My first doc for 3 and this doc for just about 1. This doc is my forever doc.
I think I was numb for a bit. I knew it was MS
I have a lot of sensory issues, numbness, TN, spasms in hand, numb thumb that comes and goes. fatigue, and have had vision issues in left eye although ON was never dx. weakness as well. FUN!
I loose words when I talk and get lost mid sentence - memory issues
The said something about filling out paperwork/for a nurse but have not found it in book/kit yet. The Kit and DVD is amazing. ActiveSource.com is a website from Kit that has a lot of info.
I will have a nurse come out to do injection training...I freak'n hate needles. My doc said it is not bad and the DVD people said it is not really bad...Just so you know it does not matter if the needle is long or short...it is going to have same "discomfort level". I learned that from DVD so there goes my theory LOL
We CAN do this together!
Ohhhh Jibby,
((hugs))
Weird huh? I cannot express it adequately really how it feels.
You know, though, I have to giggle because I read your post and was slightly jealous. ;) I did not get a little Avonex Support Kid or prescription. I got a slip that said "Avonex" and the nurse filled out the forms to have the Avonex nurse come out.
I'm not crazy about the injections either. I know I can do it but... I don't want to. Are they having someone come out to do the first injection?
How long have you been in limbo? You have been so "calm" about this since I've been here, what are you symptoms?
(((hugs))) We can be not fully ready together.
((hugs))
Weird huh? I cannot express it adequately really how it feels.
You know, though, I have to giggle because I read your post and was slightly jealous. ;) I did not get a little Avonex Support Kid or prescription. I got a slip that said "Avonex" and the nurse filled out the forms to have the Avonex nurse come out.
I'm not crazy about the injections either. I know I can do it but... I don't want to. Are they having someone come out to do the first injection?
How long have you been in limbo? You have been so "calm" about this since I've been here, what are you symptoms?
(((hugs))) We can be not fully ready together.
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