Hello All, I know it has been a while but I am still on my what feels like a never ending journey with this Optic Neuritis, I finally have my MRI booked for the 24th of July. I went back to see the eye doctor because my vision is still depleting. She was very shocked and continued to say to me "I am surprised you see as well as you do" She has reffered me to see a Neuro Opthomologist. It is incredibly hot here and I am finding the hotter I get the more my head hurts and less I can see out of my right eye. Now on the new symptom front, I wake up almost every morning now with a headache, especially on the right side of my head (my right eye has the ON in it) When I stand , the headache gets significantly worse for about half an hour or so, then seems to subside. Anyone have any idea what that is all about?? It is like seeing through a screen, it is weird but I am starting to get very worried. I am afraid the loss of vision will become permanent. Any thoughts/ideas I am open to hearing anything at this point. The appointment with the neuro opthomologist is not until the 21st of July. Oh and btw the Lupus blood work came back negative.
Thanks
Tracy